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Palliative care in other conditions

Section edited by Claudia Bausewein

This broad section considers submissions relevant to pain and symptom management in human disorders, including studies related to rehabilitation, quality of life, and end of life care. We will consider quantitative and qualitative research, including clinical trials of pain or symptom control therapies, and health services studies evaluating the outcomes of diverse therapeutic models.

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  1. Chronic kidney disease (CKD) is a growing global problem affecting around 10% of many countries’ populations. Providing appropriate palliative care services (PCS) to those with advanced kidney disease is becom...

    Authors: Shirley Chambers, Helen Healy, Wendy E. Hoy, Adrian Kark, Sharad Ratanjee, Geoffrey Mitchell, Carol Douglas, Patsy Yates and Ann Bonner

    Citation: BMC Palliative Care 2018 17:57

    Content type: Research article

    Published on:

  2. People with schizophrenia are at risk of receiving poorer end of life care than other patients. They are often undertreated, avoid treatment and are about half as likely to access palliative care. There are li...

    Authors: Beverley McNamara, Anne Same, Lorna Rosenwax and Brian Kelly

    Citation: BMC Palliative Care 2018 17:53

    Content type: Research article

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  3. Several studies have highlighted the need for improvement in palliative care delivered to older people long-term care facilities. However, the available evidence on how to improve palliative care in these sett...

    Authors: Tinne Smets, Bregje B. D. Onwuteaka-Philipsen, Rose Miranda, Lara Pivodic, Marc Tanghe, Hein van Hout, Roeline H. R. W. Pasman, Mariska Oosterveld-Vlug, Ruth Piers, Nele Van Den Noortgate, Anne B. Wichmann, Yvonne Engels, Myrra Vernooij-Dassen, Jo Hockley, Katherine Froggatt, Sheila Payne…

    Citation: BMC Palliative Care 2018 17:47

    Content type: Study protocol

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  4. Heart failure is an emerging challenge for Sub Saharan Africa. However, research on patients’ needs and experiences of care is scarce with little evidence available to support and develop services. We aimed to...

    Authors: Kellen N. Kimani, Scott A. Murray and Liz Grant

    Citation: BMC Palliative Care 2018 17:28

    Content type: Research article

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  5. The well lauded community-based palliative care programme of Kerala, India provides medical and social support, through home-based care, for patients with terminal illness and diseases requiring long-term supp...

    Authors: Rekha Rachel Philip, Sairu Philip, Jaya Prasad Tripathy, Abdulla Manima and Emilie Venables

    Citation: BMC Palliative Care 2018 17:26

    Content type: Research article

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  6. People dying with dementia have significant healthcare needs, and palliative care, with its focus on comfort and quality of life, should be made available to these patients. The aim of this study was to explor...

    Authors: May Helen Midtbust, Rigmor Einang Alnes, Eva Gjengedal and Else Lykkeslet

    Citation: BMC Palliative Care 2018 17:25

    Content type: Research article

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  7. In 2009, the Taiwanese national health insurance system substantially expanded hospice coverage for terminal cancer patients to include patients with end-stage brain, dementia, heart, lung, liver, and kidney d...

    Authors: Tzu-Chien Shih, Hsiao-Ting Chang, Ming-Hwai Lin, Chun-Ku Chen, Tzeng-Ji Chen and Shinn-Jang Hwang

    Citation: BMC Palliative Care 2018 17:18

    Content type: Research article

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  8. In 2007, the European Association of Palliative Care (EAPC) provided a comprehensive set of recommendations and standards for the provision of adequate pediatric palliative care. A number of studies have shown...

    Authors: Lisa-R. Ulrich, Dania Gruber, Michaela Hach, Stefan Boesner, Joerg Haasenritter, Katrin Kuss, Hannah Seipp, Ferdinand M. Gerlach and Antje Erler

    Citation: BMC Palliative Care 2018 17:14

    Content type: Study protocol

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  9. Around the world, different models of paediatric palliative care have responded to the unique needs of children with life shortening conditions. However, research confirming their utility and impact is still l...

