Table 1 General overview of the cases: the deceased people and the interviewees
Relatives interviewed | Professional caregivers interviewed | |
|---|---|---|
Case 1: female, died from dementia, moderate intellectual disability | 1 mentor | 1 nurse |
(a friend) | 1 ID physician | |
1 psychologist | ||
Case 2: female, died from metabolic disease, severe/profound intellectual disability | 1 mother | 2 social workers1 |
1 nurse | ||
1 GP | ||
Case 3: female, died from kidney failure and heart failure, mild intellectual disability | 1 sister | 1 social worker |
1 brother-in-law | 1 GP | |
Case 4: male, died from cancer, mild intellectual disability | 1 sister | 1 social worker |
1 brother-in-law | 1 nurse specialized in palliative care | |
1 GP | ||
Case 5: female, died from cancer, mild intellectual disability | 1 social worker | |
1 nurse | ||
Case 6: male, died from cancer, severe/profound intellectual disability | 1 sister | 1 social worker |
1 ID physician | ||
Case 7: male, died from metabolic disease, severe/profound intellectual disability | 1 mother | 1 social worker |
1 nurse | ||
1 ID physician | ||
Case 8: male, died from cancer, mild/moderate intellectual disability | 1 sister | 2 social workers |
1 ID physician | ||
Case 9: male, died from cancer, mild intellectual disability | 2 sisters | 1 social worker |
1 hospice coordinator | ||
Case 10: female, died from dementia, moderate intellectual disability | 1 brother | 1 nurse |
1 ID physician | ||
Case 11: male, died from frailty in old age, severe/profound intellectual disability | 1 brother | 1 social worker |
1 end-of-life care consultant2 | ||
Case 12 female, died from cancer, moderate intellectual disability | 1 sister | 2 social workers |
1 ID physician | ||
Total | 16 | 29 |