Table 4 Identified priorities for global research in children’s palliative care
Order of priority | Area of research | Mean (level of importance) | % (level of consensus) |
|---|---|---|---|
1 | Children's understanding of death and dying | 1.54 | 78.6 % |
2 | Managing pain in children where there is no morphine (Strong opioids) | 1.61 | 83.1 % |
3 | Funding for and the cost of CPC | 1.67 | 84.6 % |
4 | Training needs for CPC | 1.68 | 82.7 % |
5 | Assessment of the WHO two-step analgesic ladder for pain management in children | 1.72 | 79.4 % |
5 | Pain management for non-cancer children with chronic life-threatening illness | 1.72 | 80.0 % |
6 | Interventions and models of care for CPC | 1.76 | 80.5 % |
6 | Measuring outcomes of care | 1.76 | 84.1 % |
7 | Integration of CPC into core health curriculum | 1.78 | 79.5 % |
8 | Use of opioids in children | 1.79 | 77.5 % |
8 | The global need for CPC | 1.79 | 78.6 % |
9 | Ethical issues in CPC | 1.80 | 75.6 % |
10 | Children's rights and palliative care | 1.81 | 78.2 % |
11 | Understanding the needs of children and their families | 1.83 | 79.4 % |
11 | Communicating with children and their families | 1.83 | 80.2 % |
11 | Assessment of government support for CPC | 1.83 | 78.2 % |
12 | Assessment and management of different symptoms | 1.86 | 75.0 % |
13 | Models of education and training for CPC | 1.89 | 76.2 % |
14 | Use of adjuvant medicines to relive pain | 1.91 | 75.6 % |
14 | Non-pharmacological management of pain and other distressing symptoms | 1.91 | 78.9 % |
14 | Perinatal palliative care | 1.91 | 78.9 % |
15 | Validation of pain assessment tools in different settings/ ages | 1.92 | 77.8 % |
15 | Models of providing psychological care in CPC | 1.92 | 75.0 % |
15 | The impact of education programmes on the provision of CPC | 1.92 | 75.0 % |
16 | The challenges to CPC provision | 1.95 | 77.3 % |
17 | The illness experience for children | 1.96 | 75.7 % |