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  1. Meeting patients’ preferences for place of care at the end-of-life is an indicator of quality palliative care. Understanding the key elements required for terminal care within an integrated model may inform po...

    Authors: Ri Yin Tay, Rozenne W. K. Choo, Wah Ying Ong and Allyn Y. M. Hum

    Citation: BMC Palliative Care 2021 20:164

    Content type: Research

    Published on:

  2. Although family caregivers (FCs) play an important role in the care provided to incurable cancer patients in our region, little is known about the burden they experience.

    Authors: Samy A. Alsirafy, Radfan Nagy, Amneh D. Hassan, Radwa Fawzy, Ahmad A. M. Abdelhafeez, Marahim O. Husein, Mohammed A. Almashiakhi, Saad H. Alabdullateef, Saeed A. Alghamdi and Ashraf M. Elyamany

    Citation: BMC Palliative Care 2021 20:163

    Content type: Research

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  3. Family caregivers are crucial in providing end-of-life care at home. Without their care, it would be difficult for many patients to die at home. In addition to providing care, family caregivers also need suppo...

    Authors: Yvonne N. Becqué, Judith A. C. Rietjens, Agnes van der Heide and Erica Witkamp

    Citation: BMC Palliative Care 2021 20:162

    Content type: Research

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  4. Cancer patients’ end-of-life care may involve complex decision-making processes. Colombia has legislation regarding provision of and access to palliative care and is the only Latin American country with regula...

    Authors: Esther de Vries, Fabián Alexander Leal Arenas, Agnes van der Heide, Fritz E. Gempeler Rueda, Raul Murillo, Olga Morales, Eduardo Diaz-Amado, Nelcy Rodríguez, Beatriz Juliana Gonzalez, Danny Steven Castilblanco Delgado and Jose A. Calvache

    Citation: BMC Palliative Care 2021 20:161

    Content type: Research

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  5. Patients with haematological cancer had considerable symptom burden, in which fatigue was the most prevalent. Almost 70% of haematological cancer patients reported fatigue.

    Authors: Diana-Leh-Ching Ng, Gin-Gin Gan, Nur Adila Anuar, Yu-Zhen Tung, Natalie-Zi Lai, Yi-Wen Tan, Siti Norazilah Mohd Said, Amalia Madihie, Chee-Shee Chai and Seng-Beng Tan

    Citation: BMC Palliative Care 2021 20:160

    Content type: Research

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  6. Childhood bereavement is common, and is associated with elevated symptoms of grief with distress and impairment. However, few developmentally appropriate interventions to support grieving children are availabl...

    Authors: Ashley Ridley, Alexis Revet, Jean-Philippe Raynaud, Eric Bui and Agnès Suc

    Citation: BMC Palliative Care 2021 20:159

    Content type: Research

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  7. Researchers are encountering increasing challenges in recruiting participants for palliative and healthcare research. This paper aims to understand challenges to and methods for engaging physicians and serious...

    Authors: Valeria Cardenas, Anna Rahman, Jenna Giulioni, Alexis Coulourides Kogan and Susan Enguidanos

    Citation: BMC Palliative Care 2021 20:158

    Content type: Research

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  9. Despite increasing use of telemedicine in the field of palliative care, studies about the best circumstances and processes where it could replace face-to-face interaction are lacking. This study aimed to: (1) ...

    Authors: Clément Cormi, Marie Petit, Juline Auclair, Emmanuel Bagaragaza, Isabelle Colombet and Stéphane Sanchez

    Citation: BMC Palliative Care 2021 20:156

    Content type: Research

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  10. Provision of palliative care to individuals with late-stage serious illnesses is critical to reduce suffering. Palliative care is slowly gaining momentum in Jamaica but requires a highly skilled workforce, inc...

