Table 1 Reasons that eligible patients refused to participate (n = 504)
Reason for refusal | Patients, no. (%) |
|---|---|
Barriers related to illness severity | 237 (47.0) |
➢ Too burdened by other appointments/not enough time | 98 (19.4) |
➢ Satisfied with current care | 111 (22.0) |
➢ Doesn’t feel well enough to participate | 42 (8.3) |
Misconceptions/stigma related to palliative care | 123 (24.4) |
➢ Does not feel illness is serious enough | 80 (15.9) |
➢ Associates palliative care with hospice and/or death | 60 (11.9) |
Mode of palliative care delivery | 143 (28.4) |
➢ Does not want outpatient palliative care | 133 (26.4) |
➢ Does not want telephonic palliative care | 21 (4.2) |
General research barriers | 83 (16.5) |
➢ Lack of interest in research participation | 79 (15.7) |
➢ Fear of privacy breach/negative feelings towards research | 8 (1.6) |
Family/caregiver barriers | 59 (11.7) |
➢ Family declined patient’s participation | 38 (7.5) |
➢ Does not want to make decision without family/caregiver present | 21 (4.2) |
Physician-related barriers | 4 (0.1) |
➢ Does not want to make decision without physician’s consent | 2 (.04) |
➢ Physician believes that palliative care is not appropriate for patient | 2 (.04) |