Psychosocial

Section edited by Nancy Preston

This section considers submissions that focus on psychosocial, spiritual, existential, philosophical, and psychological well being of patients and their family/carers in a palliative care setting.

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  1. Research article

    Relatives’ perceived quality of palliative care: comparisons between care settings in which patients die

    Dying in the preferred setting is an indicator of good palliative care quality. Most people prefer to die at home. But does the quality of care as perceived by their relatives vary depending on the care settin...

    Dolf de Boer, Jolien M. Hofstede, Anke J. E. de Veer, Natasja J. H. Raijmakers and Anneke L. Francke

    BMC Palliative Care 2017 16:41

    Published on: 16 August 2017

  2. Research article

    Mindfulness and compassion-oriented practices at work reduce distress and enhance self-care of palliative care teams: a mixed-method evaluation of an “on the job“ program

    Maintaining a sense of self-care while providing patient centered care, can be difficult for practitioners in palliative medicine. We aimed to pilot an “on the job” mindfulness and compassion-oriented meditati...

    Claudia L. Orellana-Rios, Lukas Radbruch, Martina Kern, Yesche U. Regel, Andreas Anton, Shane Sinclair and Stefan Schmidt

    BMC Palliative Care 2017 17:3

    Published on: 6 July 2017

  3. Research article

    Volunteer navigation partnerships: Piloting a compassionate community approach to early palliative care

    A compassionate community approach to palliative care provides important rationale for building community-based hospice volunteer capacity. In this project, we piloted one such capacity-building model in which...

    Barbara Pesut, Wendy Duggleby, Grace Warner, Konrad Fassbender, Elisabeth Antifeau, Brenda Hooper, Madeleine Greig and Kelli Sullivan

    BMC Palliative Care 2017 17:2

    Published on: 3 July 2017

  4. Research article

    Nurse-led navigation to provide early palliative care in rural areas: a pilot study

    Few services are available to support rural older adults living at home with advancing chronic illness. The objective of this project was to pilot a nurse-led navigation service to provide early palliative sup...

    Barbara Pesut, Brenda Hooper, Marnie Jacobsen, Barbara Nielsen, Miranda Falk and Brian P. O ‘Connor

    BMC Palliative Care 2017 16:37

    Published on: 5 June 2017

  5. Research article

    Quality of life, psychological burden, needs, and satisfaction during specialized inpatient palliative care in family caregivers of advanced cancer patients

    This pilot study aimed to investigate quality of life, psychological burden, unmet needs, and care satisfaction in family caregivers of advanced cancer patients (FCs) during specialized inpatient palliative ca...

    Anneke Ullrich, Lilian Ascherfeld, Gabriella Marx, Carsten Bokemeyer, Corinna Bergelt and Karin Oechsle

    BMC Palliative Care 2017 16:31

    Published on: 10 May 2017

  6. Research article

    The impact of the inpatient practice of continuous deep sedation until death on healthcare professionals’ emotional well-being: a systematic review

    The practice of continuous deep sedation is a challenging clinical intervention with demanding clinical and ethical decision-making. Though current research indicates that healthcare professionals’ involvement...

    Sarah Ziegler, Hannes Merker, Margareta Schmid and Milo A. Puhan

    BMC Palliative Care 2017 16:30

    Published on: 8 May 2017

  7. Research article

    Family members of deceased palliative care patients receiving bereavement anniversary cards: a survey on the recipient’s reactions and opinions

    Bereavement support is part of palliative care. Sending out bereavement anniversary cards is one intervention of follow-up support for the bereaved. This study evaluated the suitability of bereavement annivers...

    Swantje Goebel, Sandra Stephanie Mai, Christina Gerlach, Ulrike Windschmitt, Karl-Heinz Feldmann and Martin Weber

    BMC Palliative Care 2017 16:26

    Published on: 19 April 2017

  8. Research article

    A process evaluation of systematic risk and needs assessment for caregivers in specialised palliative care

    Caregiving is strenuous and it may be associated with adverse psychological outcomes. During the palliative care trajectory, there are unique opportunities for providing support and preventing poor bereavement...

