Table 1 Mean and median scores calculated from 48 post-consultation evaluation surveys from six separate consultations using the De Vries et al. framework [17] to assess quality of deliberative process and information. Deliberants rated survey items on a 10-point Likert scale (1 being not at all, 10 being very much)
Hospital 1 | Hospital 2 | ||||||
|---|---|---|---|---|---|---|---|
Survey question | Oncology, N = 8 | Palliative Care, N = 3 | Mixed, N = 14 | Oncology, N = 10 | Palliative Care, N = 4 | Mixed, N = 9 | |
Mean (Median) | Mean (Median) | Mean (Median) | Mean (Median) | Mean (Median) | Mean (Median) | ||
Process | Do you feel that your opinions were respected by your group? | 9.13 (9.5) | 9.66 (10) | 9.42 (10) | 9.4 (10) | 10 (10) | 10 (10) |
Do you feel you were listened to by your facilitator? | 8.88 (9.5) | 10 (10) | 9.5 (10) | 9.6 (10) | 10 (10) | 10 (10) | |
Do you feel that the process that led to your group’s response was fair? | 9 (9) | 10 (10) | 9.6 (10) | 9.3 (9.5) | 10 (10) | 10 (10) | |
How willing are you to abide by the group’s final position, even if you personally have a different view? | 8.13 (9) | 9.66 (10) | 8.35 (9) | 8.7 (9) | 9.5 (9.5) | 9.1 (10) | |
Information | How helpful did you find question and answer interaction with the experts? | 8.13 (9) | 9.66 (10) | 8.6 (9) | 8.3 (9) | 9.5 (9.5) | 9.1 (9.5) |
How helpful did you find the formal presentations given by the experts? | 6.63 (8) | 9.66 (10) | 7.8 (9) | 8.6 (9) | 10 (10) | 8.8 (9.5) | |
How helpful did you find discussing the issues with other participants? | 7.5 (9) | 10 (10) | 8.8 (9) | 8.6 (10) | 10 (10) | 9.6 (10) | |
How much did attending the session change your understanding about the use of this new pharmacogenomics test in pediatric oncology? | 5.75 (6) | 9.33 (10) | 8.1 (9) | 4.5 (5) | 1.75 (2) | 7.2 (7) | |
How much did attending the session change your opinion about the use of this new pharmacogenomics test in pediatric oncology? | 4.5 (5) | 8.33 (10) | 6.8 (7) | 4.3 (5) | 3 (3) | 7.1 (8) | |