Skip to main content

Psychosocial

Section edited by Nancy Preston

This section considers submissions that focus on psychosocial, spiritual, existential, philosophical, and psychological well being of patients and their family/carers in a palliative care setting.

Page 1 of 2

  1. Despite increased annual mortality in long-term care (LTC) homes, research has shown that care of dying residents and their families is currently suboptimal in these settings. The purpose of this study was to ...

    Authors: Sharon Kaasalainen, Tamara Sussman, Genevieve Thompson, Lynn McCleary, Paulette V. Hunter, Lorraine Venturato, Abigail Wickson-Griffiths, Jenny Ploeg, Deborah Parker, Shane Sinclair, Vanina Dal Bello-Haas, Marie Earl and John J. You

    Citation: BMC Palliative Care 2020 19:107

    Content type: Research article

    Published on:

  2. Although cancer patients experience distressing symptoms and health-related changes in their quality of life, they may report positive emotional states. The lives of informal caregivers of cancer patients may ...

    Authors: Mayara Goulart de Camargos, Bianca Sakamoto Ribeiro Paiva, Marco Antônio de Oliveira, Paula de Souza Ferreira, Vinicius Tolentino Nardoto de Almeida, Sandra de Andrade Cadamuro, Carla Simone Leite de Almeida and Carlos Eduardo Paiva

    Citation: BMC Palliative Care 2020 19:106

    Content type: Research article

    Published on:

  3. Spiritual care is frequently cited as a key component of hospice care in Taiwanese healthcare and beyond. The aim of this research is to gauge physicians and nurses’ self-reported perspectives and clinical pra...

    Authors: Zoe Tao, Poshu Wu, Amber Luo, Tzu-Lin Ho, Ching-Yu Chen and Shao-Yi Cheng

    Citation: BMC Palliative Care 2020 19:96

    Content type: Research article

    Published on:

  4. Research on the patient experience of receiving palliative care across a number of settings is increasing, but the majority of these investigations are situated within the context of developed countries. There...

    Authors: Konstantina Vasileiou, Paula Smith and Ashraf Kagee

    Citation: BMC Palliative Care 2020 19:95

    Content type: Research article

    Published on:

  5. Palliative care should be holistic, but spiritual issues are often overlooked. General practitioners and nurses working together in PaTz-groups (palliative home care groups) consider spiritual issues in pallia...

    Authors: Hanna T. Klop, Ian Koper, Bart P. M. Schweitzer, Esli Jongen and Bregje D. Onwuteaka-Philipsen

    Citation: BMC Palliative Care 2020 19:92

    Content type: Research article

    Published on:

  6. Nav-CARE is a volunteer-led intervention designed to build upon strategic directions in palliative care: a palliative approach to care, a public health/compassionate community approach to care, and enhancing t...

    Authors: Barbara Pesut, Wendy Duggleby, Grace Warner, Emily Kervin, Paxton Bruce, Elisabeth Antifeau and Brenda Hooper

    Citation: BMC Palliative Care 2020 19:72

    Content type: Research article

    Published on:

  7. Caring for patients with advanced or terminal diseases can confront family caregivers (FC) with ethical challenges. The present study aims at tracing paths connected to ethical challenges among FC of advanced ...

    Authors: Anneke Ullrich, Marianna Theochari, Corinna Bergelt, Gabriella Marx, Katharina Woellert, Carsten Bokemeyer and Karin Oechsle

    Citation: BMC Palliative Care 2020 19:70

    Content type: Research article

    Published on:

  8. patients with palliative needs often experience high symptom burden which causes suffering to themselves and their families. Depression and psychological distress should not be considered a “normal event” in a...

    Authors: Bárbara Antunes, Pedro Pereira Rodrigues, Irene J. Higginson and Pedro Lopes Ferreira

    Citation: BMC Palliative Care 2020 19:69

    Content type: Research article

    Published on:

  9. Voluntary work plays a significant role in hospice care, but international research has mainly been conducted on the mental health and fear of death of paid hospice staff. The aim of the present study was to c...

    Authors: Ágnes Zana, Adrienne Kegye, Edit Czeglédi and Katalin Hegedűs

    Citation: BMC Palliative Care 2020 19:58

    Content type: Research article

    Published on:

  10. Family caregivers of patients at the end of life often experience care-related burden. To prevent caregiver burden and to enhance the capacity to provide care it is important to have insight in their support n...

