Table 7 Correlations between need fulfilment (FIN-PED II) and level of grief (ICG-D)
FIN-PED II - Need Fulfilment | Level of grief symptoms (ICG-D) | ||
|---|---|---|---|
Overall (N = 56) | Parents of children with cancer (N = 18) | Parents of children with a non-cancer disease (N = 38) | |
1 To feel there was hope | r = −.189 | r = .050 | r = −.296 |
p = .220 | p = .866 | p = .113 | |
2 To know when to expect side effects to occur | r = .115 | r = .039 | r = .117 |
p = .416 | p = .881 | p = .504 | |
3 To know what side effects the treatment can cause | r = .068 | r = −.095 | r = .194 |
p = .627 | p = .717 | p = .256 | |
4 To have thorough information about how to care for my child at home | r = .067 | r = .139 | r = .010 |
p = .627 | p = .581 | p = .953 | |
5 To know that health care professionals offer me the opportunity to participate equally in my child’s care | r = .049 | r = .497* | r = −.170 |
p = .725 | p = .042 | p = .322 | |
6 To have trust in the health care system | r = .122 | r = .213 | r = .089 |
p = .393 | p = .412 | p = .617 | |
7 To be informed of changes to my child’s condition | r = −.108 | r = −.238 | r = −.018 |
p = .432 | p = .343 | p = .915 | |
8 To know what treatment my child was receiving | r = −.088 | r = .084 | r = −.157 |
p = .521 | p = .741 | p = .354 | |
9 To feel that the health care professionals were sincere in caring about my child | r = −.207 | r = −.151 | r = −.159 |
p = .125 | p = .550 | p = .340 | |
10 To have explanations given in terms that were understandable to me | r = .028 | r = .180 | r = .066 |
p = .843 | p = .475 | p = .704 | |
11 To be told when and when and why changes were being made in my child’s treatment plans | r = .134 | r = .189 | r = .216 |
p = .350 | p = .484 | p = .213 | |
12 To know I could ask questions any time | r = −.158 | r = −.077 | r = −.108 |
p = .249 | p = .761 | p = .525 | |
13 To know to whom I should direct my questions | r = −.147 | r = −.169 | r = −.073 |
p = .284 | p = .503 | p = .666 | |
14 To know the probable outcome of my child’s illness | r = .185 | r = .035 | r = .295 |
p = .181 | p = .890 | p = .081 | |
15 To know how to give information to my other children (appropriate to his/her age) | r = −.162 | r = .238 | r = −.493* |
p = .325 | p = .393 | p = .014 | |
16 To know what information to give to my other children (appropriate to his/her age) | r = −.195 | r = .168 | r = −.523* |
p = .240 | p = .549 | p = .010 | |
17 To know how to handle the feelings of my other children | r = −.171 | r = .197 | r = −.454* |
p = .291 | p = .481 | p = .023 | |
Need Fulfilment – additional items | |||
18 To have confidence in the staff caring for my child | r = −.180 | r = −.233 | r = −.139 |
p = .194 | p = .352 | p = .419 | |
19 To know that my child’s pain is well adjusted | r = .095 | r = .038 | r = .071 |
p = .494 | p = .881 | p = .680 | |
20 To be able to speak with my child’s caring physician at any time | r = −.033 | r = .283 | r = −.116 |
p = .815 | p = .255 | p = .499 | |
21 To have enough time to make decisions | r = .026 | r = .052 | r = .068 |
p = .854 | p = .849 | p = .699 | |
22 To have my child be treated with dignity | r = −.185 | r = −.183 | r = −.151 |
p = .177 | p = .466 | p = .371 | |
23 To have the opportunity to say goodbye to my child | r = −.278* | r = −.028 | r = −.375* |
p = .042 | p = .914 | p = .022 | |
24 To be with my child when he/she dies | r = −.177 | r = −.408 | r = −.188 |
p = .201 | p = .093 | p = .273 | |
25 To reach the team 24 hours a day, 7 days a week | r = −.120 | r = −.073 | r = −.120 |
p = .384 | p = .773 | p = .480 | |
26 To be prepared for the medical aspects of dying by the treatment team | r = −.182 | r = −.127 | r = −.237 |
p = .187 | p = .615 | p = .164 | |
27 To know that my other children were being well cared for as well | r = −.092 | r = .014 | r = −.174 |
p = .574 | p = .961 | p = .405 | |
28 To have a contact person for every situation at hand | r = −.100 | r = .137 | r = −.205 |
p = .484 | p = .589 | p = .253 | |
29 To have room for conversations with the team about issues other than my child’s disease | r = .130 | r = .463 | r = −.069 |
p = .406 | p = .082 | p = .727 | |
30 To be respected for the way I deal with my child’s disease | r = −.151 | r = −.308 | r = −.058 |
p = .276 | p = .229 | p = .734 | |
31 To get support in dealing with different treatment requests within our family | r = .043 | r = .310 | r = −.084 |
p = .786 | p = .280 | p = .665 | |
32 To have enough time for myself, e.g. for relaxation | r = −.162 | r = −.199 | r = −.180 |
p = .326 | p = .496 | p = .390 | |
33 To get advice on issues of social-law, such as cost assumption | r = −.084 | r = .116 | r = −.238 |
p = .564 | p = .669 | p = .182 | |