Table 1 Demographic characteristics of patients and adolescents
Patient characteristics (N=49) | Adolescent characteristics (N=86) | |||
|---|---|---|---|---|
Mean age 44.31 (sd 6.40; range 29–65) | Mean age 13.78 (sd 2.45; range 11–21) | |||
Female | 57.1% (n=28) | Female | 55.8% (n=48) | |
Cancer (n=49) | Age groups (n=86) | |||
various cancers1 | 55.1% (n=27) | Early adolescence (11–14 years) | 64.0% (n=55) | |
breast / gynecol. | 26.5% (n=13) | Late adolescence (15–18 years) | 31.4% (n=27) | |
digestive organs | 18.4% (n=9) | Young adulthood (19–21 years) | 4.6% (n=4 ) | |
First diagnosis (n=48) | ||||
0-12 months ago | 45.8% (n=22) | Study centre2 | Parents in palliative situation (n=43) | Parents in other disease stages (n=43) |
>12 months ago | 54.2% (n=26) | |||
Specialised palliative care (n=47) | ||||
yes | 12.8% (n=6) | Heidelberg-PM | n=14 (16.3%) | n=13 (15.1%) |
no | 87.2% (n=41) | Berlin-CAP | n=9 (15.1%) | n=13 (10.5%) |
ECOG performance status4 (n=49) | Hamburg-CAP | n=13 (10.5%) | n=9 (15.1%) | |
0-1 | 61.2% (n=30) | Leipzig-CAP | n=7 (8.1%) | n=6 (7.0%) |
2-4 | 38.8% (n=19) | Magdeburg-CAP | - | n=2 (2.3%) |