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  1. Efforts to tackle socioeconomic inequities in access to palliative and end-of-life care require comprehensive understanding about the extent of and reasons for inequities. Most research on this topic examines ...

    Authors: Maddy French, Thomas Keegan, Eleftherios Anestis and Nancy Preston
    Citation: BMC Palliative Care 2021 20:179
    Content type: Research Published on:

    The Correction to this article has been published in BMC Palliative Care 2021 20:188

  2. The availability of palliative care facilities for children vary considerably among the European member states. In Romania, a country where health expenditure is among the lowest in Europe, palliative care has...

    Authors: Nadia Pacurari, Eva De Clercq, Monica Dragomir, Anca Colita, Tenzin Wangmo and Bernice S. Elger
    Citation: BMC Palliative Care 2021 20:178
    Content type: Research Published on:

  3. Due to developments in health and social care, people with profound intellectual and multiple disability (PIMD) are living longer than ever before, meaning they are increasingly experiencing life-threatening h...

    Authors: Hille Voss, April Loxton, Julie Anderson and Joanne Watson
    Citation: BMC Palliative Care 2021 20:177
    Content type: Research Published on:

  4. Even when palliative care is an integrated part of the healthcare system, the quality is still substandard for many patients and often initiated too late. There is a lack of structured guidelines for identifyi...

    Authors: Dröfn Birgisdóttir, Anette Duarte, Anna Dahlman, Bengt Sallerfors, Birgit H. Rasmussen and Carl Johan Fürst
    Citation: BMC Palliative Care 2021 20:176
    Content type: Research article Published on:

  5. Specialist palliative care teams (SPCTs) in hospitals improve quality of life and satisfaction with care for patients with advanced disease. However, referrals to SPCTs are often limited. To identify areas for...

    Authors: M.S. Boddaert, A. Stoppelenburg, J. Hasselaar, Y.M. van der Linden, K.C.P. Vissers, N.J.H. Raijmakers and L. Brom
    Citation: BMC Palliative Care 2021 20:175
    Content type: Research Published on:

  6. Intolerable suffering is a common eligibility requirement for persons requesting assisted death, and although suffering has received philosophic attention for millennia, only recently has it been the focus of ...

    Authors: Barbara Pesut, David Kenneth Wright, Sally Thorne, Margaret I. Hall, Gloria Puurveen, Janet Storch and Madison Huggins
    Citation: BMC Palliative Care 2021 20:174
    Content type: Research Published on:

  7. Oral health is crucial to the experience of well-being, and symptoms from the mouth are common at the end of life. Palliative care aims to identify and treat symptoms early to avoid unnecessary suffering and i...

    Authors: Anna Gustafsson, Johanna Skogsberg and Åsa Rejnö
    Citation: BMC Palliative Care 2021 20:173
    Content type: Research Published on:

  9. One way to improve the delivery of oncology palliative care in low and middle-income countries (LMICs) is to leverage mobile technology to support healthcare providers in implementing pain management guideline...

    Authors: Virginia LeBaron, Abish Adhikari, Rachel Bennett, Sandhya Chapagain Acharya, Manita Dhakal, Catherine E. Elmore, Kara Fitzgibbon, Rajesh Gongal, Regina Kattel, Ganesh Koirala, Martha Maurer, Daniel Munday, Bijay Neupane, Krishna Sagar Sharma, Ramila Shilpakar, Sudip Shrestha…
    Citation: BMC Palliative Care 2021 20:171
    Content type: Research Published on:

  10. People often prefer to stay at home until the end of life, but hospital admissions are quite common. In previous research bereaved relatives were found to be less positive about palliative care in hospital. Ho...

    Authors: Chantal Y. Joren, Anke J.E. de Veer, Kim de Groot and Anneke L. Francke
    Citation: BMC Palliative Care 2021 20:170
    Content type: Research Published on:

  12. Older people with multi-morbidities commonly experience an uncertain illness trajectory. Clinical uncertainty is challenging to manage, with risk of poor outcomes. Person-centred care is essential to align car...

