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Table 3 The QPP-PC, inclusive dimensions, factors, 49 items and 3 single items

From: Patients’ perceptions of palliative care: adaptation of the Quality from the Patient’s Perspective instrument for use in palliative care, and description of patients’ perceptions of care received

Dimensions/Factors/Items

Cronbach’s αa

 

Subjective importance (SI)

Perceived reality (PR)

Medical–technical competence (12 items)

0.91

0.91

Symptom relief

0.91

0.88

 I receive the best possible help for:

  

  Pain

  

  Nausea/vomiting

  

  Loss of appetite

  

  Shortness of breath

  

  Depression (feeling sad)

  

  Anxiety (feeling nervous)

  

  Lack of sleep

  

  Constipation/diarrhoea

  

Exhaustion

0.89

0.88

 I receive the best possible help to take care of my:

  

  Tiredness (lack of energy)

  

  Drowsiness (feeling sleepy)

  

 I receive:

  

  The best possible medical care (single item)

  

  The best possible help to take care of my personal hygiene (single item)

  

Physical–technical conditions (3 items)

0.65

0.44

Access to help, food and equipment

0.65

0.44

 I receive help within an acceptable waiting times

  

 I receive food and drink that I like

  

 I have access to the necessary equipment

  

Identity-oriented approach (20 items)

0.94

0.88

Information

0.83

0.83

 I receive useful information on:

  

  How care and treatments will take place

  

  The effects and use of medicine

  

  My illness and my symptoms

  

  What I may expect in the near future (development of the illness and symptoms, my health and function)

  

  How to take care of myself

  

  Which doctor are responsible for my medical care

  

  Which nurse are responsible for my nursing care

  

Honesty

0.87

0.78

 The personnel seem to give me honest answers to my questions:

  

  Doctors

  

  Nurses

  

  Other personnel

  

Respect and empathy

0.92

0.81

 The personnel seem to understand how I experience my situation:

  

  Doctors

  

  Nurses

  

  Other personnel

  

 The personnel are respectful towards me:

  

  Doctors

  

  Nurses

  

  Other personnel

  

Participation

0.88

0.81

 I have good opportunity to participate in the decisions that apply to:

  

  Medical care

  

  Nursing care

  

  Individual plan for my care

  

  Choose where to receive my care

  

Socio-cultural atmosphere (17 items)

0.92

0.90

Meaningfulness

0.96

0.89

 The personnel support and assist me in living the rest of my life in a meaningful way:

  

  Doctors

  

  Nurses

  

  Other personnel

  

Spiritual and existential

0.97

0.96

 The personnel support and assist me in tending to my spiritual and existential needs:

  

  Doctors

  

  Nurses

  

  Other personnel

  

Relatives and friends

0.79

0.66

 My relatives:

  

  And friends are treated with respect

  

  Receive the best possible help, support and care

  

  May participate in decisions about my care, according to my preferences

  

Continuity

0.55

0.53

 I usually receive help from the same:

  

  Doctor

  

  nurse

  

 My care is determined by my own requests and needs rather than staff procedures

  

Planning and cooperation

0.79

0.83

 There is good planning of my:

  

  Medical care

  

  Nursing care

  

 The personnel cooperate well

  

 All the health and welfare services that I receive are well coordinated

  

 There is a pleasant and secure atmosphere on the ward (single item)

  
  1. aCronbach’s α, at dimensional and factor levels. For dimensional level, single items are included in the α value
  2. Other personnel refers to: assistant nurse, priest, physiotherapist, occupational therapist or social worker