Characteristics of children | Number of children (%) | Mean per year/per team (min/max) | Median per year/per team (P25/P75) |
---|---|---|---|
Age of children | |||
0–1 y | 885 (25%) | ||
1–10 y | 1689 (47%) | ||
11–20 y | 879 (24%) | ||
> 20 y | 116 (3%) | 144 (43–240) | 144 (103–196) |
Total of children: 3607 (100%) | |||
Pathologies | |||
Haematology/Oncology | 1816 (50%) | ||
Neurology-/Degenerative/Metabolic | 989 (27%) | ||
Other (Neonatology/Gastroenterology/Respiratory) | 849 (23%) | ||
Total: 3654 (100%) | |||
Curative/Palliative Patients | |||
Curative patients | 2540 (70%) | 102 (1–181) | 105 (82–135) |
Palliative patients | 910 (25%) | 36 (10–86) | 23 (20–58) |
Undefined | 157 (5%) | ||
Total: 3607 (100%) | |||
Referral of new patients | |||
From originating hospital | 1848 (51%) | ||
External hospital | 108 (3%) | ||
Total new patients | 2056 (54%) | ||
Total: 3607 (100%) | |||
Length follow-up (children who died) | 226 days/child (1–4612 days) | 32 days/child (21–201 days) | |
< 120 days | 272 (64%) | ||
121–240 days | 65 (15%) | ||
241–400 days | 31 (7%) | ||
> 401 days | 60 (14%) | ||
Total: 428 (100%) | |||
Location of death | |||
Hospital | 200 (47%) | 8 (2–22) | 6 (6–10) |
Home | 221 (51%) | 9 (1–22) | 9 (3–16) |
Others (respite care home, others) | 7 (2%) | 18 (3–32) | 19 (12–26) |
Total: 428 (100%) |