Table 2 Descriptive data of the CSNAT items among carers (n = 125)
Domain | Item | Score distribution, n(%) | |||
|---|---|---|---|---|---|
Do you need more support with…. | No | A little more | Quite a bit more | Very much more | |
Support domains to enable the carer to care | ..understanding your relative’s illness? | 67(53.6) | 20(16.0) | 25(20.0) | 13(10.4) |
..managing your relative’s symptoms, including giving medicines? | 68(54.4) | 33(26.4) | 16(12.8) | 8(6.4) | |
..providing personal care for your relative (eg dressing, washing, toileting)? | 62(49.6) | 28(22.4) | 21(16.8) | 14(11.2) | |
..knowing who to contact if you are concerned about your relative (for a range of needs including at night)? | 54(43.2) | 33(26.4) | 23(18.4) | 15(12.0) | |
..equipment to help care for your relative? | 52(41.6) | 36(28.8) | 26(20.8) | 11(8.8) | |
..talking with your relative about his or her illness? | 70(56.0) | 33(26.4) | 19(15.2) | 3(2.4) | |
..knowing what to expect in the future when caring for your relative? | 59(47.2) | 31(24.8) | 26(20.8) | 9(7.2) | |
More direct support domains for carers themseleves | ..having time for yourself in the day? | 39(31.2) | 40(32.0) | 37(29.6) | 9(7.2) |
..your financial, legal or work issues? | 50(40.0) | 32(25.6) | 32(25.6) | 11(8.8) | |
..dealing with your feelings and worries? | 70(56.0) | 30(24.0) | 20(16.0) | 5(4.0) | |
..looking after your own health (physical problems)? | 66(52.8) | 36(28.8) | 18(14.4) | 5(4.0) | |
..your beliefs or spiritual concerns? | 83(66.4) | 27(21.6) | 10(8.0) | 5(4.0) | |
..practical help in the home? | 49(39.2) | 25(20.0) | 31(24.8) | 20(16.0) | |
..getting a break from caring overnight? | 67(53.6) | 30(24.0) | 14(11.2) | 14(11.2) | |