    Authors: Femmy M. Bijnsdorp, H. Roeline W. Pasman, Cécile R. L. Boot, Susanne M. van Hooft, AnneLoes van Staa and Anneke L. Francke

    Citation: BMC Palliative Care 2020 19:51

    Content type: Research article

    Published on:

  11. Children show long-term psychological distress if family communication and illness-related information are poor during and after a parent’s illness and death. Few psychosocial interventions for families with m...

    Authors: Rakel Eklund, Anette Alvariza, Ulrika Kreicbergs, Li Jalmsell and Malin Lövgren

    Citation: BMC Palliative Care 2020 19:50

    Content type: Research article

    Published on:

  12. Although desire to die of varying intensity and permanence is frequent in patients receiving palliative care, uncertainty exists concerning appropriate therapeutic responses to it. To support health profession...

    Authors: Kerstin Kremeike, Gerrit Frerich, Vanessa Romotzky, Kathleen Boström, Thomas Dojan, Maren Galushko, Kija Shah-Hosseini, Saskia Jünger, Gary Rodin, Holger Pfaff, Klaus Maria Perrar and Raymond Voltz

    Citation: BMC Palliative Care 2020 19:49

    Content type: Research article

    Published on:

  13. In 2016, over 6.6 million children died globally, and 245 children died in Singapore. Chronic illnesses are prevalent causes of child mortality around the world. Despite growing research that examines the live...

    Authors: Oindrila Dutta, Geraldine Tan-Ho, Ping Ying Choo, Xinyi Casuarine Low, Poh Heng Chong, Carolyn Ng, Sashikumar Ganapathy and Andy Hau Yan Ho

    Citation: BMC Palliative Care 2020 19:46

    Content type: Research article

    Published on:

  14. Bereavement support is a core part of palliative care. However, the evidence base is limited by a lack of consistency in the outcomes used to evaluate services and models of support, which makes it difficult t...

    Authors: Emily Harrop, Hannah Scott, Stephanie Sivell, Kathy Seddon, Jim Fitzgibbon, Fiona Morgan, Sara Pickett, Anthony Byrne, Annmarie Nelson and Mirella Longo

    Citation: BMC Palliative Care 2020 19:29

    Content type: Research article

    Published on:

  15. Hospice workers are required to regularly use emotional regulation strategies in an attempt to encourage and sustain terminally ill patients and families. Daily emotional regulation in reaction to constantly w...

    Authors: Igor Portoghese, Maura Galletta, Philip Larkin, Salvatore Sardo, Marcello Campagna, Gabriele Finco and Ernesto D’Aloja

    Citation: BMC Palliative Care 2020 19:23

    Content type: Research article

    Published on:

  16. This study prospectively evaluated distress, depressive and anxiety symptoms as well as associated factors in family caregivers (FC) of advanced cancer patients at initiation of specialist inpatient palliative...

    Authors: Karin Oechsle, Anneke Ullrich, Gabriella Marx, Gesine Benze, Julia Heine, Lisa-Marie Dickel, Youyou Zhang, Feline Wowretzko, Kim Nikola Wendt, Friedemann Nauck, Carsten Bokemeyer and Corinna Bergelt

    Citation: BMC Palliative Care 2019 18:102

    Content type: Research article

    Published on:

  17. Spiritual care is an important aspect of palliative care. In the Netherlands, general practitioners and district nurses play a leading role in palliative care in the primary care setting. When they are unable ...

    Authors: Ian Koper, H. Roeline W. Pasman, Bart P. M. Schweitzer, Annemieke Kuin and Bregje D. Onwuteaka-Philipsen

    Citation: BMC Palliative Care 2019 18:98

    Content type: Research article

    Published on:

  18. Patients with incurable cancer have to deal with a wide range of symptoms due to their disease and treatment, influencing their quality of life. Nowadays, patients are expected to adopt an active role in manag...

