Table 5 Access barriers
SUBCATEGORY | DESCRIPTION |
|---|---|
Identification of palliative care need | Prognostic insecurity, as well as scarce knowledge about the indication of palliative care in children and adolescence |
Level of awareness of different services | Lack of information on hospice and palliative care services and their potential benefits |
Time of access | Reflection about the right time of involvement of palliative care in the disease trajectory |
Access path | Reflection about the suitable way of access given the heterogeneous conditions and respective responsibilities within the health care system |
Reluctance on part of the parents | Association of palliative care with "giving up" their child; concerns about the right balance between own commitment for their child and involvement of other carers |
Special access requirements | Specific conditions for the access to services, i.e. transition to adulthood, urban vs. rural areas, migration background, malignant vs. non-malignant diseases |