Development and pilot evaluation of a home-based palliative care training and support package for young children in southern Africa

Table 2 Prioritization of aggregated themes by experts through the Delhi technique

Aggregated themes	Aggregated score	Maximum possible score	% of maximum score
Record keeping, monitoring and evaluation	106	108	98
Recognizing and managing child abuse and child neglect	104	108	96
How to train/adult learning methods/carrying out a needs assessment	206	216	92
Care for the carers/recognizing and dealing with burnout	100	108	92
Communication with children (including play)	98	108	90
Physical symptoms assessment and treatment (including nutrition)	286	324	88
How to deal with ethical/moral dilemmas	93	108	86
Clarifying the roles and responsibilities of home-based care workers	93	108	86
Recognizing and dealing with abnormal bereavement (including memory work)/recognizing imminent death	281	324	86
How to run a support group	91	108	84
Recognizing and dealing with emergencies (including danger signs)	174	216	81
Prevention of illness	163	216	75
Psychosocial issues (welfare grant/birth certificate/death certificate/information on burial)	222	324	68
Promoting the role of the family/men	145	216	67
Talking to a child about death/disclosing HIV status to the child	66	108	62
Discourage patients from seeking alternative treatments (traditional medicines/traditional healers)	115	216	53
Community mobilization/ownership of home-based care project/income generation	111	216	51
Training on antiretroviral therapy (ART)	53	108	49

Note: a number of items are included under each theme and are rated along a Likert scale. Items scores are aggregated for each theme and reflected above as the aggregated score, dependent on the number of items under a theme a maximum possible score is determined, the per cent of the maximum score reflects the aggregated score’s level of agreement and prioritization

ISSN: 1472-684X