    Authors: Anouk S. Schuit, Karen Holtmaat, Nienke Hooghiemstra, Femke Jansen, Birgit I. Lissenberg-Witte, Veerle M. H. Coupé, Myra E. van Linde, Annemarie Becker-Commissaris, Jaap C. Reijneveld, Josée M. Zijlstra, Dirkje W. Sommeijer, Simone E. J. Eerenstein and Irma M. Verdonck-de Leeuw

    Citation: BMC Palliative Care 2019 18:85

    Content type: Study protocol

    Published on:

  19. The distress of patients suffering from a terminal illness can lead to a state of despair and requests for euthanasia and assisted suicide. It is a major challenge for palliative care workers. The Distress The...

    Authors: A. Van Lander, A. Tarot, C. Savanovitch, B. Pereira, B. Vennat and V. Guastella

    Citation: BMC Palliative Care 2019 18:81

    Content type: Research article

    Published on:

  20. Expressive writing involves writing about stressful or traumatic experiences. Despite trials in people with advanced disease, no systematic review to date has critiqued the evidence on expressive writing in th...

    Authors: N. Kupeli, G. Chatzitheodorou, N. A. Troop, D. McInnerney, P. Stone and B. Candy

    Citation: BMC Palliative Care 2019 18:65

    Content type: Research article

    Published on:

  21. End-of-life (EOL) conversations in hospital should serve to give patients the opportunity to consider future treatment options and help them clarify their values and wishes before it becomes relevant to make d...

    Authors: Heidi Bergenholtz, Helle Ussing Timm and Malene Missel

    Citation: BMC Palliative Care 2019 18:62

    Content type: Research article

    Published on:

  22. Gender disparities of specific symptoms and problems have frequently been observed in palliative care patients, but research rarely focused on the range of problems and needs affected by gender.

    Authors: Anneke Ullrich, Kristina Grube, Cornelia Hlawatsch, Carsten Bokemeyer and Karin Oechsle

    Citation: BMC Palliative Care 2019 18:59

    Content type: Research article

    Published on:

  23. Newer models of palliative and supportive cancer care view the person as an active agent in managing physical and psychosocial challenges. Therefore, personal efficacy is an integral part of this model. Due to...

    Authors: Samantha Serpentini, Paola Del Bianco, Andrea Chirico, Thomas V. Merluzzi, Rosalba Martino, Fabio Lucidi, Gian Luca De Salvo, Leonardo Trentin and Eleonora Capovilla

    Citation: BMC Palliative Care 2019 18:34

    Content type: Research article

    Published on:

  24. Although patients in palliative care commonly report high emotional and spiritual needs, effective psychosocial treatments based on high quality studies are rare. First research provides evidence for benefits ...

    Authors: Marco Warth, Friederike Koehler, Martin Weber, Hubert J. Bardenheuer, Beate Ditzen and Jens Kessler

    Citation: BMC Palliative Care 2019 18:14

    Content type: Study protocol

    Published on:

  25. More patients are dying in non-palliative care settings than in palliative care settings. How health care providers care for adult patients at the end-of-life stage in non-palliative care settings has not been...

    Authors: Xiao Bin Lai, Frances Kam Yuet Wong and Shirley Siu Yin Ching

    Citation: BMC Palliative Care 2018 17:116

    Content type: Research article

    Published on:

  26. As the do not resuscitate” (DNR) discussion involves communication, this study explored (1) the effects of a title that included “allow natural death”, and of information contents and outcomes of the decision; a...

    Authors: Sheng-Yu Fan, Ying-Wei Wang and I-Mei Lin

    Citation: BMC Palliative Care 2018 17:114

    Content type: Research article

    Published on:

  27. Medical advances have led to new challenges in decision-making for parents of seriously ill children. Many parents say religion and spirituality (R&S) influence their decisions, but the mechanism and outcomes ...

    Authors: Alexandra K. Superdock, Raymond C. Barfield, Debra H. Brandon and Sharron L. Docherty

    Citation: BMC Palliative Care 2018 17:107

    Content type: Research article

    Published on:

  28. Laypersons including volunteers, community health navigators, or peer educators provide important support to individuals with serious illnesses in community or healthcare settings. The experiences of layperson...

