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Palliative care in other conditions

Section edited by Claudia Bausewein

This broad section considers submissions relevant to pain and symptom management in human disorders, including studies related to rehabilitation, quality of life, and end of life care. We will consider quantitative and qualitative research, including clinical trials of pain or symptom control therapies, and health services studies evaluating the outcomes of diverse therapeutic models.

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  1. End-of-life care (EoLC) is an experience that touches the lives of everyone. Dying in an acute hospital is a common occurrence in developed countries across the world. Previous studies have shown that there is...

    Authors: Sarah Donnelly, Geraldine Prizeman, Diarmuid Ó Coimín, Bettina Korn and Geralyn Hynes

    Citation: BMC Palliative Care 2018 17:117

    Content type: Research article

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  2. To improve the care of patients with advanced COPD and be able to address their palliative needs a new outpatient organization (CAPTAIN) was developed and implemented. CAPTAIN was inspired by best practice and...

    Authors: Dorthe Gaby Bove, Marie Lavesen, Maria Omel Jellington, Kristoffer Bastrup-Madsen Marsaa and Suzanne Forsyth Herling

    Citation: BMC Palliative Care 2018 17:113

    Content type: Research article

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  3. Professional societies call for integration of end-of-life discussions early in the trajectory of heart failure, yet it remains unclear where current practices stand in relation to these recommendations. We so...

    Authors: Fiona Ecarnot, Nicolas Meunier-Beillard, Marie-France Seronde, Romain Chopard, François Schiele, Jean-Pierre Quenot and Nicolas Meneveau

    Citation: BMC Palliative Care 2018 17:112

    Content type: Research article

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  4. Globally the state of palliative care research remains uncertain. Questions remain regarding impact, funding, and research priorities. Building upon previous research, this review examines palliative care rese...

    Authors: Sonja McIlfatrick, Deborah H. L. Muldrew, Felicity Hasson and Sheila Payne

    Citation: BMC Palliative Care 2018 17:109

    Content type: Research article

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  5. A lack of evidence and psychometrically sound measures of compassion necessitated the development of the first known, empirically derived, theoretical Patient Compassion Model (PCM) generated from qualitative ...

    Authors: Shane Sinclair, Priya Jaggi, Thomas F. Hack, Susan E. McClement, Shelley Raffin-Bouchal and Pavneet Singh

    Citation: BMC Palliative Care 2018 17:108

    Content type: Research article

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  7. Death rattle (DR), caused by mucus in the respiratory tract, occurs in about half of patients who are in the dying phase. Relatives often experience DR as distressing. Anticholinergics are recommended to treat...

    Authors: Harriëtte J. van Esch, Lia van Zuylen, Esther Oomen–de Hoop, Agnes van der Heide and Carin C. D. van der Rijt

    Citation: BMC Palliative Care 2018 17:105

    Content type: Study protocol

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  8. Patients with Chronic Heart Failure (CHF) and patients with Chronic Obstructive Pulmonary Disease (COPD) share similar symptom burden with cancer patients, however, they are unlikely to receive palliative care...

    Authors: N. Siouta, P. Clement, B. Aertgeerts, K. Van Beek and J. Menten

    Citation: BMC Palliative Care 2018 17:103

    Content type: Research article

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  9. The specific palliative care needs and problems of patients with a substance use disorder and multiple problems, and those of their proxies, are under recognized Besides, the organization of palliative care, i...

    Authors: Anne Ebenau, Boukje Dijkstra, Marianne Stal-Klapwijk, Chantal ter Huurne, Ans Blom, Kris Vissers and Marieke Groot

    Citation: BMC Palliative Care 2018 17:97

    Content type: Study protocol

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  10. The implementation of standardised, valid and reliable measurements in palliative care is subject to practical and methodological challenges. One aspect of ongoing discussion is the value of systematic proxy-b...

    Authors: Katharina Fetz, Hendrik Vogt, Thomas Ostermann, Andrea Schmitz and Christian Schulz-Quach

    Citation: BMC Palliative Care 2018 17:92

    Content type: Research article

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  11. The aim of this paper was to describe the development of an intervention that is developed to improve communication about the heart failure (HF) trajectory and end-of-life care. We also present data that provi...

