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Table 2 Participants’ characteristics (N = 379)

From: Family caregivers’ concerns about advance care planning for home-dwelling people with dementia: a cross-sectional observational study in Japan

Variable

N (%) or mean (SD)

Family caregivers

 Age (years; range: 40–83), mean (SD)

58.2 (8.9)

 Sex, male, n (%)

200 (52.8)

Educational attainment, n (%)

 Junior high school or high school

138 (36.4)

 Vocational school or college

74 (19.5)

 University or graduate school

167 (44.1)

Relationship with the person with dementia, n (%)

 Child

284 (74.9)

 Spouse

61 (16.1)

 Spouse of child

29 (7.7)

 Other relative

5 (1.3)

Psychological well-being (range: 0–25), mean (SD)

10.8 (6.1)

Person with dementia

 Living situation

Living with respondent caregiver

369 (97.4)

Living with another caregiver

3 (0.8)

Living alone

7 (1.8)

Age (years; range: 41–99), mean (SD)

82.7 (8.7)

Sex, male, n (%)

72 (19.0)

Time since diagnosis (months), range 2–313, mean (SD)

65.3 (55.8)

Type of dementia, n (%)

 Alzheimer’s disease

254 (67.0)

 Lewy body

55 (14.5)

 Vascular

51 (13.5)

 Frontotemporal

9 (2.4)

 Mixed

13 (3.4)

 Other, including unspecified

24 (6.3)

ADL ability (range: 0–6), mean (SD)

2.9 (2.0)

Cognitive impairment (range 0–6), mean (SD)

3.1 (1.2)

Having cancer, n (%)

19 (5.0)

Participating in peer support groups, n (%)

68 (17.9)

 Senior club

27 (7.1)

 Alzheimer’s Association Japan

23 (6.1)

 Dementia café

18 (4.7)

 Meeting centre

7 (1.8)

  1. ADL Activities of daily living, SD standard deviation
  2. Activities of daily living were evaluated using the Japanese version of the Activities of Daily Living Self-Performance Hierarchy Scale
  3. Cognitive impairment was evaluated using the Japanese version of the Cognitive Performance Scale
  4. Psychological well-being was evaluated using the Japanese version of the World Health Organisation Five Well-Being Index (WHO-5)