Table 1 Outcome measures used
Outcome measure | Content | Target population | Application |
|---|---|---|---|
Integrated Palliative care Outcome Scale (IPOS) [23] | Ten questions on the main problems, including physical, psychological, spiritual and practical concerns | Patients | Self-report (orally), proxy-report by relatives or HP (separately and/or alternatively) |
Phase of Illness [24] | Five distinct phases of patients’ and relatives’ care needs, and the suitability of current care | Patients | Proxy-report by HP |
Four questions on the impact the SOPC-team had on patients’ quality of life and their main problems | Patients | Self-report (paper version handed out to patients; EDS entry after completion) | |
IPOS VoC: Question (no.4) on quality of life | One question on how patients rate their overall quality of life | Patients | Self-report (orally), proxy-report by relatives or HP (alternatively) |
Views on Care (VoC)- relatives’ versiona | Four questions on the burden on relatives and the impact the SOPC-team had had on their relatives | Relatives | Self-report (paper version handed out to relatives; EDS entry after completion) |
VoC: Question on support provided for relatives | One question about whether the family caregiver felt the family was currently receiving enough help from their SOPC-team | Relatives | Self-report by relatives (orally), or HP (alternatively) |