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Table 4 Matrix based on relevant review literaturea relating to mechanismsb that are likely to contribute to or counter decision-making for non-beneficial (NBT) and / or inappropriate end-of-life (EoL) treatment according to stakeholder perspectivesc 

From: A systematic review defining non-beneficial and inappropriate end-of-life treatment in patients with non-cancer diagnoses: theoretical development for multi-stakeholder intervention design in acute care settings

 

Contributing mechanisms

Countering mechanisms

Motivation to Address Conflict & Seek Agreement

Patients & family/ guardians

Healthcare practitioners

Conflict and disputes (n = 14)

Agreement seeking (n = 12)

Conflict between practitioners and family on agreeing goals of care

• Conflict between medical staff and family/guardians 5, 19, 20, 21, 32 (n = 5)

• Conflict within the family 21, 64 (n = 2)

Getting patients and families to engage and seek consensus

• Mandatory family meetings 18 (n = 1)

• Patient’s wishes, explicitly sought 13, 18, 19 (n = 3)

Conflict and lack of consensus seeking demonstrated across practitioner groups

• Discord and hierarchical ‘pulling rank’, between doctors and nurses or between senior doctors and junior doctors on what constitutes NBT 7, 18, 33, 43, 47, 53, 61, 65 (n = 8)

Practitioners seeking consensus and collaboration

• Environments or interactions promoting collaboration within medical team 2, 12, 24, 40, 41, 43, 58, 61 (n = 8)

• Reaching consensus across practitioner groups with multi-disciplinary meetings 36, 58 (n = 2)

Valuing Clear Communication and Sharing of Information

Patients & family/ guardians

Misunderstandings and stonewalling (n = 13)

Sharing information well (n = 8)

Misunderstanding of treatment and prognosis

• Problem of not clearly communicating treatment and prognosis to lay people/patients 5, 10, 19, 22, 25, 29, 37, 42 (n = 8)

Presence of medical paternalism

• Lack of sufficient communication between clinicians and patient or family/guardian, such that agreement on goals of care is curtailed 5, 20, 27, 29, 43, 46, 50 (n = 7)

Public awareness and education

• Awareness and education of what constitutes NBT and appropriate decision-making at EoL 5, 36, 37 (n = 3)

Healthcare practitioners

Poor communication within medical team

• Lack of collaborative decision-making within medical team across groups (i.e. nurses, junior doctors, senior doctors) 12, 14, 33, 43, 48, 60 (n = 6)

Promoting ongoing dialogues among practitioners

• Engaging practitioners in formal and informal communication on NBT 1, 3, 5, 18, 51, 52 (n = 6)

Choices around Timing & Documenting of EoL Decisions

Patients & family/ guardians

Healthcare practitioners

Suboptimal timings and communication (n = 8)

Planning ahead well (n = 4)

Engaging too late to agree goals of care, with inadequate communication tools

• Discussions regarding EoL decision-making are delayed or stalled 10, 13, 50, 66 (n = 4)

Documenting patient decisions

• Improved advanced care planning, do not resuscitate and goals of care documentation 1, 13, 50, 64, 66 (n = 5)

Fixed directives that don’t account for changing circumstances

• Can oblige the practitioner to carry on with NBT that may be causing suffering in incapacitated patients 3, 23, 48, 64 (n = 4)

Consolidation and streamlining of care

• Having a team leader or primary clinical point-of-contact (i.e. specialist nurse) to oversee decision-making process relating to NBT across entire hospitalization 10, 50 (n = 2)

  1. aPlease see Supplementary File 2 for reference list as ordered in Table citations
  2. bMechanisms are defined as “reasoning, beliefs, feelings, motivations, and choices of individuals and groups, which lead to patterns of behavior that we recognize as outcome” [50,51,52,53]
  3. cSee Table 2 for definitions of terms