    Authors: Lisa Hjelmfors, Anna Strömberg, Maria Friedrichsen, Anna Sandgren, Jan Mårtensson and Tiny Jaarsma

    Citation: BMC Palliative Care 2018 17:85

    Content type: Research article

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  13. Due to increasing life expectancy, more and more older people are suffering from dementia and comorbidities. To date, little information is available on place of death for dementia patients in Germany. In addi...

    Authors: Burkhard Dasch, Claudia Bausewein and Berend Feddersen

    Citation: BMC Palliative Care 2018 17:80

    Content type: Research article

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  14. Although continuity of care in paediatric palliative care (PPC) is considered to be an essential element of quality of care, it’s implementation is challenging. In Belgium, five paediatric liaison teams (PLTs)...

    Authors: Marie Friedel, Bénédicte Brichard, Christine Fonteyne, Marleen Renard, Jean-Paul Misson, Els Vandecruys, Corinne Tonon, Françoise Verfaillie, Georgette Hendrijckx, Nathalie Andersson, Ilse Ruysseveldt, Katrien Moens, Jean-Marie Degryse and Isabelle Aujoulat

    Citation: BMC Palliative Care 2018 17:77

    Content type: Research article

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  15. Neonatal deaths are often associated with the complex decision to limit or withdraw life-sustaining interventions (LSIs) rather than therapeutic impasses. Despite the existence of a law, significant disparitie...

    Authors: G. Sorin, R. Vialet and B. Tosello

    Citation: BMC Palliative Care 2018 17:76

    Content type: Research article

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  16. There is little research on number of planned home deaths. We need information about factors associated with home deaths, but also differences between planned and unplanned home deaths to improve end-of-life-c...

    Authors: Camilla Kjellstadli, Bettina Sandgathe Husebø, Hogne Sandvik, Elisabeth Flo and Steinar Hunskaar

    Citation: BMC Palliative Care 2018 17:69

    Content type: Research article

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  17. Homeless people often suffer from complex and chronic comorbidities, have high rates of morbidity and die at much younger ages than the general population. Due to a complex combination of physical, psychosocia...

    Authors: Hanna T. Klop, Anke J.E. de Veer, Sophie I. van Dongen, Anneke L. Francke, Judith A.C. Rietjens and Bregje D. Onwuteaka-Philipsen

    Citation: BMC Palliative Care 2018 17:67

    Content type: Research article

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  18. In case of untreatable suffering at the end of life, palliative sedation may be chosen to assure comfort by reducing the patient’s level of consciousness. An important question here is whether such sedated pat...

    Authors: Stefaan Six, Steven Laureys, Jan Poelaert, Johan Bilsen, Peter Theuns and Reginald Deschepper

    Citation: BMC Palliative Care 2018 17:62

    Content type: Study protocol

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  19. Symptom management is an essential aspect of palliative and end-of-life care, but evidence suggests that patients’ symptoms may not always be relieved, causing significant harm to patients and magnifying their...

    Authors: Jessica Baillie, Despina Anagnostou, Stephanie Sivell, Jordan Van Godwin, Anthony Byrne and Annmarie Nelson

    Citation: BMC Palliative Care 2018 17:60

    Content type: Research article

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  20. Chronic kidney disease (CKD) is a growing global problem affecting around 10% of many countries’ populations. Providing appropriate palliative care services (PCS) to those with advanced kidney disease is becom...

    Authors: Shirley Chambers, Helen Healy, Wendy E. Hoy, Adrian Kark, Sharad Ratanjee, Geoffrey Mitchell, Carol Douglas, Patsy Yates and Ann Bonner

    Citation: BMC Palliative Care 2018 17:57

    Content type: Research article

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  21. People with schizophrenia are at risk of receiving poorer end of life care than other patients. They are often undertreated, avoid treatment and are about half as likely to access palliative care. There are li...

    Authors: Beverley McNamara, Anne Same, Lorna Rosenwax and Brian Kelly

    Citation: BMC Palliative Care 2018 17:53

    Content type: Research article

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  22. Several studies have highlighted the need for improvement in palliative care delivered to older people long-term care facilities. However, the available evidence on how to improve palliative care in these sett...

