Table 1 Caregiver demographic data

M_age (range) – years

64.6 (25-81)

n female (%)

8 (88.9%)

M_{length of time caregiving} (range) – months^a

50.6 (3-205)

 Graduate Degree

3 (33.3%)

 Undergrad Degree

3 (33.3%)

 College Diploma

2 (22.2%)

 High school

1 (11.1%)

 Spouse

6 (66.7%)

 Child

1 (11.1%)

 Grandchild

1 (11.1%)

 Friend

1 (11.1%)

 Hospital – palliative

5 (55.6%)

 Home

2 (22.2%)

 Hospital – acute

1 (11.1%)

 N/A

1 (11.1%)

 Cancer

3 (33.3%)

 Kidney failure

1 (11.1%)

 Heart failure and stroke

1 (11.1%)

 Pneumonia

1 (11.1%)

 Multiple system atrophy

1 (11.1%)

 Heart failure

1 (11.1%)

 ALS

1 (11.1%)

 Not mentioned in interview

5 (55.6%)

 Utilized

2 (22.2%)

 Plans to utilize

1 (11.1%)

 Expressed interest, but did not receive

1 (11.1%)