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Table 1 Demographics of Community PedsCare Pediatric Palliative Care Clients. Health Related Quality of Life Study, (2002–2007)

From: Community-based pediatric palliative care for health related quality of life, hospital utilization and costs lessons learned from a pilot study

Client characteristics (n = 53) Client frequency Percent
Days in Pediatric Palliative Care:
  < 30 days 2 3.8 %
 30 to 90 days 6 11.3 %
 91 to 180 days 10 18.9 %
 181 to 270 days 10 18.9 %
 271 to 365 days 4 7.5 %
  > 365 days 21 39.6 %
Gender:
 Female 29 54.7 %
 Male 24 45.3 %
Race:
 Black 10 18.9 %
 Hispanic 2 3.8 %
 White 33 62.3 %
 Native American 1 1.9 %
 Unknown 7 13.2 %
Age Group:
 0–4 years 23 43.4 %
 5–12 years 19 35.8 %
 13–18 years 8 15.1 %
 19–21 years 3 5.7 %
Family Caregiver Type of Pediatric Client:
 Father 3 5.7 %
 Foster Parent 2 3.8 %
 Grand Father 1 1.9 %
 Grand Mother 2 3.8 %
 Legal Guardian 2 3.8 %
 Mother 42 79.2 %
 Other 1 1.9 %
  1. Data Source: Community Hospice of Northeast Florida Prepared by the Institute for Health, Policy and Evaluation Research