    Authors: P. H. Chong, J. A. De Castro Molina, K. Teo and W. S. Tan

    Citation: BMC Palliative Care 2018 17:11

    Content type: Research article

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  10. Amyotrophic lateral sclerosis (ALS) is an incurable neurodegenerative disease that dramatically affects patients’ quality of life (QoL) and dignity of life (DoL). We aimed to study the impact of ALS on QoL and...

    Authors: Yolanda Martínez-Campo, Christian Homedes, Ana Lazaro, Raquel Alarcón, David Campo, Mariona Riera, Raúl Domínguez, Mónica Povedano and Carlos Casasnovas

    Citation: BMC Palliative Care 2017 16:75

    Content type: Research article

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  11. Community-based palliative care is associated with reduced hospital costs for people dying from cancer. It is unknown if reduced hospital costs are universal across multiple life-limiting conditions amenable t...

    Authors: Katrina Spilsbury and Lorna Rosenwax

    Citation: BMC Palliative Care 2017 16:68

    Content type: Research article

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  12. There is a notable inequity in access to palliative care (PC) services between cancer and Chronic Heart Failure (CHF)/Chronic Obstructive Pulmonary Disease (COPD) patients which also translates into discrepanc...

    Authors: Naouma Siouta, Karen Van Beek, Sheila Payne, Lukas Radbruch, Nancy Preston, Jeroen Hasselaar, Carlos Centeno and Johan Menten

    Citation: BMC Palliative Care 2017 16:62

    Content type: Research article

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  13. Parkinson’s disease (PD) is a chronic, progressive neurological disorder with many intractable consequences for patients and their family caregivers. Little is known about the possibilities that palliative car...

    Authors: Herma Lennaerts, Marieke Groot, Maxime Steppe, Jenny T. van der Steen, Marieke Van den Brand, Dorian van Amelsvoort, Kris Vissers, Marten Munneke and Bastiaan R. Bloem

    Citation: BMC Palliative Care 2017 16:61

    Content type: Study protocol

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  14. Ninety-eight percent of children needing palliative care live in low- and middle-income countries (LMICs), and almost half of them live in Africa. In contrast to the abundance of data on populations in high in...

    Authors: Hatoko Sasaki, Marie-Charlotte Bouesseau, Joan Marston and Rintaro Mori

    Citation: BMC Palliative Care 2017 16:60

    Content type: Research article

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  15. Although the Japanese government has expanded its ‘Elderly Housing with Care Services’ (EHCS) to ensure sufficient places of death for the elderly, resident deaths have occurred in less than 30% of the facilit...

    Authors: Kentaro Sugimoto, Yasuko Ogata, Masayo Kashiwagi, Haruka Ueno, Yoshie Yumoto and Yuki Yonekura

    Citation: BMC Palliative Care 2017 16:58

    Content type: Research article

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  16. Patients with severe stroke often do not have the capacity to participate in discussions on treatment restrictions because of a reduced level of consciousness, aphasia, or another cognitive disorder. We assess...

    Authors: Floor A. S. de Kort, Marjolein Geurts, Paul L. M. de Kort, Julia H. van Tuijl, Ghislaine J. M. W. van Thiel, L. Jaap Kappelle and H. Bart van der Worp

    Citation: BMC Palliative Care 2017 16:52

    Content type: Research article

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  17. Animal-assisted therapy (AAT) is a therapeutic concept, which has only recently been explored in more detail within the palliative care setting. A programme of AAT was begun in June 2014 at the Interdisciplina...

    Authors: Andrea Schmitz, Melanie Beermann, Colin R. MacKenzie, Katharina Fetz and Christian Schulz-Quach

    Citation: BMC Palliative Care 2017 16:50

    Content type: Research article

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  18. To expand our clinical and scientific knowledge about holistic outcomes within palliative care, there is a need for agreed-upon patient-reported outcome measures. These patient-reported outcome measures then r...

    Authors: Ingela Beck, Ulrika Olsson Möller, Marlene Malmström, Anna Klarare, Henrik Samuelsson, Carina Lundh Hagelin, Birgit Rasmussen and Carl Johan Fürst

    Citation: BMC Palliative Care 2017 16:49

    Content type: Research article

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  19. The World Health Organization (WHO) has called for global approaches to palliative care development. Yet it is questionable whether one-size-fits-all solutions can accommodate international disparities in pall...

