Table 1 Key features collated for each resource. Categorisations with asterisks had over 100 unique labels
From: Towards cataloguing and characterising advance care planning and end-of-life care resources
Data Field | Categorisations Assigned |
|---|---|
Resource title | • Title* |
Publishing Organisation | • Organisation name* |
Organisation type (e.g. charity) | • Charity • Hospice • Not for Profit/Non-Governmental Organisation • Private Sector • Professional Membership Organisation • Public Sector (Local Authority) • Public Sector (NHS) • Regulatory/policy • Research Institute • Web/Information Hub |
Modality | • Booklet • Fact Sheet • Podcast • Tool/Toolkit • Video • Web Page |
Function | • Informational • Learning and development • List of Resources • Proforma / Documentation • Guidelines / Standards for Practice |
Link | • Hyperlink to resource* |
Target audience | • Caregivers, family, and important others • General • Health and social care professionals • Patients and people approaching end of life |
Target condition/population (e.g. cancer) | • Acute care • Advanced Cancer • Alzheimer's • Brain tumour • Cancer • Cancer and non-cancer patients • Care home residents • COVID19 • Dementia • Diabetes • Frailty • General • Heart Failure • Homeless people • Intellectual disabilities • Kidney disease • Learning disabilities • Learning disabilities and Covid • LGBT + • Life limiting illness and COVID19 • Long term lung condition • Motor neurone disease • Pancreatic cancer • Parkinson's Disease • South Asian community |
Population specificity | • Disease-specific • General • Patient community • Setting |
Country setting (if not UK) | • Ireland • Netherlands • USA |
1.Identification of people who may be entering the last year of life | • Yes • No |
2. Access to end of life care services | • Yes • No |
3. Initiation and conduct of important conversations about end-of-life care and preferences | • Yes • No |
4. Advance care planning, including recording of preferences and plans | • Yes • No |
5. Ensuring that plans and preferences are accessed and used by health and social care services | • Yes • No |
Refers to evidence / literature | • Yes • No |
Refers to NICE guidelines? | • Yes • No |