Table 1 Distribution of scores and item analysis (N = 88)

Pain(i2)

47

15

25

12

1

0

1.1

1.2

0.28

0.43

Shortness of breath(i2)

59

22

11

7

1

0

0.7

1

0.18

0.41

Weakness or lack of energy(i2)

22

33

31

14

1

0

1.4

1

0.35

0.71

Nausea(i2)

78

14

5

2

1

0

0.3

0.8

0.08

0.43

Vomiting(i2)

91

5

3

1

0

0

0.2

0.5

0.05

0.32

Poor appetite(i2)

67

23

8

1

1

0

0.5

0.8

0.13

0.42

Constipation(i2)

74

13

8

3

2

0

0.5

0.9

0.13

0.14

Sore or dry mouth(i2)

48

27

15

9

1

0

0.9

1

0.23

0.49

Drowsiness(i2)

38

26

22

14

1

0

1.1

1.1

0.28

0.64

Poor mobility(i2)

37.5

27

16

12.5

7

0

1.2

1.3

0.3

0.66

Itching(i2)

51

31

8

8

2

0

0.8

1

0.2

0.35

Difficulty sleeping(i2)

44

18

24

9

5

0

1.1

1.2

0.23

0.5

Restless leg(i2)

66

17

10

7

0

0

0.6

0.9

0.15

0.46

Changes to skin(i2)

63

19

0

16

2

0

0.6

0.9

0.08

0.3

Diarrhoea(i2)

81

9

9

1

0

0

0.3

0.7

0.08

0.21

Thirst(i2)

35

32

15

8

10

0

1.3

1.3

0.33

0.51

Anxiety(i3)

47

20

25

6

2

0

1

1.1

0.25

0.42

Family/friends’ anxiety(i4)

27

9

34

15

15

0

1.9

1.4

0.48

0.32

Depression(i5)

62.5

20.5

12.5

4.5

0

0

0.6

0.9

0.15

0.56

Felt at peace(i6)

23

37.5

20.5

15

4

0

1.4

1.1

0.35

0.41

Able to share with family/friends(i7)

37.5

12.5

31

11

8

0

1.4

1.3

0.35

0.36

Information(i8)

47

25

9

8

11

0

1.1

1.4

0.28

0.23

Practical problems(i9)

57

14

12

9

8

0

1

1.3

0.25

0.18

Time wasted on appointments(i10)

54.5

0

41

0

4.5

0

1

1.2

0.3

0.27