    Authors: Clare Ellis-Smith, India Tunnard, Marsha Dawkins, Wei Gao, Irene J. Higginson and Catherine J. Evans
    Citation: BMC Palliative Care 2021 20:168
    Content type: Research Published on:

  13. Informal caregivers are the main source of care for the critically ill, especially after discharge or during the terminal stages at home. However, the concern for informal caregivers is often overshadowed by c...

    Authors: Wenhao Fu, Jiajia Li, Feng Fang, Dan Zhao, Wenting Hao and Shixue Li
    Citation: BMC Palliative Care 2021 20:167
    Content type: Research Published on:

  14. The Caregiver Inventory (CGI), a measure of self-efficacy for caregiving that takes into account aspects of caregiving that are neglected by current measures of caregiving, was translated into Italian and vali...

    Authors: S. Serpentini, B. Guandalini, G. Tosin, L. Ronconi, G. Cristaldi, R. Amatulli, G. Deledda, S. Riccardi, S. Sommacal, L. Iannopollo, V. Calvo and T. V. Merluzzi
    Citation: BMC Palliative Care 2021 20:166
    Content type: Research Published on:

  15. Most individuals who typically receive palliative care (PC) tend to have cancer and a relatively short prognosis (< 6 months). People with other life-limiting illnesses can also benefit from a palliative care ...

    Authors: Nicole Williams, Kirsten Hermans, Tara Stevens, John P. Hirdes, Anja Declercq, Joachim Cohen and Dawn M. Guthrie
    Citation: BMC Palliative Care 2021 20:165
    Content type: Research Published on:

  16. Meeting patients’ preferences for place of care at the end-of-life is an indicator of quality palliative care. Understanding the key elements required for terminal care within an integrated model may inform po...

    Authors: Ri Yin Tay, Rozenne W. K. Choo, Wah Ying Ong and Allyn Y. M. Hum
    Citation: BMC Palliative Care 2021 20:164
    Content type: Research Published on:

  17. Although family caregivers (FCs) play an important role in the care provided to incurable cancer patients in our region, little is known about the burden they experience.

    Authors: Samy A. Alsirafy, Radfan Nagy, Amneh D. Hassan, Radwa Fawzy, Ahmad A. M. Abdelhafeez, Marahim O. Husein, Mohammed A. Almashiakhi, Saad H. Alabdullateef, Saeed A. Alghamdi and Ashraf M. Elyamany
    Citation: BMC Palliative Care 2021 20:163
    Content type: Research Published on:

  18. Family caregivers are crucial in providing end-of-life care at home. Without their care, it would be difficult for many patients to die at home. In addition to providing care, family caregivers also need suppo...

    Authors: Yvonne N. Becqué, Judith A. C. Rietjens, Agnes van der Heide and Erica Witkamp
    Citation: BMC Palliative Care 2021 20:162
    Content type: Research Published on:

  19. Cancer patients’ end-of-life care may involve complex decision-making processes. Colombia has legislation regarding provision of and access to palliative care and is the only Latin American country with regula...

    Authors: Esther de Vries, Fabián Alexander Leal Arenas, Agnes van der Heide, Fritz E. Gempeler Rueda, Raul Murillo, Olga Morales, Eduardo Diaz-Amado, Nelcy Rodríguez, Beatriz Juliana Gonzalez, Danny Steven Castilblanco Delgado and Jose A. Calvache
    Citation: BMC Palliative Care 2021 20:161
    Content type: Research Published on:

  20. Patients with haematological cancer had considerable symptom burden, in which fatigue was the most prevalent. Almost 70% of haematological cancer patients reported fatigue.