    Authors: Rebecca L. Edwards, Patricia A. Patrician, Marie Bakitas and Adelais Markaki

    Citation: BMC Palliative Care 2021 20:155

    Content type: Research

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  11. Up to 85% of people with motor neuron disease (MND) report pain, but whether pain has negative impact on quality of life is unclear. The aim was to study associations between pain, disease severity and individ...

    Authors: Ylva Åkerblom, Lena Zetterberg, Birgitta Jakobsson Larsson, Dag Nyholm, Ingela Nygren and Pernilla Åsenlöf

    Citation: BMC Palliative Care 2021 20:154

    Content type: Research

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  12. In the last decade, access to national palliative care programs have improved, however a large proportion of patients continued to die in hospital, particularly within internal medicine wards.

    Authors: Filippo Binda, Marco Clari, Gabriella Nicolò, Simone Gambazza, Barbara Sappa, Paola Bosco and Dario Laquintana

    Citation: BMC Palliative Care 2021 20:153

    Content type: Research

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  13. Among the few existing needs assessment tools for family carers, the 14-item Carer Support Needs Assessment Tool (CSNAT) is the only brief and holistic needs screening tool designed for everyday use in palliat...

    Authors: Hui-Lin Cheng, Doris Yin Ping Leung, Po Shan Ko, Ming Wai Chung, Wai Man Lam, Po Tin Lam, Andrew Leung Luk and Simon Ching Lam

    Citation: BMC Palliative Care 2021 20:152

    Content type: Research

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  14. Japan has the largest population of older adults in the world; it is only growing as life expectancy increases worldwide. As such, solutions to potential obstacles must be studied to maintain healthy, producti...

    Authors: Sakiko Fukui, Naoko Otsuki, Sumie Ikezaki, Hiroki Fukahori and Saori Irie

    Citation: BMC Palliative Care 2021 20:151

    Content type: Research

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  15. An understanding of the oncology nurse spiritual care competence would help nurse managers recognize weakness in spiritual practice and improve the quality of spiritual care. But the relationship between attit...

    Authors: Liujin Li, Jingmin Lv, Lingling Zhang, Yalan Song, Ying Zhou and Jiaxian Liu

    Citation: BMC Palliative Care 2021 20:150

    Content type: Research

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  16. Canadian palliative care (PC) philosophy seeks to support individuals in a person-centered and sensitive manner. Unfortunately, philosophy does not necessarily translate into practice and this divide may leave...

    Authors: Nicole Luymes, Nicole Williams, Liz Garrison, Donna Goodridge, Maria Silveira and Dawn M. Guthrie

    Citation: BMC Palliative Care 2021 20:149

    Content type: Research

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  17. End-of-life preferences may change over time, e.g. due to illness progression or life events. Research on stability of end-of-life preferences has largely focused on life-sustaining treatments in seriously ill...

    Authors: Malin Eneslätt, Gert Helgesson and Carol Tishelman

    Citation: BMC Palliative Care 2021 20:148

    Content type: Research

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  18. Home death is one of the key performance indicators of the quality of palliative care service delivery. Such a measure has direct implications on everyone involved at the end of life of a dying patient, includ...

    Authors: Manjusha K. Sathiananthan, Gregory B. Crawford and Jaklin Eliott

    Citation: BMC Palliative Care 2021 20:147

    Content type: Research

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  19. Introducing welfare technology in home-based palliative care has been suggested to be beneficial for improving access to health care at home and enhancing patients’ feelings of security and safety. However, li...

    Authors: Lina Oelschlägel, Alfhild Dihle, Vivi L. Christensen, Kristin Heggdal, Anne Moen, Jane Österlind and Simen A. Steindal

    Citation: BMC Palliative Care 2021 20:146

    Content type: Research

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  20. Recently immigrated and ethnic minority patients in Ontario, Canada are more likely to receive aggressive life-prolonging treatment at the end of life in comparison to other patients. To explore this finding f...