    Authors: Tinne Smets, Bregje B. D. Onwuteaka-Philipsen, Rose Miranda, Lara Pivodic, Marc Tanghe, Hein van Hout, Roeline H. R. W. Pasman, Mariska Oosterveld-Vlug, Ruth Piers, Nele Van Den Noortgate, Anne B. Wichmann, Yvonne Engels, Myrra Vernooij-Dassen, Jo Hockley, Katherine Froggatt, Sheila Payne…

    Citation: BMC Palliative Care 2018 17:47

    Content type: Study protocol

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  23. Heart failure is an emerging challenge for Sub Saharan Africa. However, research on patients’ needs and experiences of care is scarce with little evidence available to support and develop services. We aimed to...

    Authors: Kellen N. Kimani, Scott A. Murray and Liz Grant

    Citation: BMC Palliative Care 2018 17:28

    Content type: Research article

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  24. The well lauded community-based palliative care programme of Kerala, India provides medical and social support, through home-based care, for patients with terminal illness and diseases requiring long-term supp...

    Authors: Rekha Rachel Philip, Sairu Philip, Jaya Prasad Tripathy, Abdulla Manima and Emilie Venables

    Citation: BMC Palliative Care 2018 17:26

    Content type: Research article

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  25. People dying with dementia have significant healthcare needs, and palliative care, with its focus on comfort and quality of life, should be made available to these patients. The aim of this study was to explor...

    Authors: May Helen Midtbust, Rigmor Einang Alnes, Eva Gjengedal and Else Lykkeslet

    Citation: BMC Palliative Care 2018 17:25

    Content type: Research article

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  26. In 2009, the Taiwanese national health insurance system substantially expanded hospice coverage for terminal cancer patients to include patients with end-stage brain, dementia, heart, lung, liver, and kidney d...

    Authors: Tzu-Chien Shih, Hsiao-Ting Chang, Ming-Hwai Lin, Chun-Ku Chen, Tzeng-Ji Chen and Shinn-Jang Hwang

    Citation: BMC Palliative Care 2018 17:18

    Content type: Research article

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  27. In 2007, the European Association of Palliative Care (EAPC) provided a comprehensive set of recommendations and standards for the provision of adequate pediatric palliative care. A number of studies have shown...

    Authors: Lisa-R. Ulrich, Dania Gruber, Michaela Hach, Stefan Boesner, Joerg Haasenritter, Katrin Kuss, Hannah Seipp, Ferdinand M. Gerlach and Antje Erler

    Citation: BMC Palliative Care 2018 17:14

    Content type: Study protocol

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  28. Around the world, different models of paediatric palliative care have responded to the unique needs of children with life shortening conditions. However, research confirming their utility and impact is still l...

    Authors: P. H. Chong, J. A. De Castro Molina, K. Teo and W. S. Tan

    Citation: BMC Palliative Care 2018 17:11

    Content type: Research article

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  29. Amyotrophic lateral sclerosis (ALS) is an incurable neurodegenerative disease that dramatically affects patients’ quality of life (QoL) and dignity of life (DoL). We aimed to study the impact of ALS on QoL and...

    Authors: Yolanda Martínez-Campo, Christian Homedes, Ana Lazaro, Raquel Alarcón, David Campo, Mariona Riera, Raúl Domínguez, Mónica Povedano and Carlos Casasnovas

    Citation: BMC Palliative Care 2017 16:75

    Content type: Research article

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  31. Community-based palliative care is associated with reduced hospital costs for people dying from cancer. It is unknown if reduced hospital costs are universal across multiple life-limiting conditions amenable t...

    Authors: Katrina Spilsbury and Lorna Rosenwax

    Citation: BMC Palliative Care 2017 16:68

    Content type: Research article

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  32. There is a notable inequity in access to palliative care (PC) services between cancer and Chronic Heart Failure (CHF)/Chronic Obstructive Pulmonary Disease (COPD) patients which also translates into discrepanc...

