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Table 1 Questionnaires used in the study

From: Study protocol: optimization of complex palliative care at home via telemedicine. A cluster randomized controlled trial

Patient questionnaires

Administered at baseline

   • Basic demographic information (7 questions)

Administered at baseline and every week

   • ESAS (Edmonton Symptom Assessment System)

- 10 items on symptom assessment

Administered at baseline and every four weeks

   • PNPC-sv (Problems and Needs in Palliative Care - short version)

- 33 questions on experienced problems and needs for care

   • HADS (Hospital Anxiety and Depression Scale)

- 14 items on anxiety (7 items) and depression (7 items)

   • NCQ (Nijmegen Continuity Questionnaire)

- 28 items within 3 subscales on continuity of care

Family caregiver questionnaire

Administered at baseline and every two weeks

   • EDIZ (one dimensional assessment of care burden)

- 9 items on the experienced burden from informal care

Patient, GP and a member of the palliative consultation team

Administered after the first two teleconsultations

   • PSQ (Patient Satisfaction Questionnaire)

- 5 questions on satisfaction with the teleconsultation