Table 1 Semantic changes phase I, expert judgment for content validity

“The caregiver for the patient needs more help and support”

“The caregiver for the ill person needs more help and support due to overload affecting various personal spheres (physical, psychosocial, professional and/or spiritual)”

“The person has had significant weight loss during the last few months, or remains underweight”

“The person has had significant unintentional weight loss greater than 10% of total weight in the last 6 months, or remains underweight”

“Functional deterioration due to oncological disease progression”

“Deterioration and general decrease of physical functions due to oncological disease progression”