    Authors: Naouma Siouta, Karen Van Beek, Sheila Payne, Lukas Radbruch, Nancy Preston, Jeroen Hasselaar, Carlos Centeno and Johan Menten

    Citation: BMC Palliative Care 2017 16:62

    Content type: Research article

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  33. Parkinson’s disease (PD) is a chronic, progressive neurological disorder with many intractable consequences for patients and their family caregivers. Little is known about the possibilities that palliative car...

    Authors: Herma Lennaerts, Marieke Groot, Maxime Steppe, Jenny T. van der Steen, Marieke Van den Brand, Dorian van Amelsvoort, Kris Vissers, Marten Munneke and Bastiaan R. Bloem

    Citation: BMC Palliative Care 2017 16:61

    Content type: Study protocol

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  34. Ninety-eight percent of children needing palliative care live in low- and middle-income countries (LMICs), and almost half of them live in Africa. In contrast to the abundance of data on populations in high in...

    Authors: Hatoko Sasaki, Marie-Charlotte Bouesseau, Joan Marston and Rintaro Mori

    Citation: BMC Palliative Care 2017 16:60

    Content type: Research article

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  35. Although the Japanese government has expanded its ‘Elderly Housing with Care Services’ (EHCS) to ensure sufficient places of death for the elderly, resident deaths have occurred in less than 30% of the facilit...

    Authors: Kentaro Sugimoto, Yasuko Ogata, Masayo Kashiwagi, Haruka Ueno, Yoshie Yumoto and Yuki Yonekura

    Citation: BMC Palliative Care 2017 16:58

    Content type: Research article

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  36. Patients with severe stroke often do not have the capacity to participate in discussions on treatment restrictions because of a reduced level of consciousness, aphasia, or another cognitive disorder. We assess...

    Authors: Floor A. S. de Kort, Marjolein Geurts, Paul L. M. de Kort, Julia H. van Tuijl, Ghislaine J. M. W. van Thiel, L. Jaap Kappelle and H. Bart van der Worp

    Citation: BMC Palliative Care 2017 16:52

    Content type: Research article

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  37. Animal-assisted therapy (AAT) is a therapeutic concept, which has only recently been explored in more detail within the palliative care setting. A programme of AAT was begun in June 2014 at the Interdisciplina...

    Authors: Andrea Schmitz, Melanie Beermann, Colin R. MacKenzie, Katharina Fetz and Christian Schulz-Quach

    Citation: BMC Palliative Care 2017 16:50

    Content type: Research article

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  38. To expand our clinical and scientific knowledge about holistic outcomes within palliative care, there is a need for agreed-upon patient-reported outcome measures. These patient-reported outcome measures then r...

    Authors: Ingela Beck, Ulrika Olsson Möller, Marlene Malmström, Anna Klarare, Henrik Samuelsson, Carina Lundh Hagelin, Birgit Rasmussen and Carl Johan Fürst

    Citation: BMC Palliative Care 2017 16:49

    Content type: Research article

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  39. The World Health Organization (WHO) has called for global approaches to palliative care development. Yet it is questionable whether one-size-fits-all solutions can accommodate international disparities in pall...

    Authors: Lisa Williams, Merryn Gott, Tess Moeke-Maxwell, Stella Black, Shuchi Kothari, Sarina Pearson, Tessa Morgan, Matua Rawiri Wharemate and Whaea Whio Hansen

    Citation: BMC Palliative Care 2017 16:46

    Content type: Research article

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  40. Early palliative care (EPC) is recommended but rarely integrated with advanced heart failure (HF) care. We engaged patients and family caregivers to study the feasibility and site differences in a two-site EPC...

    Authors: Marie Bakitas, J. Nicholas Dionne-Odom, Salpy V. Pamboukian, Jose Tallaj, Elizabeth Kvale, Keith M. Swetz, Jennifer Frost, Rachel Wells, Andres Azuero, Konda Keebler, Imatullah Akyar, Deborah Ejem, Karen Steinhauser, Tasha Smith, Raegan Durant and Alan T. Kono

    Citation: BMC Palliative Care 2017 16:45

    Content type: Research article

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  41. Dementia is the most common neurological disorder worldwide and is a life-limiting condition, but very often is not recognised as such. People with dementia, and their carers, have been shown to have palliativ...