    Authors: Diana-Leh-Ching Ng, Gin-Gin Gan, Nur Adila Anuar, Yu-Zhen Tung, Natalie-Zi Lai, Yi-Wen Tan, Siti Norazilah Mohd Said, Amalia Madihie, Chee-Shee Chai and Seng-Beng Tan
    Citation: BMC Palliative Care 2021 20:160
    Content type: Research Published on:

  21. Childhood bereavement is common, and is associated with elevated symptoms of grief with distress and impairment. However, few developmentally appropriate interventions to support grieving children are availabl...

    Authors: Ashley Ridley, Alexis Revet, Jean-Philippe Raynaud, Eric Bui and Agnès Suc
    Citation: BMC Palliative Care 2021 20:159
    Content type: Research Published on:

  22. Researchers are encountering increasing challenges in recruiting participants for palliative and healthcare research. This paper aims to understand challenges to and methods for engaging physicians and serious...

    Authors: Valeria Cardenas, Anna Rahman, Jenna Giulioni, Alexis Coulourides Kogan and Susan Enguidanos
    Citation: BMC Palliative Care 2021 20:158
    Content type: Research Published on:

  24. Despite increasing use of telemedicine in the field of palliative care, studies about the best circumstances and processes where it could replace face-to-face interaction are lacking. This study aimed to: (1) ...

    Authors: Clément Cormi, Marie Petit, Juline Auclair, Emmanuel Bagaragaza, Isabelle Colombet and Stéphane Sanchez
    Citation: BMC Palliative Care 2021 20:156
    Content type: Research Published on:

  25. Provision of palliative care to individuals with late-stage serious illnesses is critical to reduce suffering. Palliative care is slowly gaining momentum in Jamaica but requires a highly skilled workforce, inc...

    Authors: Rebecca L. Edwards, Patricia A. Patrician, Marie Bakitas and Adelais Markaki
    Citation: BMC Palliative Care 2021 20:155
    Content type: Research Published on:

  26. Up to 85% of people with motor neuron disease (MND) report pain, but whether pain has negative impact on quality of life is unclear. The aim was to study associations between pain, disease severity and individ...

    Authors: Ylva Åkerblom, Lena Zetterberg, Birgitta Jakobsson Larsson, Dag Nyholm, Ingela Nygren and Pernilla Åsenlöf
    Citation: BMC Palliative Care 2021 20:154
    Content type: Research Published on:

  27. In the last decade, access to national palliative care programs have improved, however a large proportion of patients continued to die in hospital, particularly within internal medicine wards.

    Authors: Filippo Binda, Marco Clari, Gabriella Nicolò, Simone Gambazza, Barbara Sappa, Paola Bosco and Dario Laquintana
    Citation: BMC Palliative Care 2021 20:153
    Content type: Research Published on:

  28. Among the few existing needs assessment tools for family carers, the 14-item Carer Support Needs Assessment Tool (CSNAT) is the only brief and holistic needs screening tool designed for everyday use in palliat...

    Authors: Hui-Lin Cheng, Doris Yin Ping Leung, Po Shan Ko, Ming Wai Chung, Wai Man Lam, Po Tin Lam, Andrew Leung Luk and Simon Ching Lam
    Citation: BMC Palliative Care 2021 20:152
    Content type: Research Published on:

  29. Japan has the largest population of older adults in the world; it is only growing as life expectancy increases worldwide. As such, solutions to potential obstacles must be studied to maintain healthy, producti...

    Authors: Sakiko Fukui, Naoko Otsuki, Sumie Ikezaki, Hiroki Fukahori and Saori Irie
    Citation: BMC Palliative Care 2021 20:151
    Content type: Research Published on:

  30. An understanding of the oncology nurse spiritual care competence would help nurse managers recognize weakness in spiritual practice and improve the quality of spiritual care. But the relationship between attit...