    Authors: Lisa Williams, Merryn Gott, Tess Moeke-Maxwell, Stella Black, Shuchi Kothari, Sarina Pearson, Tessa Morgan, Matua Rawiri Wharemate and Whaea Whio Hansen

    Citation: BMC Palliative Care 2017 16:46

    Content type: Research article

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  20. Early palliative care (EPC) is recommended but rarely integrated with advanced heart failure (HF) care. We engaged patients and family caregivers to study the feasibility and site differences in a two-site EPC...

    Authors: Marie Bakitas, J. Nicholas Dionne-Odom, Salpy V. Pamboukian, Jose Tallaj, Elizabeth Kvale, Keith M. Swetz, Jennifer Frost, Rachel Wells, Andres Azuero, Konda Keebler, Imatullah Akyar, Deborah Ejem, Karen Steinhauser, Tasha Smith, Raegan Durant and Alan T. Kono

    Citation: BMC Palliative Care 2017 16:45

    Content type: Research article

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  21. Dementia is the most common neurological disorder worldwide and is a life-limiting condition, but very often is not recognised as such. People with dementia, and their carers, have been shown to have palliativ...

    Authors: Siobhán Fox, Carol FitzGerald, Karen Harrison Dening, Kate Irving, W. George Kernohan, Adrian Treloar, David Oliver, Suzanne Guerin and Suzanne Timmons

    Citation: BMC Palliative Care 2017 17:9

    Content type: Debate

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    The Erratum to this article has been published in BMC Palliative Care 2017 16:51

  22. Individuals with HIV have a high prevalence of physical and psychological symptoms throughout their disease course. Despite the clinical and public health implications of unresolved pain and symptoms, little i...

    Authors: Katie Wakeham, Richard Harding, Jonathan Levin, Rosalind Parkes-Ratanshi, Anatoli Kamali and David G Lalloo

    Citation: BMC Palliative Care 2017 17:8

    Content type: Research article

    Published on:

    The Erratum to this article has been published in BMC Palliative Care 2017 16:51

  23. Previous research and key guidelines have suggested potential models of palliative care for patients with COPD and interstitial lung disease. However, these recommendations are often not effectively implemente...

    Authors: Clare Mc Veigh, Joanne Reid, Philip Larkin, Sam Porter and Peter Hudson

    Citation: BMC Palliative Care 2017 17:6

    Content type: Research article

    Published on:

    The Erratum to this article has been published in BMC Palliative Care 2017 16:51

  24. Dyspnoea is a disabling symptom in patients admitted with heart failure (HF) and respiratory diseases (RD). The main aim of this study is to evaluate its intensity at admission and discharge and the relation w...

    Authors: Lourdes Vicent, Juan Manuel Nuñez Olarte, Luis Puente-Maestu, Alicia Oliva, Juan Carlos López, Andrea Postigo, Irene Martín, Raquel Luna, Francisco Fernández-Avilés and Manuel Martínez-Sellés

    Citation: BMC Palliative Care 2017 16:35

    Content type: Research article

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  25. Neonatology has made significant advances in the last 30 years. Despite the advances in treatments, not all neonates survive and a palliative care model is required within the neonatal context. Previous resear...

    Authors: Meegan Kilcullen and Susan Ireland

    Citation: BMC Palliative Care 2017 16:32

    Content type: Research article

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  26. It is estimated that 19 to 83% of people with dementia suffer from pain that is inadequately treated in the last months of life. A large number of healthcare workers who care for these people in nursing homes ...

    Authors: Andrea Koppitz, Georg Bosshard, Geneviève Blanc, Hannele Hediger, Sheila Payne and Thomas Volken

    Citation: BMC Palliative Care 2017 16:27

    Content type: Study protocol

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  27. A continuous subcutaneous infusion (CSCI) delivered via syringe pump is a method of drug administration used to maintain symptom control when a patient is no longer able to tolerate oral medication. Several cl...

    Authors: Andrew Dickman, Matthew Bickerstaff, Richard Jackson, Jennifer Schneider, Stephen Mason and John Ellershaw

    Citation: BMC Palliative Care 2017 16:22

    Content type: Research article

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  28. It has been found that including volunteers in palliative care is a positive contribution to seriously ill patients. It is, however, recommended that the volunteers are trained and supported. The aim of this s...

