Table 2 Open-Ended Questions
Guide questions | Probes |
|---|---|
-What were your thoughts about your child’s condition? -What were the most challenging things in the care of your child living with cancer? | Why did you feel that way? Could you tell me more about that? |
-What were your thoughts about taking care of your child with complex symptoms at home? -What were your feelings and thoughts when the doctor referred your child to home-based palliative care? | Could you tell me more about that? What worried you the most? |
-What support did you expect to get from the home-based palliative care team? -What problems were troubling you the most when taking care of your child living with cancer? | Could you explain more? What were the challenges that you frequently encountered and emotions that you felt while receiving the assistance of home-based palliative care? For example, physical symptoms of your child (fever, pain), emotional situations (sadness), social challenges (feeling lonely), economic challenges (hospital expenses), spiritual issues (angry to God) |
-(Depending on the answers from the previous questions): How did Rachel house help you overcome these problems? -What new information or skills did you get after receiving home-based palliative care from Rachel House’s nurses? -How was your child’s condition while receiving the home-based PPC provided by Rachel House? | What kind of assistance was most helpful in solving these problems? Could you explain more? How did you learn or able to apply the lessons? Did the home-based PPC meet your expectations? |
-How did the home-based PPC help you in your decision-making process? | -If there were conflicts among family members prior to receiving care, was Rachel House’s nurse able to help you in any way? -How did Rachel House’s nurse help you to make decisions regarding your child’s care? |
For family caregivers whose child has passed away: -How did Rachel House’s nurse help you in the preparation towards death and dying process? -How did Rachel House’s nurse support you during your bereavement process after losing your child? | Could you please elaborate |