The financial burden of end of life caregiving can be substantial, and evidence suggests that the costs of caring are not distributed equitably. Our Editorial Board Member Dr. Gardiner and colleagues present a critical debate article and a review of evidence which highlights how the financial costs of informal caregiving represent an equity issue in palliative care, and generates recommendations to be addressed through the recently established European Association of Palliative Care (EAPC) Taskforce on the financial costs of family caregiving.
Equity and the financial costs of informal caregiving in palliative care - a critical debate
BMC Palliative Care recently attended the 16th World Research Congress of the European Association Palliative Care (EAPC), which took place May 23rd - 25th in Berlin, Germany. This year’s meeting focused on a particular message: "Severely ill and dying patients need adequate access to an early, coordinated, and continuous palliative care in Europe and around the world." Here we touch upon some of the highlights of the congress.
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Aims and scope
BMC Palliative Care is an open access journal publishing original peer-reviewed research articles in the clinical, scientific, ethical and policy issues, local and international, regarding all aspects of hospice and palliative care for the dying and for those with profound suffering related to chronic illness.
Patients in palliative care receive an important support by caregivers. Their role is often demanding and there is therefore the necessity of providing an appropriate support. Assessment of risks and needs of caregivers led to the development of a targeted support plan that showed acceptability and usefulness in palliative care setting.
- Linda Gummlich, BMC Series, London, UK
- Stephen Madamba, BMC Series, New York, USA
- Jan Schildmann, Martin Luther University Halle-Wittenberg, Germany
- Nancy Preston, Lancaster University, UK
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