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Table 2 Lines of care work

From: Family caregivers’ accounts of caring for a family member with motor neurone disease in Norway: a qualitative study

Line of work

Characteristics

Immediate care work

Work in physical proximity to the person in need of care, to replace functionality or provide a sense of safety.

Seeking information and clarity

Work to handle information about the illness, prognostic outlook and ways to manage the situation.

Managing competing obligations

Work to accommodate other obligations than those related to the illness

Maintaining normality

Work to provide a sense of normality, such as remain in paid employment or sustain a social life.

Managing external resources and assistance

Work to handle and incorporate community health workers, friends and family and assistive devices at home.