Table 1 Sample characteristics of parents (N = 200), place of death and age of child (N = 124)
Characteristics | Cardiology | Neonatology | Neurology | Oncology | Total |
|---|---|---|---|---|---|
n = 26 | n = 81 | n = 48 | n = 45 | N = 200 | |
(13 %) | (41 %) | (24 %) | (22 %) | (100 %) | |
Agea, M (SD) | 40 (6.48) | ||||
Mothers, | |||||
n = 112 (56 %) | 38 (4.38) | 37 (4.29) | 41 (6.07) | 43 (7.30) | 39 (6.05) |
Fathers, | |||||
n = 88 (44 %) | 40 (6.88) | 39 (5.77) | 42 (6.56) | 48 (5.85) | 42 (6.83) |
Language, n ( %) | |||||
German | 21 (80.8) | 66 (81.5) | 44 (91.7) | 31 (68.9) | 162 (81.0) |
French | 5 (19.2) | 9 (11.1) | 3 (6.3) | 12 (26.7) | 29 (14.5) |
Italian | 0 (0.0) | 6 (7.4) | 1 (2.1) | 2 (4.4) | 9 (4.5) |
Marital status, n (%) | n = 80 | N = 199 | |||
Married/Partnership | 22 (84.6) | 79 (98.8) | 43 (89.6) | 41 (91.1) | 185 (93.0) |
Divorced/Separated | 4 (15.4) | 1 (1.3) | 4 (8.3) | 2 (4.4) | 11 (5.5) |
Single | 0 (0.0) | 0 (0.0) | 1 (2.1) | 2 (4.4) | 3 (1.5) |
Religious affiliation, n (%) | n = 80 | n = 44 | N = 198 | ||
Catholic | 7 (26.9) | 37 (46.3) | 21 (43.8) | 14 (31.8) | 79 (39.9) |
Protestant | 7 (26.9) | 25 (31.3) | 17 (35.4) | 15 (34.1) | 64 (32.3) |
None | 8 (30.8) | 12 (15.0) | 3 (6.3) | 10 (22.7) | 33 (16.7) |
Other | 4 (15.4) | 6 (7.5) | 7 (14.6) | 5 (11.4) | 22 (11.1) |
Education, n (%) | |||||
School levelsb | 0 (0.0) | 2 (2.5) | 1 (2.1) | 5 (11.1) | 8 (4.0) |
Post school educationc | 11 (42.3) | 39 (48.1) | 19 (39.6) | 20 (44.4) | 89 (44.5) |
Tertiary leveld | 10 (38.5) | 15 (30.9) | 22 (45.8) | 16 (35.6) | 73 (36.5) |
University degree | 5 (19.2) | 15 (18.5) | 6 (12.5) | 4 (8.9) | 30 (15.0) |
Employment status at death of the child | |||||
Working | 10 (38.5) | 41 (50.6) | 28 (58.3) | 16 (35.6) | 95 (47.5) |
Off worke | 16 (61.5) | 40 (49.4) | 20 (41.7) | 29 (64.4) | 105 (52.5) |
Employment status at time of the survey | |||||
Working | 19 (73.1) | 65 (80.2) | 43 (89.6) | 39 (86.7) | 166 (83.0) |
Off worke | 7 (26.9) | 16 (19.8) | 5 (10.4) | 6 (13.3) | 34 (17.0) |
Family incomef, n (%) | n = 19 | n = 66 | n = 44 | n = 40 | N = 169 |
≤ CHF 100,000.- | 9 (47.4) | 33 (50.0) | 17 (38.6) | 24 (60.0) | 83 (49.1) |
> CHF 101,000.- | 10 (52.6) | 33 (50.0) | 27 (61.4) | 16 (40.0) | 86 (50.9) |
Deceased child was the only child, Yes (%) | 1 (3.8) | 13 (16.0) | 6 (12.5) | 4 (8.9) | 24 (12.0) |
Previous loss of a child, Yes (%) | 4 (15.4) | 6 (7.4) | 5 (10.4) | 2 (4.4) | 17 (8.5) |
Place of death | n = 16 | n = 51 | n = 29 | n = 28 | N = 124 |
Intensive care unit | 10 (62.5) | 47 (92.1) | 13 (44.8) | 5 (17.8) | 75 (60.5) |
Hospital | 2 (12.5) | 0 (0.0) | 8 (27.6) | 11 (39.3) | 21 (16.9) |
Home | 3 (18.8) | 3 (5.9) | 6 (20.7) | 11 (39.3) | 23 (18.6) |
Somewhere else | 1 (6.2) | 1 (2.0) | 2 (6.9) | 1 (3.6) | 5 (4.0) |
Deceased child’s age | |||||
in days, Mdn (range) | 5 (1–26) | Na | |||
in years, Mdn (range) | 0.5 (0.1–9.1) | 4.8 (0.1–17.2) | 8.0 (1.7–17.4) | 3.3 (0.1–17.4) |