    Kia Toft Thomsen, Mai-Britt Guldin, Mette Kjærgaard Nielsen, Chaitali Laura Ollars and Anders Bonde Jensen

    BMC Palliative Care 2017 16:23

    Published on: 8 April 2017

  9. Research article

    A prospective study on the characteristics and subjects of pediatric palliative care case management provided by a hospital based palliative care team

    Case management is a subject of interest within pediatric palliative care. Detailed descriptions of the content of this type of case management are lacking. We aim to describe the contents of care provided, ut...

    Charissa T. Jagt – van Kampen, Marijke C. Kars, Derk A. Colenbrander, Diederik K. Bosman, Martha A. Grootenhuis, Huib N. Caron and Antoinette Y. N. Schouten-van Meeteren

    BMC Palliative Care 2017 16:1

    Published on: 12 January 2017

  10. Research article

    “It still haunts me whether we did the right thing”: a qualitative analysis of free text survey data on the bereavement experiences and support needs of family caregivers

    Research suggests that there may be bereavement experiences and support needs which are specific to family caregivers providing end of life care (EoLC), although this remains an under-researched area. This pap...

    Emily Harrop, Fiona Morgan, Anthony Byrne and Annmarie Nelson

    BMC Palliative Care 2016 15:92

    Published on: 8 November 2016

  11. Research article

    The feasibility and acceptability of short-term, individual existential behavioural therapy for informal caregivers of patients recruited in a specialist palliative care unit

    Existential behavioural therapy (EBT) is a recently developed intervention to support informal caregivers of patients in a specialist palliative care unit and was initially established as a six-session group p...

    Helena S Stöckle, Sigrid Haarmann-Doetkotte, Claudia Bausewein and Martin J Fegg

    BMC Palliative Care 2016 15:88

    Published on: 24 October 2016

  12. Research article

    Caregiving in ALS – a mixed methods approach to the study of Burden

    Caregiver burden affects the physical, psychological and emotional well-being of the caregiver. The purpose of this analysis was to describe an informal caregiver cohort (n = 81), their subjective assessment of b...

    Miriam Galvin, Bernie Corr, Caoifa Madden, Iain Mays, Regina McQuillan, Virpi Timonen, Anthony Staines and Orla Hardiman

    BMC Palliative Care 2016 15:81

    Published on: 5 September 2016

  13. Research article

    Resilience and hope during advanced disease: a pilot study with metastatic colorectal cancer patients

    The balance between hope-hopelessness plays an important role in the way terminally ill patients report quality of life, and personal resilience may be related to hope at the end of life. The objective of this...

    Joao Paulo Consentino Solano, Amanda Gomes da Silva, Ivan Agurtov Soares, Hazem Adel Ashmawi and Joaquim Edson Vieira

    BMC Palliative Care 2016 15:70

    Published on: 2 August 2016

  14. Research article

    An ethnographic study of strategies to support discussions with family members on end-of-life care for people with advanced dementia in nursing homes

    Most people with advanced dementia die in nursing homes where families may have to make decisions as death approaches. Discussions about end-of-life care between families and nursing home staff are uncommon, d...

    Geena Saini, Elizabeth L. Sampson, Sarah Davis, Nuriye Kupeli, Jane Harrington, Gerard Leavey, Irwin Nazareth, Louise Jones and Kirsten J. Moore

    BMC Palliative Care 2016 15:55

    Published on: 7 July 2016

  15. Research article

    Factors influencing the uptake of neonatal bereavement support services – Findings from two tertiary neonatal centres in the UK

    Research on perinatal bereavement services is limited. The aim of the study was to compare the uptake of bereavement support services between two tertiary neonatal units (NNU), and to investigate influencing f...

    Jayanta Banerjee, Charanjit Kaur, Sridhar Ramaiah, Rahul Roy and Narendra Aladangady

    BMC Palliative Care 2016 15:54

    Published on: 29 June 2016

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