Table 1 List of the six categories of 30 topics for contacts as reported by members of the PPCT

Physical

Pain/other physical symptoms

Medication

Toxicity

Smoking/alcohol/drugs

Nutrition/fluids/sleep

Appearance

Self-support

Condition/fitness/energy

Complementary support

Sign language

Psychosocial

Emotions/feelings

Relations with others

Friendships/love affairs

Parents/siblings/family

Stress reduction

Structuring the situation

Balance in burden and resilience

Support patient/family

Patient organizations

Patient counseling

Preparing/supporting medical procedures

School/daycare

Remedial teaching/school support

Daycare

Cognition/learning/school

Socio-economic

Work

Insurance

Leave

Finances

Facilities

Spare time

Sports/relaxation

Respite care

Hobbies