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Table 2 Themes from caregiver data

From: “The system is well intentioned, but complicated and fallible” interviews with caregivers and decision makers about palliative care in Canada

Theme

Subthemes*

The Caregiver as Anchor

Part of the Team

Trapped by the System

Lack of Respect

Loss

Bewildering System

Expectation vs. Reality

Staffing

Crisis

Exceptional Experiences

Patient, Caregiver, & Family-Centered Care

Psychosocial and Spiritual Aspects

Patient Choice

Access to Care

Life Outside Diagnosis

  1. *italicized quotes were only saturated in caregivers, not in decision makers