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Table 4 Identified priorities for global research in children’s palliative care

From: Priorities for global research into children’s palliative care: results of an International Delphi Study

Order of priority Area of research Mean (level of importance) % (level of consensus)
1 Children's understanding of death and dying 1.54 78.6 %
2 Managing pain in children where there is no morphine (Strong opioids) 1.61 83.1 %
3 Funding for and the cost of CPC 1.67 84.6 %
4 Training needs for CPC 1.68 82.7 %
5 Assessment of the WHO two-step analgesic ladder for pain management in children 1.72 79.4 %
5 Pain management for non-cancer children with chronic life-threatening illness 1.72 80.0 %
6 Interventions and models of care for CPC 1.76 80.5 %
6 Measuring outcomes of care 1.76 84.1 %
7 Integration of CPC into core health curriculum 1.78 79.5 %
8 Use of opioids in children 1.79 77.5 %
8 The global need for CPC 1.79 78.6 %
9 Ethical issues in CPC 1.80 75.6 %
10 Children's rights and palliative care 1.81 78.2 %
11 Understanding the needs of children and their families 1.83 79.4 %
11 Communicating with children and their families 1.83 80.2 %
11 Assessment of government support for CPC 1.83 78.2 %
12 Assessment and management of different symptoms 1.86 75.0 %
13 Models of education and training for CPC 1.89 76.2 %
14 Use of adjuvant medicines to relive pain 1.91 75.6 %
14 Non-pharmacological management of pain and other distressing symptoms 1.91 78.9 %
14 Perinatal palliative care 1.91 78.9 %
15 Validation of pain assessment tools in different settings/ ages 1.92 77.8 %
15 Models of providing psychological care in CPC 1.92 75.0 %
15 The impact of education programmes on the provision of CPC 1.92 75.0 %
16 The challenges to CPC provision 1.95 77.3 %
17 The illness experience for children 1.96 75.7 %