Table 5 Additional issues that would be relevant to include when evaluating the outcome of palliative care
Additional issues categories | Pts. | HCPs |
|---|---|---|
Satisfaction with care | 8 | 4 |
Satisfaction with health care professionals, satisfaction with the information received, adherence to treatment, effectiveness of medication and side effects | Â | Â |
Emotions | 5 | 7 |
Role loss, mood changes, sadness, anhedonia, fear | Â | Â |
Psychological support | 6 | 6 |
Psychological needs, significant changes to the way of living, facing life with advanced cancer, measure psychological distress, personality disorders | Â | Â |
Sexuality | 1 | 10 |
Sexual satisfaction, sexual activity | Â | Â |
Social support | 4 | 5 |
Support from family/relatives, caregivers’ distress, cohabitation, e.g., whom do you live with? |  |  |
Symptoms and problems | 2 | 7 |
Visual problems, sleeping tongue, eating/swallowing problems, drowsiness, dementia/delirium, urinary problems | Â | Â |
Existential issues | 1 | 8 |
Thoughts about death, uncertainty about future, transcendence | Â | Â |
Spiritual issues | Â | 6 |
Spiritual pain, spirituality | Â | Â |
Physical difficulties | 3 | 3 |
Ability to move around on you own at home, toileting independence | Â | Â |
Economic problems | 1 | 4 |
Delay in sick leave payment, transportation expenses, e.g., go to hospital | Â | Â |
Total number of issues | 31 | 60 |