Variables from SNAR | |
Demographic variables | Age Sex Living situation, (living alone or cohabiting) |
Clinical characteristics | FEV1 (forced expiratory volume during 1 s) Exacerbations in the last 12 months Hospitalizations due to COPD in the last 12 months Comorbidities Exercise capacity (no of days per week that the patient had been physically active) |
Patient-reported variables | Smoking habits (non-smokers, ex-smokers, and still smokers Dyspnea (modified Medical Research Council dyspnea scale, mMRC) [22] Health-related quality of life (HRQoL) measured by the Clinical COPD Questionnaire (CCQ) [23] In later registrations, health status was measured by the COPD Assessment Test (CAT) [24] |
Variables from SRPC | |
whether death was expected whether the place of death was preferred by the patient whether anyone was present at death whether there had been any EOL discussion about the impending death with either the patient or the family whether the family was invited to participate in a post-death discussion length of stay in the setting Prevalence and relief of the following breakthrough symptoms during the last week of life were registered: Pain, rattle, nausea, anxiety, dyspnea, delirium |