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  1. Despite complex illness trajectories and a high symptom burden, palliative care has been sub-optimal for patients with end-stage kidney disease and hemodialysis treatment who have a high rate of hospitalizatio...

    Authors: Lena Axelsson, Eva Benzein, Jenny Lindberg and Carina Persson
    Citation: BMC Palliative Care 2019 18:89
  2. Despite the great advances in the concept of palliative care (PC) and its benefits, its application seems to be delayed, leaving unfulfilled the many needs of patients and family members. One way to overcome t...

    Authors: Giovanna Artioli, Gabriele Bedini, Elisabetta Bertocchi, Luca Ghirotto, Silvio Cavuto, Massimo Costantini and Silvia Tanzi
    Citation: BMC Palliative Care 2019 18:88
  3. Keeping people living with advanced dementia in their usual place of residence is becoming a key governmental goal but to achieve this, family carers and health care professionals must negotiate how to provide...

    Authors: Nuriye Kupeli, Elizabeth L. Sampson, Gerard Leavey, Jane Harrington, Sarah Davis, Bridget Candy, Michael King, Irwin Nazareth, Louise Jones and Kirsten Moore
    Citation: BMC Palliative Care 2019 18:87
  4. Many people with advanced dementia live in residential aged care homes. Care home staff need the knowledge and skills to provide high-quality end-of-life (EOL) dementia care. However, several studies have foun...

    Authors: Joanne Tropea, Christina E. Johnson, Debra Nestel, Sanjoy K. Paul, Caroline A. Brand, Anastasia F. Hutchinson, Ross Bicknell and Wen Kwang Lim
    Citation: BMC Palliative Care 2019 18:86
  5. Patients with incurable cancer have to deal with a wide range of symptoms due to their disease and treatment, influencing their quality of life. Nowadays, patients are expected to adopt an active role in manag...

    Authors: Anouk S. Schuit, Karen Holtmaat, Nienke Hooghiemstra, Femke Jansen, Birgit I. Lissenberg-Witte, Veerle M. H. Coupé, Myra E. van Linde, Annemarie Becker-Commissaris, Jaap C. Reijneveld, Josée M. Zijlstra, Dirkje W. Sommeijer, Simone E. J. Eerenstein and Irma M. Verdonck-de Leeuw
    Citation: BMC Palliative Care 2019 18:85
  6. “End of life” is a difficult topic of conversation in East Asian cultures, even among patients and doctors who share a good rapport. In 2016, the Hospice, Palliative Care, and Life-Sustaining Treatment Decisio...

    Authors: Ju Won Kim, Jung Yoon Choi, Won Jin Jang, Yoon Ji Choi, Youn Seon Choi, Sang Won Shin, Yeul Hong Kim and Kyong Hwa Park
    Citation: BMC Palliative Care 2019 18:84
  7. European migrant populations are aging and will increasingly be in need of palliative and end of life care. However, migrant patients are often underrepresented in palliative care research populations. This po...

    Authors: M. Torensma, B. D. Onwuteaka-Philipsen, K. L. Strackee, M. G. Oosterveld-Vlug, X. de Voogd, D. L. Willems and J. L. Suurmond
    Citation: BMC Palliative Care 2019 18:83
  8. Cachexia is a complex and multifactorial syndrome defined as severe weight loss and muscle wasting which frequently goes unrecognised in clinical practice [1]. It is a debilitating syndrome, resulting in patients...

    Authors: Matthew A. Carson, Joanne Reid, Loreena Hill, Lana Dixon, Patrick Donnelly, Paul Slater, Alyson Hill and Donna Fitzsimons
    Citation: BMC Palliative Care 2019 18:82
  9. The distress of patients suffering from a terminal illness can lead to a state of despair and requests for euthanasia and assisted suicide. It is a major challenge for palliative care workers. The Distress The...

