Table 1 Interview guide

Can you tell me about your experiences of:

▪ Everyday life before illness

▪ Everyday life with illness

▪ Troublesome symptoms, thoughts, feelings and how these might affect everyday life

▪ How the illness affect life

▪ Social relationships / family

▪ Problems, needs or difficulties in everyday life

▪ Hospitalization and treatment

▪ Interactions with health care professionals

▪ Thoughts and feelings, hopes and dreams about the future

▪ Suggestions for support