Table 5 Characteristics of included guidelines

Multidisciplinary guideline Heart Failure/The Netherlands/2010 [22].

Heart Failure

inpatient/outpatient

9 IPC: Discussion of illness limitations and prognosis, Holistic assessments, Timing of PC introduction, Patient’s goals, Continuous goal adjustment, Suffering reduction, ACP*, Involvement of PC team, Last hours of living care.

High

Guideline Palliative care for people with COPD/The Netherlands/ 2011 [23].

COPD

inpatient/outpatient

8 IPC : Discussion of illness limitations and prognosis, Holistic assessments, Timing of holistic assessments, Timing of PC introduction, Patient’s goals, Suffering reduction, ACP, Involvement of PC team.

Medium

Guideline COPD/ The Netherlands/ 2010 [24].

COPD

inpatient/outpatient

5 IPC: Discussion of illness limitations and prognosis, Timing of PC introduction, Patient’s goals, Continuous goal adjustment, Suffering reduction.

Low

Guideline Heart failure/The Netherlands/2010 [25].

Heart failure

inpatient/outpatient

7 IPC: Discussion of illness limitations and prognosis, Holistic assessments, Timing of PC introduction, Patient’s goals, Suffering reduction, Involvement of PC team, Last hours of living care.

Low

Multidisciplinary guideline diagnostics and treatment of COPD/ The Netherlands/ 2010 [26].

COPD

inpatient/outpatient

5 IPC : Discussion of illness limitations and prognosis, Holistic assessments, Timing of PC introduction, Patient’s goals, Suffering reduction.

High

95 Management of chronic heart failure. A national clinical guideline/UK- Scotland/2007 [27].

Heart failure

inpatient/outpatient

4 IPC: Discussion of illness limitations and prognosis, Timing of holistic assessments, Patient’s goals, Suffering reduction.

High

Living and dying with advanced heart failure: a palliative care approach/UK- Scotland/2008 [28].

Heart Failure

inpatient/outpatient

10 IPC: Discussion of illness limitations and prognosis, Holistic assessments, Timing of holistic assessments, Timing of PC introduction, Patient’s goals, Continuous goal adjustment, Suffering reduction, ACP, Involvement of PC team, Last hours of living care.

High

NICE clinical guideline 101: Management of chronic obstructive pulmonary disease in adults in primary and secondary care/UK/2010 [29].

COPD

inpatient/outpatient

3 IPC: Holistic assessments, Suffering reduction, Involvement of PC team.

High

Chronic Obstructive Pulmonary Disease Services/UK- Scotland/ 2010 [30].

COPD

inpatient/outpatient

5 IPC: Discussion of illness limitations and prognosis, Holistic assessments, , Patient’s goals, ACP, Involvement of PC team.

High

Global Strategy for Diagnosis, Management, and Prevention of COPD/UK/ 2013 [31].

COPD

inpatient/outpatient

7 IPC: Discussion of illness limitations and prognosis, Timing of holistic assessments, Timing of PC introduction, Continuous goal adjustment, Suffering reduction, ACP, Involvement of PC team.

High

Heart Disease: quick reference guide/UK/ 2012 [32].

Heart Failure

inpatient/outpatient

3 IPC: Discussion of illness limitations and prognosis, Timing of PC introduction, Suffering reduction.

Low

IMPRESS guide for commissioners on supportive and end of life care for people with COPD/UK/ 2012 [33].

COPD

inpatient/outpatient

9 IPC : Discussion of illness limitations and prognosis, Holistic assessments, Timing of PC introduction, Patient’s goals, Continuous goal adjustment, Suffering reduction, ACP, Involvement of PC team, Grief and bereavement care.

High

Services for people with chronic obstructive pulmonary disease CMG43/UK/ 2011 [34].

COPD

inpatient/outpatient

11 IPC: Discussion of illness limitations and prognosis, Holistic assessments, Timing of holistic assessments, Timing of PC introduction, Patient’s goals, Continuous goal adjustment, Suffering reduction, ACP, Involvement of PC team, Last hours of living care, Grief and bereavement care.

High

Services for people with chronic heart failure/UK/2011 [35].

Heart Failure

inpatient/outpatient

9 IPC : Discussion of illness limitations and prognosis, Holistic assessments, Timing of holistic assessments, Timing of PC introduction, Suffering reduction, ACP, Involvement of PC team, Last hours of living care, Grief and bereavement care.

High

Chronic obstructive pulmonary disease: Management of chronic obstructive pulmonary disease in adults in primary and secondary care/UK/ 2010 [36].

COPD

inpatient/outpatient

2 IPC: Suffering reduction, Involvement of PC team.

High

Best practice guidance on developing a respiratory service specification/UK/ 2008 [37].

COPD

inpatient/outpatient

2 IPC:, Suffering reduction, Last hours of living care.

Low

ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure 2012/Europe/2012 [38].

Heart Failure

Acute setting

8 IPC: Discussion of illness limitations and prognosis, Holistic assessments, Timing of holistic assessments, Timing of PC introduction, Continuous goal adjustment, Suffering reduction, ACP, Involvement of PC team.

High