    Authors: A. Van Lander, A. Tarot, C. Savanovitch, B. Pereira, B. Vennat and V. Guastella
    Citation: BMC Palliative Care 2019 18:81
  10. A decision to refrain from cardiopulmonary resuscitation (CPR) in the case of cardiac arrest is recommended in terminally ill patients to avoid unnecessary suffering at time of death. The aim of this study was...

    Authors: Bogdan Sterpu, Pia Lindman and Linda Björkhem-Bergman
    Citation: BMC Palliative Care 2019 18:80
  11. Increasing the quality of life with short interventions for vulnerable patients is one of the objectives of palliative care. Biographical approaches are used in a range of different interventions which may req...

    Authors: Michaela Hesse, Simon Forstmeier, Henning Cuhls and Lukas Radbruch
    Citation: BMC Palliative Care 2019 18:79
  12. The palliative care unit is an emotionally challenging place where patients and their families may feel at loss. Art can allow the expression of complex feelings. We aimed to examine how cancer patients hospit...

    Authors: Sandrine Pommeret, Jan Chrusciel, Catherine Verlaine, Marilene Filbet, Colombe Tricou, Stephane Sanchez and Louise Hannetel
    Citation: BMC Palliative Care 2019 18:78
  13. Half of nursing home residents (NHR) suffer from dementia. End-of-life hospitalizations are often burdensome in residents with dementia. A systematic review was conducted to study the occurrence of hospitaliza...

    Authors: Falk Hoffmann, Anke Strautmann and Katharina Allers
    Citation: BMC Palliative Care 2019 18:77
  14. With increased demand for palliative care (PC), the World Health Organisation (WHO) have called for PC teaching to be made routine. However, medical students report feeling unprepared in dealing with end-of-li...

    Authors: Amrita Rai and Stephen Mason
    Citation: BMC Palliative Care 2019 18:76
  15. Laws allowing assisted suicide and euthanasia have been implemented in many locations around the world but some individuals suffering with terminal illness receiving palliative care services are hastening deat...

    Authors: Sheri Mila Gerson, Amanda Bingley, Nancy Preston and Anne Grinyer
    Citation: BMC Palliative Care 2019 18:75
  16. Many people receiving palliative care wish to die at home. Often, support from family or friends is key to ensuring that this wish is fulfilled. However, carers report feeling underprepared to undertake this r...

    Authors: David Scott, Peter Hudson, Karen Charnley, Cathy Payne and Gareth Westcott
    Citation: BMC Palliative Care 2019 18:74
  17. In long-term care facilities often many care providers are involved, which could make it difficult to reach consensus in care. This may harm the relation between care providers and can complicate care. This st...

    Authors: M. ten Koppel, H. R. W. Pasman, J. T. van der Steen, H. P. J. van Hout, M. Kylänen, L. Van den Block, T. Smets, L. Deliens, G. Gambassi, K. Froggatt, K. Szczerbińska and B. D. Onwuteaka-Philipsen
    Citation: BMC Palliative Care 2019 18:73
  18. The need for palliative care is increasing. Since almost every junior doctor will come across palliative care patients, it is important to include palliative care in the undergraduate curriculum. The objective...

    Authors: Jolien Pieters, Diana H. J. M. Dolmans, Daniëlle M. L. Verstegen, Franca C. Warmenhoven, Annemie M. Courtens and Marieke H. J. van den Beuken-van Everdingen
    Citation: BMC Palliative Care 2019 18:72
  19. Caring for someone with dementia can be physically and emotionally difficult. Acting as a caregiver can make it difficult to access sources of support, particularly in the later stages of dementia. This paper ...

    Authors: Nathan Davies, Jenny Hopwood, Nina Walker, Jamie Ross, Steve Iliffe, Kate Walters and Greta Rait
    Citation: BMC Palliative Care 2019 18:71
  20. Recognising and knowing how to manage ethical issues and moral dilemmas can be considered an ethical skill. In this study, ethics of care is used as a theoretical framework and as a regulatory criterion in the...

