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Table 2 Patient/relative recruitment

From: After you: conversations between patients and healthcare professionals in planning for end of life care

Site No. cases to participate in initial interview No. cases to participate in follow up Interview Additional Notes
1 5 (5 patients; 4 relatives) 4 (3 patients; 3 relatives) One follow up interview was conducted with 2 relatives of a patient who died soon after 1st interview. One other patient died before follow up interview was arranged.
2 3 (3 patients; 4 relatives) 2 (2 patients, 2 relatives) One patient died before follow up interview was arranged.
3 4 (4 patients; 1 relative) 0 Two patients died shortly after 1st interview.
4 5 (5 patients; 2 relatives) 0 Although all 5 patients were still living at the end of the study, delay in access to this site precluded the possibility of follow up interviews
5 1 (1 patient; 0 relatives) 0 One patient died soon after 1st interview.
Total 18 cases (18 patients; 11 relatives) 6 cases (5 patients; 5 relatives)  
  1. Follow up interviews were conducted for 6 of the 18 cases up to one year after the first interview (2 separate interviews with patients; 3 joint interviews with patients and relatives; 1 interview with 2 relatives of a patient who had died since the first interview). There was a level of attrition that impacted on the number of follow up interviews we were able to conduct. In total 6 patients recruited died before a follow up interview was planned. A further 4 patients were known to have died very soon after the completion of fieldwork.
  2. Recruitment from sites 3, 4 and 5 was delayed, leaving no time for follow up interviews.
  3. In total we recruited:
  4. · 9 patients with cancer (sites 1 and 4) - 7 died during or shortly after the study.
  5. · 4 patients with heart failure (sites 2 and 5) - 3 died during or shortly after the study.
  6. · 2 patients with multiple sclerosis (site 4).
  7. · 3 patients who had had strokes and co-morbidities associated with old age (site 4).
  8. (No patients from site 4 died during or in the period shortly after the completion of fieldwork).