    Authors: Liujin Li, Jingmin Lv, Lingling Zhang, Yalan Song, Ying Zhou and Jiaxian Liu
    Citation: BMC Palliative Care 2021 20:150
    Content type: Research Published on:

  31. Canadian palliative care (PC) philosophy seeks to support individuals in a person-centered and sensitive manner. Unfortunately, philosophy does not necessarily translate into practice and this divide may leave...

    Authors: Nicole Luymes, Nicole Williams, Liz Garrison, Donna Goodridge, Maria Silveira and Dawn M. Guthrie
    Citation: BMC Palliative Care 2021 20:149
    Content type: Research Published on:

  32. End-of-life preferences may change over time, e.g. due to illness progression or life events. Research on stability of end-of-life preferences has largely focused on life-sustaining treatments in seriously ill...

    Authors: Malin Eneslätt, Gert Helgesson and Carol Tishelman
    Citation: BMC Palliative Care 2021 20:148
    Content type: Research Published on:

  33. Home death is one of the key performance indicators of the quality of palliative care service delivery. Such a measure has direct implications on everyone involved at the end of life of a dying patient, includ...

    Authors: Manjusha K. Sathiananthan, Gregory B. Crawford and Jaklin Eliott
    Citation: BMC Palliative Care 2021 20:147
    Content type: Research Published on:

  34. Introducing welfare technology in home-based palliative care has been suggested to be beneficial for improving access to health care at home and enhancing patients’ feelings of security and safety. However, li...

    Authors: Lina Oelschlägel, Alfhild Dihle, Vivi L. Christensen, Kristin Heggdal, Anne Moen, Jane Österlind and Simen A. Steindal
    Citation: BMC Palliative Care 2021 20:146
    Content type: Research Published on:

  35. Recently immigrated and ethnic minority patients in Ontario, Canada are more likely to receive aggressive life-prolonging treatment at the end of life in comparison to other patients. To explore this finding f...

    Authors: Ayah Nayfeh, Christopher J. Yarnell, Craig Dale, Lesley Gotlib Conn, Brigette Hales, Tracey Das Gupta, Anita Chakraborty, Ruxandra Pinto, Ru Taggar and Robert Fowler
    Citation: BMC Palliative Care 2021 20:145
    Content type: Research Published on:

  36. The occurrence of colorectal cancer has doubled over the last 50 years and many people are living with the disease in the palliative phase. Therefore, it is important that healthcare personnel have knowledge a...

    Authors: Ida Røed Flyum, Seila Mahic, Ellen Karine Grov and Pål Joranger
    Citation: BMC Palliative Care 2021 20:144
    Content type: Research Published on:

  37. The integration of palliative care into primary health care has been advocated to improve its accessibility and the continuity of care. Recent studies on such an approach have mainly focused on health care cos...

    Authors: Helen Yue-lai Chan, Carmen Ka-man Chung, Shawn Sze-chai Tam and Rita Suk-kuen Chow
    Citation: BMC Palliative Care 2021 20:143
    Content type: Research Published on:

  38. There is a need for more insight into how to address challenges of information-provision for women with advanced breast cancer. We aimed to explore oncologists’ and patients’ views on (i) the challenges of inf...

    Authors: Liesbeth M. van Vliet, Maartje C. Meijers, Sandra van Dulmen, Elsken van der Wall, Nicole Plum, Jacqueline Stouthard and Anneke L. Francke
    Citation: BMC Palliative Care 2021 20:142
    Content type: Research Published on:

  39. Previous data indicate major differences between countries and settings regarding the intention when administering sedative drugs at the end of life and the perception, which drugs are sedating. Therefore, we ...

    Authors: Sophie Meesters, Bettina Grüne, Claudia Bausewein and Eva Schildmann
    Citation: BMC Palliative Care 2021 20:141
    Content type: Research Published on:

  41. Advance Care Planning (ACP) by Registered Nurses (RNs) has been emerging. However, there is limited understanding about what RNs experience as they incorporate ACP into their practice. This study aimed to elic...