    Authors: Ludovica De Panfilis, Silvia Di Leo, Carlo Peruselli, Luca Ghirotto and Silvia Tanzi
    Citation: BMC Palliative Care 2019 18:70
  21. Pain is one of the most common symptoms that has a severe impact on quality of life and is associated with numerous psychosocial issues in cancer patients. Palliative care, which is a recent development in Chi...

    Authors: Xin-Xin Zhao, Meng Cui, Yi-Hang Geng and Yi-Long Yang
    Citation: BMC Palliative Care 2019 18:69
  22. To determine the validity, reliability and acceptability of the Mandarin Chinese version of the Problems and Needs in Palliative Care questionnaire-short version (PNPC-sv) for measuring problems and palliative...

    Authors: Tao Wang, Alex Molassiotis, Betty Pui Man Chung and Jing-Yu Tan
    Citation: BMC Palliative Care 2019 18:68
  23. Palliative patients generally present with symptoms of dyspnea, easy fatigability, lethargy and feeling of being unwell which can broadly be attributed to one root cause: cancer-related anemia. So, packed red ...

    Authors: Sameer Timilsina, Sirisa Karki, Santosh Timalsina, Aajeevan Gautam and Sabitri Sharma
    Citation: BMC Palliative Care 2019 18:67
  24. According to the World Health Organization, palliative care is one of the main components of healthcare. As the incidence of cancer is increasing in the world, home-based palliative care can be beneficial for ...

    Authors: Heshmatolah Heydari, Suzanne Hojjat-Assari, Mohammad Almasian and Pooneh Pirjani
    Citation: BMC Palliative Care 2019 18:66
  25. Expressive writing involves writing about stressful or traumatic experiences. Despite trials in people with advanced disease, no systematic review to date has critiqued the evidence on expressive writing in th...

    Authors: N. Kupeli, G. Chatzitheodorou, N. A. Troop, D. McInnerney, P. Stone and B. Candy
    Citation: BMC Palliative Care 2019 18:65
  26. Patients with end-stage kidney disease (ESKD) on hemodialysis have limited life expectancy, yet their palliative care needs often go unmet. The aim of this study was to identify barriers and facilitators for i...

    Authors: Sarah L. Goff, Mark L. Unruh, Jamie Klingensmith, Nwamaka D. Eneanya, Casey Garvey, Michael J. Germain and Lewis M. Cohen
    Citation: BMC Palliative Care 2019 18:64
  27. It has been recognised that more evidence about important aspects of family members’ sense of security during palliative care is needed. The objectives of the study was: i) to discover what variables are assoc...

    Authors: Anna Milberg, Maria Liljeroos and Barbro Krevers
    Citation: BMC Palliative Care 2019 18:63
  28. End-of-life (EOL) conversations in hospital should serve to give patients the opportunity to consider future treatment options and help them clarify their values and wishes before it becomes relevant to make d...

    Authors: Heidi Bergenholtz, Helle Ussing Timm and Malene Missel
    Citation: BMC Palliative Care 2019 18:62
  29. Providing quality palliative care in residential aged care facilities (RACFs) (aged care homes) is a high priority for ageing populations worldwide. Older people admitted to these facilities have palliative ca...

    Authors: Sara Karacsony, Anthony Good, Esther Chang, Amanda Johnson and Michel Edenborough
    Citation: BMC Palliative Care 2019 18:61
  30. Incurable oesophageal cancer patients are often affected by existential distress and deterioration of quality of life. Knowledge about the life situation of this patient group is important to provide relevant ...

    Authors: Louise Laursen, Mai Nanna Schønau, Heidi Maria Bergenholtz, Mette Siemsen, Merete Christensen and Malene Missel
    Citation: BMC Palliative Care 2019 18:60
  31. Gender disparities of specific symptoms and problems have frequently been observed in palliative care patients, but research rarely focused on the range of problems and needs affected by gender.

