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Table 2 SCARED overall event prevalence among caregivers and summary scores of SCARED Scale and general health

From: Caregiver exposure to critical events and distress in home-based palliative care in Germany a cross-sectional study using the Stressful Caregiving Adult Reactions to Experiences of Dying (SCARED) scale

Overall prevalence of critical events

n (%)

severe pain/discomfort

101 (95,2)

unable to eat or swallow/choking

45 (42.5)

vomiting

48 (45.3)

dehydration

29 (27.3)

insomnia

56 (52.8)

falling, collapsing, passing-out

46 (43.4)

confusion, delirium

55 (51.8)

other events

21 (19.8)

family caregiver felt patient “had enough”

57 (53.7)

family caregiver thought patient was dead

22 (20.8)

Summary scores

Mean (SD)

SCARED: total score (range 0–120)

19.4 (13.3)

SCARED: event frequency score (range 0–30)

7.7 (4.1)