    Authors: Elizabeth Somes, Joanna Dukes, Adreanne Brungardt, Sarah Jordan, Kristen DeSanto, Christine D. Jones, Urvi Jhaveri Sanghvi, Khadijah Breathett, Jacqueline Jones and Hillary D. Lum

    Citation: BMC Palliative Care 2018 17:98

    Content type: Research article

    Published on:

  29. Dignity Therapy (DT) is a short-term intervention to reduce psychological suffering in end-of-life care. Its strength lies in evidenced-based development and investigation. The aim of the present study is to i...

    Authors: Sandra Stephanie Mai, Swantje Goebel, Elisabeth Jentschke, Birgitt van Oorschot, Karl-Heinz Renner and Martin Weber

    Citation: BMC Palliative Care 2018 17:73

    Content type: Research article

    Published on:

  30. A considerable number of terminally-ill adult children are outlived by at least one parent and receive palliative care prior to their death. At the same time, adult children continue to be confronted with thei...

    Authors: Stephanie Stiel, Eva-Maria Stelzer, Nils Schneider and Franziska A. Herbst

    Citation: BMC Palliative Care 2018 17:68

    Content type: Study protocol

    Published on:

  31. Self-care practice within the palliative care workforce is often discussed, yet seemingly under-researched. While palliative care professionals are required to implement and maintain effective self-care strate...

    Authors: Jason Mills, Timothy Wand and Jennifer A. Fraser

    Citation: BMC Palliative Care 2018 17:63

    Content type: Research article

    Published on:

  32. In palliative care contexts, support programs for families with a severely ill parent and minor children are few, and even fewer have been evaluated scientifically. The aims of this study are to examine feasib...

    Authors: Rakel Eklund, Ulrika Kreicbergs, Anette Alvariza and Malin Lövgren

    Citation: BMC Palliative Care 2018 17:35

    Content type: Study protocol

    Published on:

  33. The use of music as therapy in multidisciplinary end-of-life care dates back to the 1970s and nowadays music therapy (MT) is one of the most frequently used complementary therapy in in-patient palliative care ...

    Authors: W. Schmid, J. H. Rosland, S. von Hofacker, I. Hunskår and F. Bruvik

    Citation: BMC Palliative Care 2018 17:32

    Content type: Research article

    Published on:

  34. Cervical cancer is a very common disease among women in Ghana and in the world as a whole. However, there is a dearth of information on the mechanisms cervical cancer patients adopt to cope with the condition ...

    Authors: Charity Binka, Samuel Harrenson Nyarko, Kofi Awusabo-Asare and David Teye Doku

    Citation: BMC Palliative Care 2018 17:24

    Content type: Research article

    Published on:

  35. International guidance for advance care planning (ACP) supports the integration of spiritual and religious aspects of care within the planning process. Religious leaders’ perspectives could improve how ACP pro...

    Authors: Amanda Pereira-Salgado, Patrick Mader, Clare O’Callaghan, Leanne Boyd and Margaret Staples

    Citation: BMC Palliative Care 2017 16:79

    Content type: Research article

    Published on:

  36. Understanding end of life preferences amongst the oldest old is crucial to informing appropriate palliative and end of life care internationally. However, little has been reported in the academic literature ab...

    Authors: Merryn Gott, Rosemary Frey, Janine Wiles, Anna Rolleston, Ruth Teh, Tess Moeke-Maxwell and Ngaire Kerse

    Citation: BMC Palliative Care 2017 16:76

    Content type: Research article

    Published on:

  37. When patients are facing the ends of their lives, spiritual concerns often become more important. It is argued that effective, integrated palliative care should include addressing patients’ spiritual wellbeing...

    Authors: Renske Kruizinga, Michael Scherer-Rath, Johannes B. A. M. Schilderman, Mariëtte Weterman, Teresa Young and Hanneke W. M. van Laarhoven

    Citation: BMC Palliative Care 2017 16:67

    Content type: Research article

    Published on:

  38. The aims of this study were to gain a better understanding of how bereaved family members perceive the quality of EOL care by comparing their satisfaction with quality of end-of-life care across four different...

    Authors: Kelli Stajduhar, Richard Sawatzky, S. Robin Cohen, Daren K. Heyland, Diane Allan, Darcee Bidgood, Leah Norgrove and Anne M. Gadermann

    Citation: BMC Palliative Care 2017 16:59

    Content type: Research article

    Published on:

  39. Family caregiving in the context of advanced disease in particular, can be physically and emotionally taxing. Caregivers can subsequently face bereavement exhausted with few supports, limited resources and a s...

