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Equity and the financial costs of informal caregiving in palliative care
The financial burden of end of life caregiving can be substantial, and evidence suggests that the costs of caring are not distributed equitably. Our Editorial Board Member Dr. Gardiner and colleagues present a critical debate article and a review of evidence which highlights how the financial costs of informal caregiving represent an equity issue in palliative care, and generates recommendations to be addressed through the recently established European Association of Palliative Care (EAPC) Taskforce on the financial costs of family caregiving.
Blog: Highlights EAPC 2019: Global Palliative Care – Shaping the future
BMC Palliative Care recently attended the 16th World Research Congress of the European Association Palliative Care (EAPC), which took place May 23rd - 25th in Berlin, Germany. This year’s meeting focused on a particular message: "Severely ill and dying patients need adequate access to an early, coordinated, and continuous palliative care in Europe and around the world." Here we touch upon some of the highlights of the congress.
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Articles
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The impact of uncertainty on bereaved family’s experiences of care at the end of life: a thematic analysis of free text survey data
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Continuity in palliative care – analysis of intersectoral palliative care based on routine data of a statutory health insurance
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Unmet needs related to the quality of life of advanced cancer patients in Korea: a qualitative study
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“It’s given me confidence”: a pragmatic qualitative evaluation exploring the perceived benefits of online end‐of‐life education on clinical care
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Family meetings in palliative care: Multidisciplinary clinical practice guidelines
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Bereavement care interventions: a systematic review
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The Australia-modified Karnofsky Performance Status (AKPS) scale: a revised scale for contemporary palliative care clinical practice [ISRCTN81117481]
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Sedation in palliative care – a critical analysis of 7 years experience
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Quality end-of-life care: A global perspective
What do you mean by “palliative sedation”?
Struggling with the term ‘palliative sedation’? Our Section Editor Prof. Jan Schildmann and his colleague Dr. Alexander Kremling from University of Halle analyzed and discussed the notorious ambiguity and recommend strategies for comprehensive future concepts. Read their full article here.
Aims and scope
BMC Palliative Care is an open access journal publishing original peer-reviewed research articles in the clinical, scientific, ethical and policy issues, local and international, regarding all aspects of hospice and palliative care for the dying and for those with profound suffering related to chronic illness.
Featured article: Supporting caregivers by evaluating risks and needs
Patients in palliative care receive an important support by caregivers. Their role is often demanding and there is therefore the necessity of providing an appropriate support. Assessment of risks and needs of caregivers led to the development of a targeted support plan that showed acceptability and usefulness in palliative care setting.
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