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Table 4 Unadjusted and adjusted odds of experiencing unmet need or concerns

From: Bereaved family member perceptions of patient-focused family-centred care during the last 30 days of life using a mortality follow-back survey: does location matter?

  Location of care
  Unadjusted (Unadj) and Adjusted1(Adj) Odds ratio (95% confidence interval)
Outcomes: Home Hospital (acutechronic care) Hospital palliative unit Long-term care
Decedent did not receive the desired help for:   Unadj Adj Unadj Adj Unadj Adj
Pain Referent 0.9 (0.5-1.5) 0.8 (0.5-1.5) 0.8 (0.3-1.7) 0.8 (0.4-1.9) 0.9 (0.5-1.4) 1.2 (0.7-2.2)
Dyspnea2 Referent 0.4 (0.2-0.7) 0.3 (0.1-0.6) 100% had their needs met 0.3 (0.2-0.6) 0.2 (0.1-0.5)
Emotional support Referent 1.3 (0.9-1.9) 1.1 (0.7-1.7) 0.6 (0.3-1.1) 0.6 (0.3-1.1) 0.8 (0.5-1.1) 0.7 (0.4-1.1)
Shared decision making. Informant had concerns with communication Referent 1.9 (1.4-2.6) 2.0 (1.4-2.8) 1.1 (0.7-1.8) 1.3 (0.8-2.1) 1.0 (0.7-1.4) 1.2 (0.8-1.8)
Concerns with the decedent being treated with respect Referent 3.7 (2.4-5.6) 3.2 (2.1-5.0) 2.0 (1.1-3.6) 2.1 (1.1-3.9) 2.2 (1.5-3.4) 2.3 (1.4-3.8)
Attend to the needs of the family
a) Unmet need in obtaining information Referent 1.1 (0.9-1.5) 1.0 (0.8-1.4) 0.6 (0.4-0.9) 0.6 (0.4-1.0) 0.7 (0.5-0.9) 0.7 (0.5-1.0)
b) Concerns with knowing what to expect Referent 1.2 (0.8-1.6) 1.1 (0.8-1.5) 1.0 (0.6-1.5) 1.1 (0.7-1.7) 0.6 (0.5-0.9) 0.7 (0.5-0.9)
Concerns about support for the emotional and spiritual needs of the family Referent 1.0 (0.7-1.4) 0.9 (0.6-1.2) 1.0 (0.7-1.5) 1.0 (0.6-1.6) 1.0 (0.8-1.4) 0.7 (0.5-1.0)
Coordination of care concerns Referent 1.4 (0.9-2.0) 1.4 (0.9-2.0) 0.5 (0.2-1.0) 0.5 (0.2-1.0) 0.8 (0.5-1.1) 1.0 (0.6-1.6)
Not completely satisfied with overall care Referent 1.8 (1.4-2.5) 1.6 (1.2-2.3) 1.1 (0.7-1.6) 1.1 (0.7-1.7) 1.3 (1.0-1.8) 1.2 (0.8-1.6)
  1. 1Multivariate logistic regressions adjusted for decedent sex, age, cause of death, marital status, education, income, living alone, visible minority, informant relationship status and informant awareness of the decedent’s approaching death.
  2. 2No concerns were expressed by informants of all decedents who spent the majority of their care in a hospital palliative unit during the last 30 days with respect to dyspnea care.