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Table 5 Additional issues that would be relevant to include when evaluating the outcome of palliative care

From: Content validation of the EORTC QLQ-C15-PAL with advanced cancer patients and health care professionals from palliative care services in Chile

Additional issues categories Pts. HCPs
Satisfaction with care 8 4
Satisfaction with health care professionals, satisfaction with the information received, adherence to treatment, effectiveness of medication and side effects   
Emotions 5 7
Role loss, mood changes, sadness, anhedonia, fear   
Psychological support 6 6
Psychological needs, significant changes to the way of living, facing life with advanced cancer, measure psychological distress, personality disorders   
Sexuality 1 10
Sexual satisfaction, sexual activity   
Social support 4 5
Support from family/relatives, caregivers’ distress, cohabitation, e.g., whom do you live with?   
Symptoms and problems 2 7
Visual problems, sleeping tongue, eating/swallowing problems, drowsiness, dementia/delirium, urinary problems   
Existential issues 1 8
Thoughts about death, uncertainty about future, transcendence   
Spiritual issues   6
Spiritual pain, spirituality   
Physical difficulties 3 3
Ability to move around on you own at home, toileting independence   
Economic problems 1 4
Delay in sick leave payment, transportation expenses, e.g., go to hospital   
Total number of issues 31 60
  1. Pts Patients, HCPs health care professionals