Theme | Subthemes* |
---|---|
The Caregiver as Anchor | Part of the Team |
Trapped by the System | |
Lack of Respect | |
Loss | |
Bewildering System | Expectation vs. Reality |
Staffing | |
Crisis | |
Exceptional Experiences | |
Patient, Caregiver, & Family-Centered Care | Psychosocial and Spiritual Aspects |
Patient Choice | |
Access to Care | |
Life Outside Diagnosis |