    Authors: Siobhán Fox, Carol FitzGerald, Karen Harrison Dening, Kate Irving, W. George Kernohan, Adrian Treloar, David Oliver, Suzanne Guerin and Suzanne Timmons

    Citation: BMC Palliative Care 2017 17:9

    Content type: Debate

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    The Erratum to this article has been published in BMC Palliative Care 2017 16:51

  42. Individuals with HIV have a high prevalence of physical and psychological symptoms throughout their disease course. Despite the clinical and public health implications of unresolved pain and symptoms, little i...

    Authors: Katie Wakeham, Richard Harding, Jonathan Levin, Rosalind Parkes-Ratanshi, Anatoli Kamali and David G Lalloo

    Citation: BMC Palliative Care 2017 17:8

    Content type: Research article

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    The Erratum to this article has been published in BMC Palliative Care 2017 16:51

  43. Previous research and key guidelines have suggested potential models of palliative care for patients with COPD and interstitial lung disease. However, these recommendations are often not effectively implemente...

    Authors: Clare Mc Veigh, Joanne Reid, Philip Larkin, Sam Porter and Peter Hudson

    Citation: BMC Palliative Care 2017 17:6

    Content type: Research article

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    The Erratum to this article has been published in BMC Palliative Care 2017 16:51

  44. Dyspnoea is a disabling symptom in patients admitted with heart failure (HF) and respiratory diseases (RD). The main aim of this study is to evaluate its intensity at admission and discharge and the relation w...

    Authors: Lourdes Vicent, Juan Manuel Nuñez Olarte, Luis Puente-Maestu, Alicia Oliva, Juan Carlos López, Andrea Postigo, Irene Martín, Raquel Luna, Francisco Fernández-Avilés and Manuel Martínez-Sellés

    Citation: BMC Palliative Care 2017 16:35

    Content type: Research article

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  45. Neonatology has made significant advances in the last 30 years. Despite the advances in treatments, not all neonates survive and a palliative care model is required within the neonatal context. Previous resear...

    Authors: Meegan Kilcullen and Susan Ireland

    Citation: BMC Palliative Care 2017 16:32

    Content type: Research article

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  46. It is estimated that 19 to 83% of people with dementia suffer from pain that is inadequately treated in the last months of life. A large number of healthcare workers who care for these people in nursing homes ...

    Authors: Andrea Koppitz, Georg Bosshard, Geneviève Blanc, Hannele Hediger, Sheila Payne and Thomas Volken

    Citation: BMC Palliative Care 2017 16:27

    Content type: Study protocol

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  47. A continuous subcutaneous infusion (CSCI) delivered via syringe pump is a method of drug administration used to maintain symptom control when a patient is no longer able to tolerate oral medication. Several cl...

    Authors: Andrew Dickman, Matthew Bickerstaff, Richard Jackson, Jennifer Schneider, Stephen Mason and John Ellershaw

    Citation: BMC Palliative Care 2017 16:22

    Content type: Research article

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  48. It has been found that including volunteers in palliative care is a positive contribution to seriously ill patients. It is, however, recommended that the volunteers are trained and supported. The aim of this s...

    Authors: Ulrika Söderhamn, Sylvi Flateland, Marthe Fensli and Ragnhild Skaar

    Citation: BMC Palliative Care 2017 16:18

    Content type: Research article

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  49. An advance directive (AD) is a written or verbal document that legally stipulates a person’s health care preference while they are competent to make decisions for themselves and is used to guide decisions on l...

    Authors: Stephen Omondi, John Weru, Asim Jamal Shaikh and Gerald Yonga

    Citation: BMC Palliative Care 2017 16:9

    Content type: Research article

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  50. Pain assessment and management are key aspects in the care of people with dementia approaching the end of life but become challenging when patient self-report is impaired or unavailable. Best practice recommen...

    Authors: Bannin De Witt Jansen, Kevin Brazil, Peter Passmore, Hilary Buchanan, Doreen Maxwell, Sonja J. McIlfatrick, Sharon M. Morgan, Max Watson and Carole Parsons

    Citation: BMC Palliative Care 2017 16:6

    Content type: Research article

    Published on:

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