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Table 4 Themes, frequencies and example quotations of patient views on the DTQP (N = 29)

From: Feasibility, acceptability and adaption of dignity therapy: a mixed methods study achieving 360° feedback

Main Category Themes Frequency M / W Example Quotation (ID)
Title of the intervention (Dignity Therapy ➔ Würdezentrierte Therapie) The title conveys dignity until the end 1 / - The title conveys that my entire existence is dignified and I am taken seriously as long as I am alive. I want to be appreciated. (M 136)
Dignity conveys respect 6 / 1 Dignity means to accept the person and respect him or her as he or she is. (M 163)
Dignity is an attitude 4 / - Dignity evokes the idea of appreciating your own life story. (M 128)
Therapy is irritating 4 / - Therapy is an action and I don’t see how this goes together with dignity. (M 202)
Therapy conveys help 11 / 2 Therapy conveys a helpful technique to solve a problem. (M 43)
The title is not informative 8 / 2 First I couldn’t understand anything with the title. I had no idea what kind of technique this therapy could be. (M 43)
The title is suitable 8 / 5 The title is suitable for this intervention as it means to reflect about what was important in your life. (W 23)
Dignity Therapy Question Protocol Everything is addressed 3 / 2 The questions cover everything like a comprehensive frame. (M 99)
Open questions provoke reflection 4 / 1 The questions force you to think back and reminisce about what you have gone through. (W 54)
The DTQP is coherent 5 / 7 I think it was coherent and every question fits; it combines theoretical and practical aspects. (M 117)
The questions in the DTQP make sense 6 / 1 The questions are all emotional, some make you cry, some make you laugh about something, but it’s always liberating. (W 23)
The DTQP contains duplications 3 / 2 Question no. 8 and no. 9 are similar. (W 007)
Some questions are difficult 5 / 2 It’s difficult to respond to questions that are partly very personal – but it works. (M 83)
There are no upsetting questions 5 / - The questions were alright. None of them was disruptive. (M 92)
Wording of individual questions There are no disruptive words 3 / - There were no specific words that were upsetting. (M 21)
Question 5: Change “Remit” (Aufgabenbereiche) to “Roles” (Rollen) 1 / - I think it would be better to ask for roles instead of remits. (M 43)
Question 2: The word “alive” (lebendig) is moving 3 / - I like the word ‘alive’ because it encompasses everything and is different from being happy or cheerful. (M 57)
Question 8, 9, 10: Relatives mentioned should be personalized - / 1 For me, I would replace relatives with children. (W 007)
Question 7: “Accomplishments” (Leistungen) and “Pride” (Stolz) are connoted positively 2 / - Pride and accomplishments belong to us by nature; it’s something positive. (M 129)
Question 7: “Pride” (Stolz) is connoted negatively 2 / - The word “pride” is too strong and should be replaced with contentment. (M 136)
Question 12: “Advice” (Rat) should be replaced - / 1 The word ‘advice’ is disruptive because I think everyone lives his or her own life. (W 23)
Set of questions actually asked during DT interview The photo metaphor is well received 1 / The question regarding memories as if looking through a photo album is nice. (M 43)
All questions elicited a response 3 / - Any question asked was okay, so that it [the interview] was genuine. (M 83)
Questions concerning loved ones are emotionally evocative 3 / 1 It is important to talk about the emotional things although they trigger sadness. (W 23)
Additional questions arise situational 3 / - The DTQP provides the questions to give me an idea of what the interview is about – additional questions come up as we go along. (M 129)
The interview atmosphere contributes to a successful DT interview 3 / - The Therapist was very good; I don’t think I have opened up that much with many people. (M 136)