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Table 2 Items and operationalisation of the PSBS

From: Evaluation of the palliative symptom burden score (PSBS) in a specialised palliative care unit of a university medical centre - a longitudinal study

Item

Operationalisation

Score

0

No impairment

1

Light impairment

2

Moderate impairment

3

High impairment

4

Severe impairment

1. Alertness

No impairment

Fatigue during the day

Occasional sleep cycles during the day

Mainly sleep cycles during the day

Somnolence

2. Confusion

No impairment

Patient feels too weak for temporal and local orientation

Temporary disorientation

Patient feels high impairment, depressive reaction

Severe confusion, helplessness

3. Restlessness/anxiety

No impairment

Occasional, patient can express the cause

Frequently, care needed

Despite medication, paroxysmal

Pronounced restlessness, panic, suicidal tendencies

4. Sweating

No impairment

Occasional, after activity

Attacks of sweating accompanied by dizziness

Pronounced sweating, laundry change needed

Persisting, quickly recurring sweating

5. Weakness

No impairment

Daily routine possible with great effort

Daily routine possible with great effort and periods of rest

Help needed for activities of daily living

Care-dependent

6. Nausea

No impairment

Temporary with loss of appetite

Occasional, but multiple times per day

High impairment, retching; emesis

Persisting nausea, for hours

7. Vomiting

No impairment

Occasional vomiting after medication or ingestion

Spontaneous vomiting

Multiple vomiting (per stint)

Excruciating vomiting with persistent nausea

8. Dyspnoea

No impairment

Dyspnoea on exertion

Dyspnoea on slight exertion

Dyspnoea at rest

Paroxysmal dyspnoea anxiety, medication needed

9. Coughing

No impairment

Productive cough

Dry cough

Persisting cough

Excruciating cough, pain, fear of suffocation

10. Itching

No impairment

Occasional

Slight itching

Excruciating itching; medication needed

Excruciating itch despite medication

11. Pain

Severity 1–2

Severity 3–4

Severity 5–6

Severity 7–8

Severity 9–10

12. Constipationa

No

Yes

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  1. aConstipation was excluded from the analyses