    Authors: Se Ok Ohr, Peter Cleasby, Sarah Yeun-Sim Jeong and Tomiko Barrett
    Citation: BMC Palliative Care 2021 20:139
    Content type: Research Published on:

  42. Advance care planning involves the discussion and documentation of an individual’s values and preferences to guide their future healthcare should they lose capacity to make or communicate treatment decisions. ...

    Authors: Gregory Brian Crawford, Katherine Hodgetts, Teresa Burgess and Jaklin Eliott
    Citation: BMC Palliative Care 2021 20:138
    Content type: Research Published on:

  43. Patients with incurable cancer face complex medical decisions. Their family caregivers play a prominent role in shared decision making processes, but we lack insights into their experiences. In this study, we ...

    Authors: Sanne P. C. van Oosterhout, Daisy J. M. Ermers, Floor K. Ploos van Amstel, Carla M. L. van Herpen, Yvonne Schoon, Marieke Perry, Maartje van Geel, Evelien J. M. Kuip and Yvonne Engels
    Citation: BMC Palliative Care 2021 20:137
    Content type: Research Published on:

  44. Losing a child tragically impacts the well-being and functioning of parents. With these effects extending beyond emotional, physical morbidity and compromising self-perceptions, appropriate, longitudinal, time...

    Authors: Prachi Simran Vig, Jia Yin Lim, Randal Wei Liang Lee, Huixin Huang, Xiu Hui Tan, Wei Qiang Lim, Marie Bernadette Xin Yi Lim, Alexia Sze Inn Lee, Min Chiam, Crystal Lim, Vijayendra Ranjan Baral and Lalit Kumar Radha Krishna
    Citation: BMC Palliative Care 2021 20:136
    Content type: Research Published on:

  46. Special palliative care is provided in a range of settings including a patient’s home (their primary place of dwelling), a hospice in-patient unit, or an acute hospital. The aim of the study was to evaluate th...

    Authors: Michael Connolly, Mary Ryder, Kate Frazer, Eileen Furlong, Teresa Plazo Escribano, Philip Larkin, Eileen Carruthers and Eileen McGuigan
    Citation: BMC Palliative Care 2021 20:134
    Content type: Research Published on:

  47. Spiritual well-being is increasingly investigated in relation to patients’ perceived quality of life and is generally thought as having the potential to support patients with cancer who receive palliative care...

    Authors: Maria Kyranou and Marianna Nicolaou
    Citation: BMC Palliative Care 2021 20:133
    Content type: Research Published on:

  48. Family caregivers often report having unmet support needs when caring for someone with life-threatening illness. They are at risk for psychological distress, adverse physical symptoms and negatively affected q...

    Authors: Maria Norinder, Kristofer Årestedt, Susanne Lind, Lena Axelsson, Gunn Grande, Gail Ewing, Maja Holm, Joakim Öhlén, Inger Benkel and Anette Alvariza
    Citation: BMC Palliative Care 2021 20:132
    Content type: Research Published on:

  49. To be able to provide high-quality palliative care, there need to be a number of organizational structures available in the nursing homes. It is unclear to what extent such structures are actually present in n...

    Authors: E. Honinx, L. Van den Block, R. Piers, B. D. Onwuteaka-Philipsen, S. Payne, K. Szczerbińska, G. Gambassi, M. Kylänen, L. Deliens and T. Smets
    Citation: BMC Palliative Care 2021 20:131
    Content type: Research article Published on:

  50. In early stage chronic obstructive pulmonary disease (COPD), dyspnea has been reported as the main symptom; but at the end of life, patients dying from COPD have a heavy symptom burden. Still, specialist palli...

    Authors: Ingela Henoch, Ann Ekberg-Jansson, Claes-Göran Löfdahl and Peter Strang
    Citation: BMC Palliative Care 2021 20:130
    Content type: Research article Published on:
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BMC Palliative Care

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