Table 2 Phase 1 data collection summary
All eligible patients | Consented patients | |
|---|---|---|
Patient age at stroke event | Name | Interviews with up to 10 consented patients: |
Gender | Address | |
Date of stroke event | Contact details | Date of interview |
Stroke subtype | Marital status | Interviewer reflections on interview |
Date of admission | Living accommodation | |
Date and destination of transfer of care | Presence of family carer | Interview transcript |
Date and primary/secondary causes of death date of admission | On admission: | Interviews with up to 5 bereaved family relatives: |
Presence of Advance Care Plan | ||
Dying trajectory type (completed by clinical staff) | Co-morbidities (Number) | Date of interview |
Modified Rankin | Interviewer reflections on interview | |
Barthel Index | ||
Communication | Interviewer transcript | |
Cognition | ||
During acute stroke phase: | ||
Number and type of palliative or end of life referrals, and evidence of referrals implemented | ||
Use of DNR orders, including date of discussion with family/implementation | ||
Use of End of Life Pathway, including start date | ||
Dying trajectory type (completed by research and clinical staff) |