    Authors: Lorraine Holtslander, Sharon Baxter, Kelly Mills, Sarah Bocking, Tina Dadgostari, Wendy Duggleby, Vicky Duncan, Peter Hudson, Agatha Ogunkorode and Shelley Peacock

    Citation: BMC Palliative Care 2017 16:48

    Content type: Research article

    Published on:

  40. Family members are involved in the care of palliative patients at home and therefore, should be viewed as important sources of information to help clinicians better understand the quality palliative care servi...

    Authors: María Aparicio, Carlos Centeno, José Miguel Carrasco, Antonio Barbosa and María Arantzamendi

    Citation: BMC Palliative Care 2017 16:47

    Content type: Research article

    Published on:

  41. Dying in the preferred setting is an indicator of good palliative care quality. Most people prefer to die at home. But does the quality of care as perceived by their relatives vary depending on the care settin...

    Authors: Dolf de Boer, Jolien M. Hofstede, Anke J. E. de Veer, Natasja J. H. Raijmakers and Anneke L. Francke

    Citation: BMC Palliative Care 2017 16:41

    Content type: Research article

    Published on:

  42. The death of a parent is a highly stressful life event for bereaved children. Several studies have shown an increased risk of mental ill-health and psychosocial problems among affected children. The aims of th...

    Authors: Ann-Sofie Bergman, Ulf Axberg and Elizabeth Hanson

    Citation: BMC Palliative Care 2017 16:39

    Content type: Research article

    Published on:

  43. Maintaining a sense of self-care while providing patient centered care, can be difficult for practitioners in palliative medicine. We aimed to pilot an “on the job” mindfulness and compassion-oriented meditati...

    Authors: Claudia L. Orellana-Rios, Lukas Radbruch, Martina Kern, Yesche U. Regel, Andreas Anton, Shane Sinclair and Stefan Schmidt

    Citation: BMC Palliative Care 2017 17:3

    Content type: Research article

    Published on:

    The Erratum to this article has been published in BMC Palliative Care 2017 16:51

  44. A compassionate community approach to palliative care provides important rationale for building community-based hospice volunteer capacity. In this project, we piloted one such capacity-building model in which...

    Authors: Barbara Pesut, Wendy Duggleby, Grace Warner, Konrad Fassbender, Elisabeth Antifeau, Brenda Hooper, Madeleine Greig and Kelli Sullivan

    Citation: BMC Palliative Care 2017 17:2

    Content type: Research article

    Published on:

    The Erratum to this article has been published in BMC Palliative Care 2017 16:51

  45. Few services are available to support rural older adults living at home with advancing chronic illness. The objective of this project was to pilot a nurse-led navigation service to provide early palliative sup...

    Authors: Barbara Pesut, Brenda Hooper, Marnie Jacobsen, Barbara Nielsen, Miranda Falk and Brian P. O ‘Connor

    Citation: BMC Palliative Care 2017 16:37

    Content type: Research article

    Published on:

  46. This pilot study aimed to investigate quality of life, psychological burden, unmet needs, and care satisfaction in family caregivers of advanced cancer patients (FCs) during specialized inpatient palliative ca...

    Authors: Anneke Ullrich, Lilian Ascherfeld, Gabriella Marx, Carsten Bokemeyer, Corinna Bergelt and Karin Oechsle

    Citation: BMC Palliative Care 2017 16:31

    Content type: Research article

    Published on:

  47. The practice of continuous deep sedation is a challenging clinical intervention with demanding clinical and ethical decision-making. Though current research indicates that healthcare professionals’ involvement...

    Authors: Sarah Ziegler, Hannes Merker, Margareta Schmid and Milo A. Puhan

    Citation: BMC Palliative Care 2017 16:30

    Content type: Research article

    Published on:

2019 Journal Metrics

  • Citation Impact
    2.015 - 2-year Impact Factor
    2.65 - 5-year Impact Factor
    1.407 - Source Normalized Impact per Paper (SNIP)
    1.056 - SCImago Journal Rank (SJR)
     

    Usage 
    356,530 Downloads
     

    Social Media Impact
    1831 Mentions