Experiences of patients, family and professional caregivers with Integrated Palliative Care in Europe: protocol for an international, multicenter, prospective, mixed method study

Table 1 Data collection schedule

Outcome parameter	Data collection method	Baseline	Week 1-4	Month 1	Week 5-8	Month 2	Week 9-12	Month 3	End of data collection
Patient
Organisation of patient’s care network, Collaboration between professional caregivers	Caregiver network analysis questionnaire	X						X
Experiences with IPC initiative, Quality of Care	Semi-structured interview	X						X
	Diary		X		X		X
Quality of Life, Perceived symptoms	Palliative care Outcome Scale	X		X		X		X
Satisfaction with Care	Canhelp Lite	X		X		X		X
Family caregiver
Experiences with IPC initiative, Quality of Care	Semi-structured interview	X						X
Quality of Life, Perceived symptoms of patient	Palliative care Outcome Scale	X		X		X		X
Satisfaction with Care	Canhelp Lite	X		X		X		X
Burden & Reward of care giving	Caregiver Reaction Assessment	X		X		X		X
Professional caregiver
Experiences with IPC initiative, Quality of Care, Collaboration between professional caregivers	Focus group								X

ISSN: 1472-684X