Table 4 Responses to open-ended questions

family-related

Some family members with a medical background may interfere with the patient’s treatment. Family members deliberately make it difficult for the healthcare providers. Families whose hospitalization costs were covered more by medical insurance were more likely to prolong the lives of dying patients.

The patient whose medical expenses are covered by government assistance programs is more likely to receive life-sustaining therapy

Prolong the time for family members to accompany the dying patients. I think families need to be given enough time to say goodbye to dying patients. Provide an area of privacy to help families vent their grieving emotions. Provide a separate space for family members to take care of the body of the deceased. Provide a space for family members to change the clothing worn by the deceased. It is not possible for family members to stay with the dying patient all the time, but we can allow family members to visit flexibly and increase the number of visits

healthcare providers- related

Because we had no systematic hospice training, we didn’t know what to do. There is little we can do at present.

I didn’t know what to do or how to comfort the family members when they cried. Although we were with the dying patients, I did not know what they wanted to express, such as that they wanted to see thier family.

Healthcare providers need to listen to family members. Involve psychological consultants in the care of dying patients and their families. Healthcare providers should strengthen the knowledge of end-of-life care have enough ICU nurses.

others

End-of-life care is not popular enough. Chinese people avoid talking about the topic of “death”, we can not communicate with family members and terminal patients about it, which will cause unnecessary trouble.

Alleviate the pain of dying patients.