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Table 2 Identified indicators for the assessment of palliative care integration into health systems and rating

From: Evaluating the integration of palliative care in national health systems: an indicator rating process with EAPC task force members to measure advanced palliative care development

Field

Indicator

Global Score

Pediatrics

Vitality of pediatric palliative care associations

9.4

Inclusion of PPC components in pediatrics curricula of specialization for doctors and nurses

9.2

Existence of a PPC representative at the national PC association and vice versa

9.2

Number and type of pediatric palliative care (PPC) services

9.1

Availability of PPC training for neonatologists

9.1

Existence of at least one national PPC association

9.1

Number of specialized PPC consultants

8.8

Existence of national standards and norms for the provision of PPC

8.7

Existence of perinatal PC reference centers

8

Existence of policies regulating pediatrics palliative care provision (P)

7.7

Primary care

Percentage of PC patients identified at the primary care level

8

Time before death receiving PC at the primary care level

7.9

Teaching of primary care PC components in the GP’s resident curricula

7.8

Existence of incentives to promote early identification of PC patients at the primary care level (P)

7.4

Teaching of primary care PC components to medical students

7.3

Long-term care facilities

Existence of official documents regulating PC provision in LTCF (P)

9.1

Collaboration frequency between PC teams and LTCFs (estimate)

9

Participation in international research projects assessing PC provision at LTCFs

8

Existence of publications regarding PC provision at LTCFs

7.9

Existence of PC training programs for staff working at LTCF

7.8

Fund allocation for the provision of PC at LTCFs

7

Volunteering

Existence of training programs for PC volunteers

9.7

Existence of a volunteers representative at the national PC association

9.6

Number of PC volunteers

8.8

Existence of data collection systems to track volunteers activity

8.7

Number of volunteer hospices

8.6

Availability of government funding to cover volunteering activities (P)

8

Existence of compassionate communities

7.6

Cardiology

Existence of pioneering cardiology services providing PC

10

Number of PC topics in national cardiology congresses and vice-versa.

10

Number of publications regarding PC provision in cardiology services

8.6

Existence of specific PC protocols for cardiology services (P)

7.6

Frequency of collaboration between PC and cardiology services

7

Existence of periodical meetings between the national PC and cardiology association

7