    Authors: Ayah Nayfeh, Christopher J. Yarnell, Craig Dale, Lesley Gotlib Conn, Brigette Hales, Tracey Das Gupta, Anita Chakraborty, Ruxandra Pinto, Ru Taggar and Robert Fowler

    Citation: BMC Palliative Care 2021 20:145

    Content type: Research

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  21. The occurrence of colorectal cancer has doubled over the last 50 years and many people are living with the disease in the palliative phase. Therefore, it is important that healthcare personnel have knowledge a...

    Authors: Ida Røed Flyum, Seila Mahic, Ellen Karine Grov and Pål Joranger

    Citation: BMC Palliative Care 2021 20:144

    Content type: Research

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  22. The integration of palliative care into primary health care has been advocated to improve its accessibility and the continuity of care. Recent studies on such an approach have mainly focused on health care cos...

    Authors: Helen Yue-lai Chan, Carmen Ka-man Chung, Shawn Sze-chai Tam and Rita Suk-kuen Chow

    Citation: BMC Palliative Care 2021 20:143

    Content type: Research

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  23. There is a need for more insight into how to address challenges of information-provision for women with advanced breast cancer. We aimed to explore oncologists’ and patients’ views on (i) the challenges of inf...

    Authors: Liesbeth M. van Vliet, Maartje C. Meijers, Sandra van Dulmen, Elsken van der Wall, Nicole Plum, Jacqueline Stouthard and Anneke L. Francke

    Citation: BMC Palliative Care 2021 20:142

    Content type: Research

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  24. Previous data indicate major differences between countries and settings regarding the intention when administering sedative drugs at the end of life and the perception, which drugs are sedating. Therefore, we ...

    Authors: Sophie Meesters, Bettina Grüne, Claudia Bausewein and Eva Schildmann

    Citation: BMC Palliative Care 2021 20:141

    Content type: Research

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  26. Advance Care Planning (ACP) by Registered Nurses (RNs) has been emerging. However, there is limited understanding about what RNs experience as they incorporate ACP into their practice. This study aimed to elic...

    Authors: Se Ok Ohr, Peter Cleasby, Sarah Yeun-Sim Jeong and Tomiko Barrett

    Citation: BMC Palliative Care 2021 20:139

    Content type: Research

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  27. Advance care planning involves the discussion and documentation of an individual’s values and preferences to guide their future healthcare should they lose capacity to make or communicate treatment decisions. ...

    Authors: Gregory Brian Crawford, Katherine Hodgetts, Teresa Burgess and Jaklin Eliott

    Citation: BMC Palliative Care 2021 20:138

    Content type: Research

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  28. Patients with incurable cancer face complex medical decisions. Their family caregivers play a prominent role in shared decision making processes, but we lack insights into their experiences. In this study, we ...

    Authors: Sanne P. C. van Oosterhout, Daisy J. M. Ermers, Floor K. Ploos van Amstel, Carla M. L. van Herpen, Yvonne Schoon, Marieke Perry, Maartje van Geel, Evelien J. M. Kuip and Yvonne Engels

    Citation: BMC Palliative Care 2021 20:137

    Content type: Research

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  29. Losing a child tragically impacts the well-being and functioning of parents. With these effects extending beyond emotional, physical morbidity and compromising self-perceptions, appropriate, longitudinal, time...

    Authors: Prachi Simran Vig, Jia Yin Lim, Randal Wei Liang Lee, Huixin Huang, Xiu Hui Tan, Wei Qiang Lim, Marie Bernadette Xin Yi Lim, Alexia Sze Inn Lee, Min Chiam, Crystal Lim, Vijayendra Ranjan Baral and Lalit Kumar Radha Krishna

    Citation: BMC Palliative Care 2021 20:136

    Content type: Research

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  31. Special palliative care is provided in a range of settings including a patient’s home (their primary place of dwelling), a hospice in-patient unit, or an acute hospital. The aim of the study was to evaluate th...

