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Table 2 Summary of data collection

From: A palliative care link nurse programme in Mulago Hospital, Uganda: an evaluation using mixed methods

Data

Data source

Participants

Time frame

1. Pre and post course assessment and confidence ratings

• Cohort 1 trained using the palliative care toolkit - March and June 2011

• Cohort 2 trained January and March 2012

• Cohort 1 – 11 nurses completed pre and post course assessment and confidence ratings

• Cohort 2 – 16 nurses completed pre and post course assessment and confidence ratings, 1 only completed the pre and not the post-course assessment

• Total of 25 participants completed pre and post course assessment and confidence ratings

• March 2011 – March 2012

2. Course evaluation forms

• Cohort 1 trained using the palliative care toolkit - March and June 2011

• Cohort 2 trained January and March 2012

• Cohort 1 – 11 nurses trained and completed evaluation forms [check this]

• Cohort 2 – 16 nurses trained and completed evaluation forms

• Total of 27 participants completed evaluation forms

• March 2011 – March 2012

3. Audit re the availability of the clinical guidelines

• 11 clinical guidelines developed and distributed to the link-nurses for use on their wards

• Audit carried out across 26 link nurses and the wards where they were working. (1 link-nurse no longer working at the hospital)

• Total of 14 wards audited

• Clinical guidelines developed between June 2011 and July 2012 and distributed to the link-nurses.

• Audit carried out of availability of clinical guidelines in [Insert date]

4. Review of activity database from the link-nurses and MPCU

• Database developed and revised 2011–2013 to include all activity from link-nurses and MPCU

• Data from MPCU team and 26 link-nurses (1 nurse having retired)

• Activity for 2829 patients reviewed

• Data reviewed from July 2012 - December 2013

5. Review of action plans

• Cohort 1 action plans developed June 2011

• Cohort 2 action plans developed March 2012

• Both cohorts reviewed and revised September 2012

• Action plans reviewed regularly by link-nurse co-ordinator

• Cohort 1 – Action plans submitted by 11 nurses

• Cohort 2 – Action plans submitted by 12 nurses

• Action plans reviewed from 26 nurses, as 1 was no longer working at Mulago Hospital

• 2011-2013

6. Focus Group Discussions

• 4 FGDs held

• 13 Link-nurses, including nursing management

• 7 MPCU team members, including the co-ordinator of the link-nurse programme

• Total of 20 participants

• FGDS carried out between May and August 2013

7. Most Significant Change

• MSC stories completed by participants in [date]

• 16 (?check that) nurses submitted MSC stories

• Following review, 4 stories were identified as most significant for the impact on self, 4 on patients, and 2 on colleagues

• September 2013 – May 2013