Table 4 Instruments for the quantitative patient survey to evaluate conversations between palliative care patients and health practitioners
From: The DEsire to DIe in Palliative care: Optimization of Management (DEDIPOM) – a study protocol
Instrument | Use | N Items, Answering Options | Estimated completion time | Validation/ Population |
|---|---|---|---|---|
PDRQ-9 - Patient-Doctor-Relationship Questionnaire German Version | Assessment of patients’ perceived therapeutic alliance with primary care physicians | 9, 5 point Likert scale (from 1 = not correct at all to 5 = fully correct) | 5 min | Validated in German/ General population |
DADDS - Death and Dying Distress Scale German Version | Assessment of patients‘death anxiety | 9, 5 point Likert scale (from 0 = not distressed by this thought or concern to 4 = extreme distress) | 5 min | - / Patients with advanced or metastatic cancer |
SAHD-D – Schedule of Attitudes Towards Hastened Death German Version | Assessment of patients‘desire to hasten death | 20, yes/no (true/false) | 10 min | Validated in German/ Patients in specialized palliative care units |
PHQ9- Patient Health Questionnaire | Facilitate detection of depression according to DSM-IV criteria | 9, 4 point Likert scale (0 = Not at all, 1 = Several days, 2 = More than half the days, 3 = Nearly every day) | 5 min | Validated in German/ Patients in primary care |
BHS - Beck Hopelessness Scale | Assessment of hopelessness and depression | 20, true/false | 10 min | Validated in German |
VAS - Visual Analogue Scale | Assessment of will to live | 1, 100 mm-sacle from complete will to no will | Completed in seconds | – |
Total | 74 | 30–40 min |