    Authors: Anneke Ullrich, Kristina Grube, Cornelia Hlawatsch, Carsten Bokemeyer and Karin Oechsle
    Citation: BMC Palliative Care 2019 18:59
  32. Health care professionals should prevent and relieve suffering in carers of patients with advanced cancer. Despite known positive effects of systematic carer support, carers still do not receive sufficient sup...

    Authors: Ingebrigt Røen, Hans Stifoss-Hanssen, Gunn Grande, Stein Kaasa, Kari Sand and Anne Kari Knudsen
    Citation: BMC Palliative Care 2019 18:58
  33. Constipation is a common symptom for patients receiving palliative care. Whilst international clinical guidelines are available on the clinical management of constipation for people with advanced cancer receiv...

    Authors: Sonja McIlfatrick, Deborah H. L. Muldrew, Esther Beck, Emma Carduff, Mike Clarke, Anne Finucane, Lisa Graham-Wisener, Phil Larkin, Noleen K. McCorry, Paul Slater and Felicity Hasson
    Citation: BMC Palliative Care 2019 18:57
  34. Systematic research into palliative care (PC) for people with substance use disorder (SUD) and multiple problems is scarce. The existing literature shows problems in the organizational structure of this care, ...

    Authors: Anne Ebenau, Boukje Dijkstra, Chantal ter Huurne, Jeroen Hasselaar, Kris Vissers and Marieke Groot
    Citation: BMC Palliative Care 2019 18:56
  35. Health care providers’ perception of pediatric palliative care might negatively influence timely implementation. The aim of the study was to examine understanding of and attitudes towards pediatric palliative ...

    Authors: Eva De Clercq, Michael Rost, Milenko Rakic, Marc Ansari, Pierluigi Brazzola, Tenzin Wangmo and Bernice S. Elger
    Citation: BMC Palliative Care 2019 18:55
  36. Early start of palliative care improves the quality of life of eligible patients and their relatives. However, in hospital, patients who could benefit from palliative care are often not identified timely. The ...

    Authors: Isabelle Flierman, Ineke C. Nugteren, Rosanne van Seben, Bianca M. Buurman and Dick L. Willems
    Citation: BMC Palliative Care 2019 18:54
  37. Parkinson’s disease (PD) is a chronic and neurodegenerative disease associated with a wide variety of symptoms. The risk of complications increases with progression of the disease. These complications have a t...

    Authors: Herma Lennaerts, Maxime Steppe, Marten Munneke, Marjan J. Meinders, Jenny T. van der Steen, Marieke Van den Brand, Dorian van Amelsvoort, Kris Vissers, Bastiaan R. Bloem and Marieke Groot
    Citation: BMC Palliative Care 2019 18:53
  38. Unregulated care providers (UCPs) are at the forefront of direct client care in the community. Their services are required to meet the demand for home-based palliative care from a growing older population, yet...

    Authors: Christine J. McPherson, Judy Etele, Viviane Chou-Yin Ta and Angelina Raghubir
    Citation: BMC Palliative Care 2019 18:52
  39. Few studies have specifically assessed the scope, nature and challenges of palliative and end-of-life care in rural general practice. These knowledge gaps limit the development of evidence-based policies and s...

    Authors: Jinfeng Ding, Christobel Saunders, Angus Cook and Claire E. Johnson
    Citation: BMC Palliative Care 2019 18:51
  40. There is increasing awareness of the need for an integrated palliative care approach in chronic progressive neurological diseases. Advance care planning (ACP) is an integral part of this approach. As a systema...

    Authors: Antje A. Seeber, A. Jeannette Pols, Albert Hijdra, Hepke F. Grupstra, Dick L. Willems and Marianne de Visser
    Citation: BMC Palliative Care 2019 18:50
  41. Over the past five decades, palliative care has changed from helping patients at the end of life into a highly dedicated service focused on delivering supportive care to patients with life-limiting illnesses t...

