Questionnaire | Multiple Sclerosis Impact Scale (MSIS) | Palliative Care Outcome Scale (POS) | POS-MS symptoms (POS-MS) | |||
---|---|---|---|---|---|---|
Number of items | 29 | 8 | 18 | |||
Nature of questions | Impact of symptoms on day to day life in last 2 weeks graded 1 (no problem) to 5 (worst problem) | Effect of the problem in the last 3 days graded 0 (no problem) to 4 (overwhelming effect) | Effect of symptom in the last 3 days graded 0 (no problem) to 4 (overwhelming effect) | |||
Study arm | Fast track | Standard | Fast track | Standard | Fast track | Standard |
Interview 1 (baseline) | Â | Â | Â | Â | Â | Â |
Questionnaires returned/Initial patients entered in study arm (%) | 25/26 (96%) | 24/26 (92%) | 25/26 (96%) | 21/26 (81%) | 26/26 (100%) | 24/26 (92%) |
Reasons for non completion | Â | Â | Â | Â | Â | Â |
Patient too disabled to self-report* | - | 1 | - | 1 | - | 1 |
Questionnaire missed at interview ** | 1 | 1 | 1 | 4 | - | 1 |
N questionnaires with every item completed + | 18 | 12 | 18 | 15 | 23 | 21 |
Interview 2 (4–6 weeks) |  |  |  |  |  |  |
Questionnaires returned/Initial patients entered in study arm (%) | 23/26 (88%) | 21/26 (81%) | 22/26 (85%) | 21/26 (81%) | 24/26 (92%) | 22/26 (85%) |
Reasons for non completion | Â | Â | Â | Â | Â | Â |
Patient died | - | 1 | - | 1 | - | 1 |
Patient withdrawn from study | - | 1 | - | 1 | - | 1 |
Interview missed *** | 1 | 1 | 1 | 1 | 1 | 1 |
Patient too disabled to self report* | - | 1 | - | 1 | - | 1 |
Questionnaire missed in interview ** | 2 | 1 | 3 | 1 | 1 | - |
N questionnaires with every item completed + | 19 | 11 | 17 | 20 | 21 | 18 |
Interview 3 (10–12 weeks) |  |  |  |  |  |  |
Questionnaires returned/Initial patients entered in study arm (%) | 26/26 (100%) | 23/26 (88%) | 26/26 (100%) | 22/26 (85%) | 26/26 (100%) | 23/26 (88%) |
Reasons for non completion | Â | Â | Â | Â | Â | Â |
Patient died | - | 1 | - | 1 | - | 1 |
Patient withdrawn from study | - | 1 | - | 1 | - | 1 |
Patient too disabled to self-report* | - | 1 | - | 1 | - | 1 |
Questionnaire missed in interview ** | - | - | - | 1 | - | - |
N questionnaires with every item completed + | 26 | 19 | 26 | 19 | 24 | 19 |