    Authors: Ulrika Söderhamn, Sylvi Flateland, Marthe Fensli and Ragnhild Skaar

    Citation: BMC Palliative Care 2017 16:18

    Content type: Research article

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  29. An advance directive (AD) is a written or verbal document that legally stipulates a person’s health care preference while they are competent to make decisions for themselves and is used to guide decisions on l...

    Authors: Stephen Omondi, John Weru, Asim Jamal Shaikh and Gerald Yonga

    Citation: BMC Palliative Care 2017 16:9

    Content type: Research article

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  30. Pain assessment and management are key aspects in the care of people with dementia approaching the end of life but become challenging when patient self-report is impaired or unavailable. Best practice recommen...

    Authors: Bannin De Witt Jansen, Kevin Brazil, Peter Passmore, Hilary Buchanan, Doreen Maxwell, Sonja J. McIlfatrick, Sharon M. Morgan, Max Watson and Carole Parsons

    Citation: BMC Palliative Care 2017 16:6

    Content type: Research article

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  31. Patients with serious chronic illnesses face increasingly complex care and are at risk of poor experience due to a fragmented health system. Most current patient experience tools are not designed to address th...

    Authors: Karl M. Fernstrom, Nathan D. Shippee, Alissa L. Jones and Heather R. Britt

    Citation: BMC Palliative Care 2016 15:99

    Content type: Research article

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  32. Exercise is increasingly recognized as a core component of palliative rehabilitation. The group exercise model is often adopted as a means of reaching more patients with limited resource. Despite the growth of...

    Authors: Lorna Malcolm, Gill Mein, Alison Jones, Helena Talbot-Rice, Matthew Maddocks and Katherine Bristowe

    Citation: BMC Palliative Care 2016 15:97

    Content type: Research article

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  33. People who are homeless or vulnerably housed are a marginalized group who often experience high rates of morbidity and die young as a result of complex problems. Access to health care and support can be challe...

    Authors: Briony F. Hudson, Kate Flemming, Caroline Shulman and Bridget Candy

    Citation: BMC Palliative Care 2016 15:96

    Content type: Research article

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  34. Telehealth is being used increasingly in providing care to patients in the community setting. Telehealth enhanced service delivery could offer new ways of managing load and care prioritisation for palliative c...

    Authors: Jennifer J. Tieman, Kate Swetenham, Deidre D. Morgan, Timothy H. To and David C. Currow

    Citation: BMC Palliative Care 2016 15:94

    Content type: Research article

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  35. Idiopathic pulmonary fibrosis (IPF) is a progressive disease with median survival from 2 to 7 years. Palliative care is an important part of patients´ care as lung transplantation is not an option for the majo...

    Authors: Kaisa Rajala, Juho T. Lehto, M. Saarinen, E. Sutinen, T. Saarto and M. Myllärniemi

    Citation: BMC Palliative Care 2016 15:85

    Content type: Research article

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  36. To plan integrated care at end of life for people with either heart failure or lung disease, we used a case conference between the patient’s general practitioner (GP), specialist services and a palliative care...

    Authors: Samantha Hollingworth, Jianzhen Zhang, Bharat Phani Vaikuntam, Claire Jackson and Geoffrey Mitchell

    Citation: BMC Palliative Care 2016 15:84

    Content type: Research article

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  37. The proportion of older people with advanced dementia who will die in nursing homes is constantly growing. However, little is known about the dying phase, the type of symptoms, the management of symptoms and t...

    Authors: Stefanie Eicher, Nathan Theill, Heike Geschwindner, Caroline Moor, Albert Wettstein, Gabriela Bieri-Brüning, Christoph Hock, Mike Martin, Henrike Wolf and Florian Riese

    Citation: BMC Palliative Care 2016 15:80

    Content type: Study protocol

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  38. Even though struggling with similar symptom burden, patients with chronic heart failure (CHF) receive less palliative care than patients suffering from malignant diseases. Researchers have found that this migh...

    Authors: Jeanette Ziehm, Erik Farin, Katharina Seibel, Gerhild Becker and Stefan Köberich

    Citation: BMC Palliative Care 2016 15:76

    Content type: Research article

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  39. Respiratory secretions impact negatively on palliative patients. Unfortunately, a gold standard therapy is not yet available. The purpose of this study was to identify which interventions are in use to control...

