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Table 2 Demographic details of interviewed family caregivers (N = 12)

From: Ethical challenges in family caregivers of patients with advanced cancer – a qualitative study

ID FC‘s gender Kind of relationship. FC was … Years FC knew patient in years FC was appointed as substitute decision-maker1 Time between diagnosis and admittance to palliative care ward Time since patient’s death in months Final place of patient’s death
1 Female Partner 35 Yes 2–5 years 6 Palliative care ward
2 Female Partner 15 Yes 3–6 months 6 Inpatient hospice
3 Female Partner 30 Yes 2–5 years 5 Inpatient hospice
4 Female Partner 31 Yes 1–2 years 7 Palliative care ward
5 Female Parent 45 No 5–10 years 5 At home with specialist palliative care
6 Male Child 36 Yes 1–2 years 6 Nursing home
7 Male Child 44 No < 3 months 6 Palliative care ward
8 Female Partner 16 Yes > 10 years 8 Palliative care ward
9 Male Partner 55 No 1–2 years 6 Palliative care ward
10 Female Partner 30 Yes 1–2 years 6 Palliative care ward
11 Male Close friend 20 Yes 6–12 months 6 Inpatient hospice
12 Female Partner 14 No 2–5 years 9 Palliative care ward
  1. 1 During the disease trajectory, the patient had appointed the FC to act as substitute decision-maker in terms of personal (including health) matters. Thus, the FC was permitted under the law to make decisions on behalf of the patient regarding medical decisions, if the patient lacked decision-making capacity
  2. Abbreviations:FCFamily caregivers