Table 5 Parent’s utilisation of support services (N = 56) and comparison of parents of children with cancer (N = 18) and those of children with a non-cancer disease (N = 38) during palliative care and after the child’s death
Overall (N = 56) | Parents of children with cancer (N = 18) | Parents of children with a non-cancer disease (N = 38) | ||
|---|---|---|---|---|
During paediatric palliative care | n/N (%) | n/N (%) | n/N (%) | p-value |
Utilisation of ≥1 support service, n(%) yes | 34/56 (60.7) | 10/18 (55.6) | 24/38 (63.2) | .770 a |
Support services used (multiple answers possible), n(%) yes | ||||
Self-support group | 4/34 (11.8) | 1/10 (10.0) | 3/24 (12.5) | 1.00 a |
Cancer counselling service | 4/34 (11.8) | 4/10 (40.0) | n.a.b | n.a.b |
Psychological counselling | 19/34 (55.9) | 7/10 (70.0) | 12/24 (50.0) | .760 a |
Legal counselling | 9/34 (26.5) | 0/10 (0.0) | 9/24 (37.5) | .044* a |
Counselling on parenting/family issues | 5/34 (14.7) | 1/10 (10.0) | 4/24 (16.7) | 1.00 a |
Spiritual counselling | 11/34 (32.4) | 3/10 (30.0) | 8/24 (33.3) | 1.00 a |
Pre-loss Bereavement care | 8/34 (23.5) | 1/10 (10.0) | 7/24 (29.2) | .411 a |
After the child’s death | n/N (%) | n/N (%) | n/N (%) | p-value |
Utilisation of ≥1 support service, n(%) yes | 47/56 (83.9) | 14/18 (77.8) | 33/38 (86.8) | .448 a |
Support services used (multiple answers possible), n(%) yes | ||||
Self-support group | 14/47 (29.8) | 5/14 (35.7) | 9/33 (27.3) | 1.00 a |
Cancer counselling service | 0/47 (0.0) | 0/14 (0.0) | n.a.b | n.a.b |
Psychological counselling | 31/47 (66.0) | 8/14 (57.1) | 23/33 (69.7) | .371 a |
Legal counselling | 0/47 (0.0) | 0/14 (0.0) | 0/33 (0.0) | n.a. |
Counselling on parenting/family issues | 3/47 (6.4) | 1/14 (7.1) | 2/33 (6.1) | 1.00 a |
Spiritual counselling | 13/47 (27.7) | 5/14 (35.7) | 8/33 (24.2) | .735 a |
Bereavement care | 19/47 (40.4) | 6/14 (42.9) | 13/33 (39.4) | 1.00 b |