    Authors: Juliano Ferreira Arcuri, Ebun Abarshi, Nancy J. Preston, Jenny Brine and Valéria Amorim Pires Di Lorenzo

    Citation: BMC Palliative Care 2016 15:74

    Content type: Research article

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  40. Variation in provision of palliative care in kidney services and practitioner concerns to provide equitable access led to the development of this study which focussed on the perspectives of South Asian patient...

    Authors: Emma Wilkinson, Gurch Randhawa, Edwina Brown, Maria Da Silva Gane, John Stoves, Graham Warwick, Tahira Akhtar, Regina Magee, Sue Sharman and Ken Farrington

    Citation: BMC Palliative Care 2016 15:57

    Content type: Research article

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  41. Frail older people are an increasingly important group in primary care due to demographic change. For these patients, a palliative care approach may be useful to sustain the quality of life in the last phase o...

    Authors: Karin Geiger, Nils Schneider, Jutta Bleidorn, Katharina Klindtworth, Saskia Jünger and Gabriele Müller-Mundt

    Citation: BMC Palliative Care 2016 15:52

    Content type: Research article

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  42. The Brazilian healthcare system offers universal coverage but lacks information about how patients with PC needs are serviced by its primary care program, Estratégia Saúde da Família (ESF).

    Authors: Fernando C. I. Marcucci, Marcos A. S. Cabrera, Anamaria Baquero Perilla, Marilia Maroneze Brun, Eder Marcos L. de Barros, Vanessa M. Martins, John P. Rosenberg and Patsy Yates

    Citation: BMC Palliative Care 2016 15:51

    Content type: Research article

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  43. Integrated palliative care (IPC) involves bringing together administrative, organisational, clinical and service aspects in order to achieve continuity of care between all actors involved in the care network o...

    Authors: Eduardo Garralda, Jeroen Hasselaar, José Miguel Carrasco, Karen Van Beek, Naouma Siouta, Agnes Csikos, Johan Menten and Carlos Centeno

    Citation: BMC Palliative Care 2016 15:49

    Content type: Research article

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  44. With an increasing number of people dying in old age, collaboration between palliative care and geriatric medicine is increasingly being advocated in order to promote better health and health care for the incr...

    Authors: Gwenda Albers, K. Froggatt, L. Van den Block, G. Gambassi, P. Vanden Berghe, S. Pautex and N. Van Den Noortgate

    Citation: BMC Palliative Care 2016 15:47

    Content type: Research article

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  45. Historically, specialist palliative care has been accessed by a greater proportion of people dying with cancer compared to people with other life-limiting conditions. More recently, a variety of measures to im...

    Authors: Lorna Rosenwax, Katrina Spilsbury, Beverley A. McNamara and James B. Semmens

    Citation: BMC Palliative Care 2016 15:46

    Content type: Research article

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  46. Chinese tradition and culture developed from Taoism, Confucianism, and Buddhism and have influenced ethnic Chinese for thousands of years, particularly thoughts on death. Many ethnic Chinese, particularly olde...

    Authors: Hsin-Tzu Sophie Lee, Shu-Chen Cheng, Yu-Tzu Dai, Mei Chang and Wen-Yu Hu

    Citation: BMC Palliative Care 2016 15:45

    Content type: Research article

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  47. Certain advanced chronic conditions (heart failure, chronic lung disease) are associated with high mortality. Nevertheless, most of the time, patients with these conditions are not given the same level of atte...

    Authors: I. Martín-Lesende, E. Recalde, P. Viviane-Wunderling, T. Pinar, F. Borghesi, T. Aguirre, M. Recio, ME Martínez and J. Asua

    Citation: BMC Palliative Care 2016 15:42

    Content type: Research article

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  48. The leading cause of death among young children in southern Africa is complications due to HIV infection and, in South Africa, over a third of all deaths of children younger than five are associated with HIV i...

    Authors: Sara Naomi Naicker, Linda Richter, Alan Stein, Laura Campbell and Joan Marston

    Citation: BMC Palliative Care 2016 15:41

    Content type: Research article

    Published on:

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