    Authors: Michael Connolly, Mary Ryder, Kate Frazer, Eileen Furlong, Teresa Plazo Escribano, Philip Larkin, Eileen Carruthers and Eileen McGuigan

    Citation: BMC Palliative Care 2021 20:134

    Content type: Research

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  32. Spiritual well-being is increasingly investigated in relation to patients’ perceived quality of life and is generally thought as having the potential to support patients with cancer who receive palliative care...

    Authors: Maria Kyranou and Marianna Nicolaou

    Citation: BMC Palliative Care 2021 20:133

    Content type: Research

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  33. Family caregivers often report having unmet support needs when caring for someone with life-threatening illness. They are at risk for psychological distress, adverse physical symptoms and negatively affected q...

    Authors: Maria Norinder, Kristofer Årestedt, Susanne Lind, Lena Axelsson, Gunn Grande, Gail Ewing, Maja Holm, Joakim Öhlén, Inger Benkel and Anette Alvariza

    Citation: BMC Palliative Care 2021 20:132

    Content type: Research

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  34. To be able to provide high-quality palliative care, there need to be a number of organizational structures available in the nursing homes. It is unclear to what extent such structures are actually present in n...

    Authors: E. Honinx, L. Van den Block, R. Piers, B. D. Onwuteaka-Philipsen, S. Payne, K. Szczerbińska, G. Gambassi, M. Kylänen, L. Deliens and T. Smets

    Citation: BMC Palliative Care 2021 20:131

    Content type: Research article

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  35. In early stage chronic obstructive pulmonary disease (COPD), dyspnea has been reported as the main symptom; but at the end of life, patients dying from COPD have a heavy symptom burden. Still, specialist palli...

    Authors: Ingela Henoch, Ann Ekberg-Jansson, Claes-Göran Löfdahl and Peter Strang

    Citation: BMC Palliative Care 2021 20:130

    Content type: Research article

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  36. Dignity is a basic principle of palliative care and is intrinsic in the daily practice of professionals assisting individuals with incurable diseases. Dignity Therapy (DT) is a short-term intervention aimed at...

    Authors: Francesca Nunziante, Silvia Tanzi, Sara Alquati, Cristina Autelitano, Enrica Bedeschi, Elisabetta Bertocchi, Matilde Dragani, Davide Simonazzi, Elena Turola, Luca Braglia, Luciano Masini and Silvia Di Leo

    Citation: BMC Palliative Care 2021 20:129

    Content type: Research

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  37. Palliative care phases (stable, unstable, deteriorating, terminal and bereavement) are routinely used in Australia and the UK to describe the clinical situation of patients and their families and to evaluate t...

    Authors: Eva Lehmann, Farina Hodiamont, Mirjam Landmesser, Carina S. Knobloch, Friedemann Nauck, Christoph Ostgathe, Bettina Grüne and Claudia Bausewein

    Citation: BMC Palliative Care 2021 20:128

    Content type: Research

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  38. Palliative radiotherapy (RT) represents an important treatment opportunity for improving the quality of life in metastatic non-small cell lung cancer (NSCLC) patients through the management of symptoms within ...

    Authors: Valerie Quiñones-Avila, Karen J. Ortiz-Ortiz, Ruth Ríos-Motta, Heriberto Marín-Centeno and Guillermo Tortolero-Luna

    Citation: BMC Palliative Care 2021 20:127

    Content type: Research

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  40. Based on the concept of “Daseinsverabschiedung”, an anthropological theory of “Anticipated Farewell to Existence” (AFE) was suggested on the basis of six grounding dimensions: selfhood, interpersonality, temporal...

    Authors: Juan Valdés-Stauber, Ursula Stabenow, Jakob Böttinger, Sarah Kramer and Reinhold Kilian

    Citation: BMC Palliative Care 2021 20:125

    Content type: Research

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  41. While the need for digital health capability and technological innovation in palliative care services is growing rapidly, relatively little is known about the current uptake and views of individual palliative ...