    Authors: Ameena Mohammed Al-Ansari, Saleem Nawaf Suroor, Sobhi Mostafa AboSerea and Wafaa Mostafa Abd-El-Gawad
    Citation: BMC Palliative Care 2019 18:49
  42. Sustainable funding is key for ensuring the quality and coverage of palliative care services. This study examined the sources of funding for stand-alone palliative care services in Uganda as well as their serv...

    Authors: Jacinto Amandua, Melkizedeki Stephen Kimaro, Eddie Mwebesa, Ivan Mugisha Taremwa and Christine Atuhairwe
    Citation: BMC Palliative Care 2019 18:48
  43. Although palliative care has been accepted throughout the cancer trajectory, accurate survival prediction for advanced cancer patients is still a challenge. The aim of this study is to identify pre-palliative ...

    Authors: Weiwei Zhao, Zhiyong He, Yintao Li, Huixun Jia, Menglei Chen, Xiaoli Gu, Minghui Liu, Zhe Zhang, Zhenyu Wu and Wenwu Cheng
    Citation: BMC Palliative Care 2019 18:47
  44. Early intervention against cachexia necessitates a predictive model. The aims of this study were to identify predictors of cachexia development and to create and evaluate accuracy of a predictive model based o...

    Authors: Ola Magne Vagnildhaug, Cinzia Brunelli, Marianne J. Hjermstad, Florian Strasser, Vickie Baracos, Andrew Wilcock, Maria Nabal, Stein Kaasa, Barry Laird and Tora S. Solheim
    Citation: BMC Palliative Care 2019 18:46
  45. This study aimed to analyze the determinants of patients’ choice between palliative chemotherapy and best supportive care (BSC) and to investigate how this choice affects overall survival (OS) and length of ho...

    Authors: Yasuko Murakawa, Masato Sakayori and Kazunori Otsuka
    Citation: BMC Palliative Care 2019 18:45
  46. The needs of care based on palliative principles are stressed for all people with progressive and/or life-limiting conditions, regardless of age and the place in which care is provided. Person-centred palliati...

    Authors: Christina Bökberg, Lina Behm, Birgitta Wallerstedt and Gerd Ahlström
    Citation: BMC Palliative Care 2019 18:44
  47. Cancer is the second leading cause of death globally, causing a substantial economic burden on cancer suffers and their families. The aim of this study is to explore the prevalence, determinants and consequenc...

    Authors: Anli Leng, Jun Jing, Stephen Nicholas and Jian Wang
    Citation: BMC Palliative Care 2019 18:43
  48. The benefit of palliative chemotherapy (PC) in patients with advanced solid tumors and poor performance status (ECOG-PS) has not been prospectively validated, which makes treatment decision challenging. We aim...

    Authors: Vitor Fiorin de Vasconcellos, Renata RCC Bonadio, Guilherme Avanço, Marcelo Vailati Negrão and Rachel Pimenta Riechelmann
    Citation: BMC Palliative Care 2019 18:42
  49. Home-based care networks differ in size and composition, but little is known about the characteristics of care networks for those nearing the end of their lives. This study aimed to identify different types of...

    Authors: Femmy M. Bijnsdorp, H. Roeline W. Pasman, Anneke L. Francke, Natalie Evans, Carel F. W. Peeters and Marjolein I. Broese van Groenou
    Citation: BMC Palliative Care 2019 18:41
  50. The aim of this study was to gain insight into the experience of time of terminal patients with cancer. Experience of time is relevant in palliative care in both policy and practice. On a policy level, the Qua...

    Authors: Jordy Johannes Eduardus Rovers, Elze Jantien Knol, Jelte Pieksma, Wytse Nienhuis, Anne Barbara Wichmann and Yvonne Engels
    Citation: BMC Palliative Care 2019 18:40

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