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Table 1 Characteristics of the participants

From: Anticipatory grief of spousal and adult children caregivers of people with dementia

 

All participants (N = 108)

Spousal caregiver (N = 54)

Adult children caregiver (N = 54)

p-value

Mean ± S.D.

Median [25th percentile, 75th percentile]

Mean ± S.D.

Median [25th percentile, 75th percentile]

Mean ± S.D.

Median [25th percentile, 75th percentile]

Age

62.9 ± 12.6

62.0 [52.0, 72.0]

71.6 ± 10.6

72.0 [66.0, 81.3]

54.2 ± 7.3

53.5 [50.0, 57.25]

<.001

Age of PWD

81.6 ± 7.8

82.0 [77.0, 87.0]

78.3 ± 8.0

78.0 [72.0, 84.25)

84.9 ± 6.0

86.0 [82.0, 90.0]

<.001

No. of years since the diagnosis of dementia

5.4 ± 4.6

4.5 [2.0, 7.0]

5.0 ± 3.3

4.5 [2.0, 8.0]

5.7 ± 5.7

4.5 [2.8, 7.0]

.865

No. of years of being cared for by the participating caregivers

5.2 ± 4.0

4.0 [2.0, 7.0]

5.0 ± 3.5

4.0 [2.0, 7.0]

5.5 ± 4.5

5.0 [2.4, 6.3]

.672

MM-CGI-SF total score

57.7 ± 14.8

57.0 [47.0, 69.8]

64.0 ± 14.7

67.0 [54.5, 76.3]

51.4 ± 12.0

50.0 [45.8, 60.0]

<.001

ZBI total score

43.6 ± 18.2

45.0 [30.0, 56.0]

48.5 ± 18.6

47.5 [33.0, 66.0]

38.8 ± 16.5

40.0 [27.0, 52.0]

.007

PWI total score

6.1 ± 1.7

6.4 [4.9, 7.3]

5.9 ± 1.8

6.3 [4.4, 7.2]

6.4 ± 1.6

6.5 [5.5, 7.4]

.254

Frequency (%)

p-value

Gender

   

.814

 Male

23 (21.3%)

12 (22.2%)

11 (20.4%)

 

 Female

85 (78.7%)

42 (77.8%)

43 (79.6%)

 

Marital status

   

<.001

  Never married

21 (19.4%)

2 (3.7%)

19 (35.2%)

 

 Married

84 (77.8%)

52 (96.3%)

32 (59.3%)

 

 Separated

1 (0.9%)

0 (0.0%)

1 (1.9%)

 

 Widowed

2 (1.9%)

0 (0.0%)

2 (3.7%)

 

Educational level

   

<.001

 No education

10 (9.3%)

10 (18.5%)

0 (0.0%)

 

 Primary

28 (25.9%)

26 (48.1%)

2 (3.7%)

 

 Secondary

43 (39.8%)

14 (25.9%)

29 (53.7%)

 

 Tertiary

27 (25.0%)

4 (7.4%)

23 (42.6%)

 

Religion

   

.101

 No religion

52 (48.1%)

25 (46.3%)

27 (50.0%)

 

 Worship ancestors

9 (8.3%)

7 (13.0%)

2 (3.7%)

 

 Taoism/Buddhism

14 (13.0%)

10 (18.5%)

4 (7.4%)

 

 Christianity/Catholicism

33 (30.6%)

12 (22.2%)

21 (38.9%)

 

Monthly incomea

   

<.001

  < HK$10000 (US$1282)

65 (60.2%)

46 (85.2%)

19 (35.2%)

 

 HK$10000–19,999 (US$1282–2564)

20 (18.5%)

4 (7.4%)

16 (29.6%)

 

 HK$20000–29,999 (US$2564–3846)

8 (7.4%)

0 (0.0%)

8 (14.8%)

 

 HK$30000–39,999 (US$3846–5128)

5 (4.6%)

1 (1.9%)

4 (7.4%)

 

 HK$40000–49,999 (US$5128–6410)

4 (3.7%)

0 (0.0%)

4 (7.4%)

 

 ≥HK$50000 (US$6410)

6 (5.6%)

3 (5.6%)

3 (5.6%)

 

Gender of care-receipt

   

<.001

 Male

48 (44.4%)

41 (75.9%)

7 (13.0%)

 

 Female

60 (55.6%)

13 (24.1%)

47 (87.0%)

 

FAST score

   

.996

 4 or 5 (earlier stage of dementia)

73 (67.6%)

36 (66.7%)

37 (68.5%)

 

 6 or 7 (later stage of dementia)

35 (32.4%)

18 (33.3%)

17 (31.5%)

 

Living with the care-recipient

   

<.001

 Yes

85 (78.7%)

52 (96.3%)

33 (61.1%)

 

 No

23 (21.3%)

2 (3.7%)

21 (38.9%)

 
  1. Remarks: Because of the rounding of decimals, the sum of the percentages might not be 100%. MM-CGI-SF: Marwit-Meuser Caregiver Grief Inventory Short Form; ZBI: Zarit Burden Interview; PWI: Personal Well-being Index; FAST: Functional Assessment and Staging Test
  2. aUS$1 = HK$7.8; the median monthly household income in 2016 was HK$24,900 (US$3192) [43]