    Authors: Jason Mills, Jennifer Fox, Raechel Damarell, Jennifer Tieman and Patsy Yates

    Citation: BMC Palliative Care 2021 20:124

    Content type: Research

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  42. The proportion of hospital deaths has declined in the past few decades, while the proportions of nursing home deaths have increased. This trend of increasing deaths in long-term care facilities underlines the ...

    Authors: Xinyi Xu, Shu-Wen Tu and Chia-Chin Lin

    Citation: BMC Palliative Care 2021 20:123

    Content type: Research

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  43. Advance care planning (ACP) conversations are associated with improved end-of-life healthcare outcomes and patients want to engage in ACP with their healthcare providers. Despite this, ACP conversations rarely...

    Authors: Abe Hafid, Michelle Howard, Dale Guenter, Dawn Elston, Shireen Fikree, Erin Gallagher, Samantha Winemaker and Heather Waters

    Citation: BMC Palliative Care 2021 20:122

    Content type: Research

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  44. While advance care planning (ACP) has been shown to improve the quality of end-of-life (EOL) communication and palliative care, it is rarely practiced in long term care (LTC) homes, where staff time to support...

    Authors: Tamara Sussman, Sharon Kaasalainen, Jack Lawrence, Paulette V. Hunter, Valerie Bourgeois-Guerin and Michelle Howard

    Citation: BMC Palliative Care 2021 20:121

    Content type: Research

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  45. Moving palliative care from a solely clinical focus to a more population based and community orientated approach is the hallmark of a much advocated public health approach to palliative care. Young adults are ...

    Authors: Anita Mallon, Felicity Hasson, Karen Casson, Paul Slater and Sonja McIlfatrick

    Citation: BMC Palliative Care 2021 20:120

    Content type: Research

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  46. Physicians’ decision-making for seriously ill patients with advanced dementia is of high importance, especially as the prevalence of dementia is rising rapidly, and includes many challenging ethical, medical a...

    Authors: Saila Haapasalmi, Reetta P. Piili, Riina Metsänoja, Pirkko-Liisa I. Kellokumpu-Lehtinen and Juho T. Lehto

    Citation: BMC Palliative Care 2021 20:119

    Content type: Research

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  47. Improving quality of palliative and end of life care in older people’s care homes is essential. Increasing numbers of people die in these settings, yet access to high quality palliative care is not routinely p...

    Authors: Jane Koerner, Nikki Johnston, Juliane Samara, Wai-Man Liu, Michael Chapman and Liz Forbat

    Citation: BMC Palliative Care 2021 20:118

    Content type: Research

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  48. The legal criteria for medical assistance in dying (MAiD) for adults with a grievous and irremediable medical condition were established in Canada in 2016. There has been concern that potentially reversible st...

    Authors: Madeline Li, Gilla K. Shapiro, Roberta Klein, Anne Barbeau, Anne Rydall, Jennifer A. H. Bell, Rinat Nissim, Sarah Hales, Camilla Zimmermann, Rebecca K. S. Wong and Gary Rodin

    Citation: BMC Palliative Care 2021 20:117

    Content type: Study protocol

    Published on:

  49. Understanding public attitudes towards death and dying is important to inform public policies around End of Life Care (EoLC). We studied the public attitudes towards death and dying in Wales.

    Authors: Ishrat Islam, Annmarie Nelson, Mirella Longo and Anthony Byrne

    Citation: BMC Palliative Care 2021 20:116

    Content type: Research article

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  50. Patients approaching the end of their life do not experience their existential and spiritual needs being sufficiently met by the healthcare professionals responsible for their care. Research suggest that this ...

    Authors: Wafie Hussein Chahrour, Niels Christian Hvidt, Elisabeth Assing Hvidt and Dorte Toudal Viftrup

    Citation: BMC Palliative Care 2021 20:115

    Content type: Research

    Published on:

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BMC Palliative Care

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